Wheatwacked
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Wheatwacked
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Burning pain in stomach - normal biopsy
Wheatwacked replied to cristiana's topic in Related Issues & Disorders
The last time I tried to buy Maalox, at several different stores I thought it had been discontinued. I went to the doctor with lower back pain. He ran a lipid panel and my triglycerides were over 10,000. I was admitted to the hospital, Acute Pancreatitis, nothing by mouth, not even ice chips, on IV Dextrose for a week. The plan was to give my guts a total... -
I did not mean to make you angry. I think you might find this article by Dr. Meyers interesting. She specializes in autoimmunology. In synopsis: Raynauds can be a symptom of Lupis. Lupis is often associated with leaky gut, or thyroid issues. https://www.amymyersmd.com/2018/03/5-steps-reverse-lupus/ My issue is once the doctors tell you maybe yes maybe...
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When will my 7 year old's moods improve?
Wheatwacked replied to Lizzie89's topic in Coping with Celiac Disease
Along with celiac disease comes malabsorption syndrome. Get her tested for vitamin D. The mental health benefits become obvious when the blood level is in the middle to upper range. I had to stop taking my Buspirone for anxiety after a few weeks at 10,000 iu/day. The buspirone was making me woozy and I finally was less depressed and I no longer needed... -
I feel embarrassed to ask this but, Cycling Lady, is your daughter on GFD? There is one thing I have noticed over the past years. Most people seem to have numerous complaints about some aspect of their health. Arthritis, cataracts, gut pain, headaches, endometriosis, enlarged prostate for men or overactive bladder if you are a women, high blood pressure...
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Until one day in the not far future you wake up one morning and feel good for the first time in a long time. Thanksgiving 2014 I, like Ennis, was convinced I was going to die, and medications I was prescribed were not helping. Now I am on my way to health. Try 1000 mg Pantothenic Acid (B5) sustained release capsules and 500 mg Magnesium oxide caps for your...
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Of course you will continue to find other foods and nutritional deficiencies and side effects of the medications you take. Read Dr. Davis' book, Wheatbelly Total Health for a good overview. Most of the current popular diets today all have one common thread, either complete or severely reduced consumption of wheat containing foods then add nutrition focused...
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Yes.
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6 year old requires biopsy
Wheatwacked replied to Mbajwa's topic in Parents, Friends and Loved Ones of Celiacs
My biggest regret is that when my son was diagnosed with Celiac disease as an infant 42 years ago, we did not as a family go gluten free. I know that today he would be healthier ( he is in denial and noncompliant), I would not have suffered from the 18 various health complaints not typically related to Celiac I've lived with most of my life that got better... -
Burning pain in stomach - normal biopsy
Wheatwacked replied to cristiana's topic in Related Issues & Disorders
If food doesn't help quick enough I take Alka-Selzer (aspirin and bicarbonate) and that almost always works. Zantac and Pepcid are H pump inhibitors designed to reduce your stomach acid long term, which if not necessary will interfere with your digestive process leading to more malnutrition. And down the rabbit hole you go. They have recently been linked... -
Burning pain in stomach - normal biopsy
Wheatwacked replied to cristiana's topic in Related Issues & Disorders
I get that hunger pain in my back, usually between the right shoulder blade and backbone. At first I thought heart disease, because it is very painful and in the right area, but goes away when I eat the right food. -
I have been underweight my entire life. In 1971 during the Vietnam Era when they were taking everyone for the war, I was exempted from the draft with a 4F (we don't want you and never will don't come back) because I was so underweight. I never weighed more than 173 pounds (6 feet, 2 inches) until a few years ago when I popped up to 185 pounds and a 42 inch...
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Regaining a normal life
Wheatwacked replied to Dunnie's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Good advice from Ennis and GFinGC. Many years ago the health industry ridiculed Linus Pauling for proposing that high doses of vitamin C was beneficial to health, in particular in speeding recovery from the common cold. In the eighties they proved that zinc lozenges stops the common cold and flu viruses practically in their tracks. B5 helps peripheral neuropathy... -
That statement, by itself should help you stay on GFD, whether or not you are labeled Celiac. Some of the secondary effects of your disease process can take several years to reverse. Stay the course. Subclinical malnutrition is the norm, rather than the exception, and few doctors do nutrition. In the face of overwhelming evidence, traditional medicine is...
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In my case, not POTS. I did have years ago, it was called Postural Orthopedic Hypotension and I probably was vitamin deficient then. Situp or standup brain blood pressure drops and you faint. I do not know why it stopped. The closest thing I can compare this to is when I was put under with nitrous oxide by the dentist. Going down down down. And it happened...
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I had an episode last night. I was feeling unusually good, both physically and mentally and watching a movie. I am anorexic so don't usually have an appetite, but there I was feeling good and hungry. So I ate. I had a coke, some prosciutto, cooked salami, and provolone. Not the best choice but I have been eating this occasionally and enjoying it with no reaction...
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Help with diagnosis
Wheatwacked replied to SJenkins114's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sorry, one final comment on Prednisone. In the early '70s my mom's best friend was diagnosed with liver cancer and was given 6 months to live. She was treated with prednisone, I don't know the dose or form, and died seven years later. -
Help with diagnosis
Wheatwacked replied to SJenkins114's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Since the prednisone works, and the Pepcid doesn't make a difference, stick with the prednisone and start GFD. One side effect of prednisone is an "unrealistic sense of well-being".(???) Pepcid has been implicated in kidney failure. I was on a course of 60 mg APO Prednisone (not prednisolone) for 10 days to treat gout. At the end of the treatment I was surprised... -
Severe Burning Stomach pain
Wheatwacked replied to Erick's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It amazes me that mainstream medicine would recommend bread to treat any gut problem. Like throwing gasoline on embers to see if they are extinguished. But the rest of the WebMD article is not bad. Many doctors would blame the patient as acting out because as we all know, bread is good (best thing since sliced bread) and all those people who complain are... -
Severe Burning Stomach pain
Wheatwacked replied to Erick's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am partial to Cream of Rice. Lots of room temp liquids and Cream of Rice, flavored to taste. My grandmother gave it to me and it still soothes my stomach. Also consider Alka Selzer, if there is no risk of Reyes Syndrome. Aspirin, contrary to common belief, helps my indigestion and then there is the bicarbonate. Not Cream of Wheat which puts a hard lump... -
Red Ears And Cheeks
Wheatwacked replied to Dixiebell's topic in Parents, Friends and Loved Ones of Celiacs
It happened to me when I was 63. Now that I have been GFD for three years, I am seeing complaints, some from early childhood just correcting themselves. Whatever your specific diagnosis, if a Gluten Free Diet proves to help you, there is no other treatment. -
Always ill
Wheatwacked replied to Katsnkids's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
When my son was born in 1976, everyone, including the medical community tried to convince my wife that his exploding belly that I referred to then as Biafra baby belly was a result of her anxiety and a course of Valium for her would cure him. It did not. Eventually we found the only doctor in the region knowledgeable in Celiac. The boy was biopsied and after... -
Prednisone for nephrotic syndrome?
Wheatwacked replied to Sahil's topic in Related Issues & Disorders
People get all freaked out when you say you are using Prednisone because it is a steroid and we all know that steroids are bad and are used to cheat in sports, and everyone knows. Wrong. A prednisone story for perspective. My last black lab was on prednisone from nine months old until he died at nine and a half years old of degenerative myelopathy... -
Dr Joel Fuhrman, Eat to Live proved to me that the concept of the SAD diet is real and worldwide. Dr Davis, Wheat Belly has the best practical advice and proved to me that the S in SAD is for sandwich and recovery is possible. His suggestions have worked remarkably well for me. I started with debilitating fibromyalgia at age 60, controlled with Prednisone...
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Prednisone for nephrotic syndrome?
Wheatwacked replied to Sahil's topic in Related Issues & Disorders
Sahil, there is not much more frustrating then to watch our children suffer. It isn't their fault. "In many kinds of kidney disease, inflammation occurs when immune complexes deposit in kidney. Immune complex is a combination of antigen and antibody and formed when immune system is weak or immunity is poor." Prednisone treatment for nephrotic syndrome... -
I am sorry if I give that impression. I have never voluntarily eaten barley, hate it. Barley is a wheat like grass and rye is a wheat grass. I clump them all together as wheat. I will try to avoid that. I also believe that it not just the gluten causing diseases, there are other problematic proteins in the wheat grasses, especially in commercial wheat...