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Wheatwacked

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Wheatwacked

  1. Wheatwacked
    One of the most commonly reported side effects of benfotiamine is gastrointestinal discomfort. This can manifest as nausea, bloating, and stomach pain. In some individuals, these symptoms may be accompanied by diarrhea or constipation. Benfotiamine is a synthetic derivative of thiamine to improve the bioavailability of thiamine, which is fat-soluble...
  2. Wheatwacked
    If I don't get enough Thiamine I get a cramp in one or both feet after sleeping for an hour and a half. Get up, do this that or the other and can go back to sleep for another hour and a half. Now taking 250 mg 1 to 3 times a day and it doesn't happen. It took a while to figure out. Also since adding liquid iodine 500-1500 mcg a day, many things are...
  3. Wheatwacked
    Must not have seen this: Taking vitamin B6 in doses of 100 mg daily or less is generally considered to be safe. Vitamin B6 is possibly safe when taken in doses of 101-200 mg daily. In some people, vitamin B6 might cause nausea, stomach pain, loss of appetite, headache, and other side effects. I think this is what we've been saying. Avoid...
  4. Wheatwacked
    Flagyl, doxicyclin and ciproflaxine can cause anaphalaxis. Prednisone does not. In fact Corticosteroids are thought by some to prevent it and are commonly used in the emergency treatment of anaphylaxis.
  5. Wheatwacked
    If you eat a gluten free diet, and increase your essential vitamin intake, it will get better. Vitamin D, Choline (formerly known as B4), Iodine (if you don't have Dermatitis herpetiformis- it can exasperate dermatitis herpetiformis outbreaks).
  6. Wheatwacked
    Celiac Disease can mimic over two hundred diseases and symptoms. How long have you been gluten free? Seems to me they are over treating you with everything just because they don't accept your Celiac Diagnosis. Sounds counterproductive. What happens if you don't take it? Why did they put you on Invecta, did they find parasitic worms...
  7. Wheatwacked
    I am unsure, did the breathing issue start with eating gluten free, or was that the reason you were tested for Celiac? Shortness of breath can be a symptom of thiamine (vitamin B1) deficiency, particularly when accompanied by other symptoms. Vitamin D deficiency can cause breathing symptoms in children and adults. Since Celiac Disease...
  8. Wheatwacked
    My friend had cataract surgery that failed. The surgeon blames her for moving during the surgery. If Ashleysue can wait for the surgery until the surgeon has an opening in his schedule, she can wait to see her response to GFD. I was taking 30mg prednisone a day just to get out of bed. Post GFD I am painfree.
  9. Wheatwacked
    Please do delay the surgery on your back. All of my back pains went away on GFD and vitamins. About 25% of back surgery patients need repeat surgery. There are many nutrients, as @knitty kitty mentioned that can contribute to pain. Celiac Disease causes malabsorption, over time leading to malnutrition. I also have no energy after...
  10. Wheatwacked
    Overall, the available evidence suggests that vitamin D supplementation may have beneficial immunomodulatory effects in HT patients Impact of Vitamin D on Immunopathology of Hashimoto’s Thyroiditis: From Theory to Practice Vitamin D deficiency is very common in Celiac Disease. The Iodine & Hashimoto’s Question "I recommend keeping dietary and...
  11. Wheatwacked
    Yes. And also assume you have vitamin deficiencies. Gastric metaplasia: a frequently overlooked feature of duodenal biopsy specimens in untreated celiac disease
  12. Wheatwacked
    Welcome to the forum @RK37, My son was diagnosed in 1976 as soon as he was weaned. His doctor prescribed Nutramigen. They have a product for toddlers. Scary enough the Celiac, much less the complications. Celica Disease causes malabsorption of the twenty odd vitamin and minerals absorbed by the small intestine. So it causes malnutrition...
  13. Wheatwacked
    10,000 IU vitamin D to control autoimmune, improve mood, especially the winter doldrums (Seasonal Affective Disorder), bone and dental health. Vitamin D Is Not as Toxic as Was Once Thought: A Historical and an Up-to-Date Perspective 500 mg Thiamine - neurologic symptoms, carbohydrate metabolism, subclinical beri-beri. Choline – Adequate intake 5...
  14. Wheatwacked
    Your next step is to undo the malnutrition. The damage done to your small intestine villi causes malabsorption and so over the years nutrient difficiencies get worse and those symptoms add another level. Unfortunately, western medicine treats symptoms, not cause. With gluten gone as the cause, you have to replenish your vitamins and minerals...
  15. Wheatwacked
    Hello @olioil, Once you have removed the gluten from your diet you have started on recovery. Some people have a withdrawal period for a few weeks. "In particular, these short peptides showed a morphine-like activity and high affinity for the δ-opioid receptor ... Gluten exorphins (GEs) are a family of small peptides (four/five amino acids) derived ...
  16. Wheatwacked
    Regardless of the testing, I think you have adequately proven to yourself that you have gluten sensitivity. If the endoscopy is negative, that is at the least Non Celiac Wheat Sensitivity. I wonder how much of NCGS (10% of the population vs. 1% are diagnosed Celiac) is the result of chromosones added modern Green Revolution hybridizing? NCGS...
  17. Wheatwacked
    Celiac Disease causes malabsorption of some 20 vitamins. Many of the symptoms suffered are the result of low levels of these vitamins and minerals. Low Choline causes bile backup interfering with fat digestion. Quite possibly low Thiamine. Studies have shown that low levels of Lithium in drinking water have been...
  18. Wheatwacked
    Vitamin D deficiency. I was depressed from age 39 until I started taking 10,000 IU a day at 64 years old. I started being morbidly depressed at 39 because I was sure I would die on my 39 1/2 birthday. My maternal grandfather had a massive heart attack and passed at that age. Of course everyone said get over it, but that feeling never left, I just stopped...
  19. Wheatwacked
    Yes. B12 is needed to absorb iron, so though you are above average for the UK, raising it may help to raise your iron without resorting to iron pills which can aggrevate your stomach. Along with eating meat and eggs. Do you eat vegetarian a lot? 302 ng/L = 302 pg/ml = 223 pmol/L The medical field in Japan and Europe...
  20. Wheatwacked
    Welcome to the forum, @Baz While waiting for the endoscopy, be sure to continue eating gluten. It is annoying but the endoscopy is looking for a certain type and amount of damage. More is better. Must be the modern day option to "Take two aspirin and call me in the morning"! Yes you will feel better on GFD. But it sometimes can be a rough...
  21. Wheatwacked
    Hello @McNeill, Ann My gut feeling reading your post is that even after these 14 years you still have unresolved nutritional deficiency. If I might ask do you still have Celiac damage? What foods cause the problem? Other symptoms? The poor healing time might indicate iodine deficiency. It is never checked. We grew up eating a sandwich...
  22. Wheatwacked
    You should be concened about vitamin D, Choline, Iodine and B1 to start. Choline can be metabolized into methionine, which may then be converted into glutathione through S-adenosyl-l-methionine. Choline-related compounds may also improve glutathione redox balance in children with cystic fibrosis. CDP-choline has been shown to increase glutathione levels...
  23. Wheatwacked
    Dermatitis herpetiformis If your rash is dermatitis herpetiformis you might be able to get a dermatologist to biopsy it. It is taken from next to the rash, different technique than a normal rash biopsy. Any way, dermatitis herpetiformis is the skin form of Celiac, so it could be a shortcut to your Gluten Challenge. At the same time you can start...
  24. Wheatwacked
    Congratulations on finding such a wonderful doctor. For the meantime, consider Celiac Disease as the true disease and the other symptoms a result of the malabsorption syndrome assosicociated with Celiac Disease. They should improve. These have all been related to deficient nutrients. Add choline for the NAFLD. Thats eggs and beef or Phosphotidyl...
  25. Wheatwacked
    A blood test for vitamin D and PTH would answer that question. The best situation would be a consistant intake, preferably in the morning to simulate the daytime UVB to stabilize seritonin and melatonin production. For me, it is 10,000 IU a day. Since 2004 I have used zinc glyconate lozenges for colds. The lozenge coats the oral mucus membrane...
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