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Wheatwacked

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Wheatwacked

  1. Wheatwacked
    @KierstenL, trents is compltetely right. Welcome to the 1% Club (Celiac Disease) or at least the 10% Club (Non Celiac Gluten Sensitivity). An official diagnosis may have medical or legal advantages, but sounds like you need relief. Later you can do a gluten challenge for a diagnosis. There are several in particular that might help...
  2. Wheatwacked
    High IgA levels may indicate an underlying infection or inflammation which fits with your symptoms. Replenishing vitamin deficiency can take a long time. It is not one and done. Iodine appears to play a role in immune response. If you have an ongoing infection or inflammation, say from gluten, it will be diverted there as a priority. It works...
  3. Wheatwacked
    Hi minkgurl and welcome. I totally agree with trents. Gluten free diet and replenish your vitamin and mineral deficiencies and you'll be amazed at how well you feel; and why didn't some one tell you years ago, before your gallbladder was removed. Gallbladder surgery in not uncommon with Celiac Desease. Combined with your NAFLD it would indicate...
  4. Wheatwacked
    Thiamine deficiency can cause seizures but since thiamine is rarely tested for the literature says it is not a problem. Mostly it is left at "we don't know why" as you have already experienced. Neurological manifestations, diagnosis, and treatment of celiac disease: A comprehensive review
  5. Wheatwacked
    I couldn't help notice the three prescriptions are for mental health. Has anyone looked at your vitamin D blood level? I found that vitamin D at 10,000 IU, Lithium Orotate at 5 mg a day and Liquid Iodine at 1625 mcg has helped my physical and mental health. Just to point out these are nutrients we should be getting as part of a healthy diet, but do not...
  6. Wheatwacked
    There is a newish designation: Non Celiac Gluten Sensitivity. Around 10% of western diet get it compared to 1% Celiac. To diagnose first exclude Celiac Disease. Then look for improvement on GFD. You have to give it at least a month before giving up. After two weeks you may feel well enough so you are tempted to try some gluten. Been there, done that...
  7. Wheatwacked
    Many on this forum have gone the not celiac, misdiagnosed this that and the other thing until one day 10 years later... Oh, you have Celiac Disease. The breath test tests for lactlose intolerance measures H2 indicating lactose intolerance and Sibo Lactose Intolerance: What Your Breath Can Tell You. High fructose corn syrup, bad. Sugar good. Adult...
  8. Wheatwacked
    Welcome to the forum Vincent, At this point you should follow the advice. I am a little concerned that an MA working in a GI office in uncertain about Celiac Disease. But it makes sense, it gives you I am sure a welcome reprieve. Be sure to tell the story you told here to the doctor. Maybe that will suffice for a diagnosis. IGA deficient is...
  9. Wheatwacked
    What meds are you on? For me they were a source of pain. Amlodipine major dryness to eyes messed with my contactsl did not help BP Lisinopril caused inguinal hernia due to that persistant cough. even in combination with amlodipine did not effect BP. Doctor fired me. New doctor: Atenolol had me bent over like a 95 year old needing a cane or...
  10. Wheatwacked
    Welcome to the forum suzy q, What your doctors are missing is the malnutrion. At 73 I am aproaching 30. At 6'2" went from 185 pounds all belly fat, looked like a Mad Magazine margin cartoon, down to 150 and now stable at 165 lbs. Even wear the same sizes as when I graduated high school. The most important: Vitamin D at 80 ng/m....
  11. Wheatwacked
    That seems to be an official diagnosis. It really comes down to do you want to become unsick ? Tell them your doctor said it is Celiac so you are following his orders and eating gluten free. Then challenge them to give up gluten for one month, just to prove they are not addicted to gluten. if they are not addicted, it should be no problem...
  12. Wheatwacked
  13. Wheatwacked
    During the day I drink Red Bull for my energy carbs. 600+ calories a day. Red Bull because it has B3, B5, B6, B12 for transporting and converting the sugar and glucose to ATP. It has Taurine, an essential amino acid antioxidant to neutralize the ROS oxidents created in the Krebbs Cycle. Plus caffeine, magnesium, calcium. It does not have any medicinal...
  14. Wheatwacked
    The most common omeprazole side effect is headache. But it can also cause stomach-related side effects, such as nausea, vomiting, or diarrhea. Taking omeprazole at high dosages, or for longer than a year, raises the risk of more serious side effects. These can include bone breaks and pneumonia (a lung infection). GoodRX Why do the side effects...
  15. Wheatwacked
    Welcome to the forum. What is your concern? Your tests indicate no Celiac, they don't find anything in the endoscopy or colonoscopy so they say there is nothing wrong with you? Maybe they think it is all in your head? Welcome to the club. "Researchers have also linked IgA deficiency to autoimmune health problems. These are health problems...
  16. Wheatwacked
    That is good news about your relationship. "All studies evaluated report a significant increase in serum/plasma 25(OH)D concentration relative to baseline, which tended to peak between days 7 and 30 (Fig. 2). Mean serum/plasma 25(OH)D concentration surpassed IOM guidelines for vitamin D sufficiency (25[OH]D concentration >20 ng/mL) in all but 1 study...
  17. Wheatwacked
    I refuse colonoscopy, prostate biopsy. Have stopped 4 blood pressure meds and four glucose meds because they were debilitating. As she said to me yesterday, most people want to eliminate the possibility of the most dangerous symptoms first. I was diagnosed with prostate hypertrophy when I was 21. Lived with it until I was 63 when I started taking...
  18. Wheatwacked
    Hi Mizzpam, Short answer: Fix your Celiac and nutritional deficiencies and there is a good chance the messentary inflammation will heal on its own. Treatment:  Mild cases of mesenteric lymphadenitis and those caused by a virus usually go away on their own. Full recovery can take four weeks or more. As trents said Celiac Disease...
  19. Wheatwacked
    Celiac Disease causes malabsorption of vitamins and minerals. Most have low vitamin D. Ask your doctor to test her for vitamin D. A 2021 study found that 15.8% of 1,058 schoolchildren showed signs of iodine deficiency, with girls aged 10–12 being more likely to be deficient. RDA established by the Institute of Medicine (IOM) ...
  20. Wheatwacked
    This emphasizes the importance of constant vigilance. Reward them with stars on their official label, say one for every five years of performance. Failing a test would lose stars.
  21. Wheatwacked
    Here is a link to the results of the spreadsheet I made for myself, USDA Legacy SR28 database to find out what nutrients I was lacking in my diet. http://nutrientlog.doodlesnotes.net/ Here is the link to the new Food Data Central. It made it obvious, quantatatively, where my deficiencies where and choose what to eat. Even so, I find it difficult...
  22. Wheatwacked
    Since you don't have answers I would not rule out B1 deficiency yet. Several days of high dose 100 mg or more will answer the question quickly. Either way a B1 supplement will be beneficial. Can't hurt and inexpensive. The Japanese came up with Benfothiame a fat soluable thiamine. Rice is a staple crop for half the world's population, especially...
  23. Wheatwacked
    Getting your vitamin D up to normal level around 80 ng/ml (200 nmol/L helps to moderate the autoimmune response. Most Celiacs and other autoimmune diseases are low to difficient in vitamin D. It won't 'cure' Celiac but can help keep those pesky antibodies in check. At 80 ng/ml my response to gluten is a runny nose and burning eyes several days later. ...
  24. Wheatwacked
    Welcome to the forum, Soy is made from soy beans and gluten is found in wheat, rye and barley. Perhaps you are confused because Soy Sauce is fermented wheat and soy mixture. You can get fermented Soy only. It is called Tamari Sauce. The brand I use is Certified Gluten Free.
  25. Wheatwacked
    Out of the blue, are you on Lisinopril for blood pressure? Like a cut on your arm, it takes time to heal. The higher your vitamin and mineral intake, the faster you may recover. Celiac Disease is a disease of malabsorption You have low vitamin D is a virtual given. We all do. Charley Horse likely B vitamins, Thiamin, Riboflaven prime suspects...
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