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Fiddle-Faddle

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Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle

    How good to see you back!

  2. Fiddle-Faddle
    Roy, to put it more simply, tinnitus is not necessarily a direct symptom of celiac disease (thought it CAN be), but is often directly caused by intestinal damage that was caused by celiac. It is important to note that with celiac disease, you can have intestinal DAMAGE without having noticeable intestinal SYMPTOMS. There are other causes of tinnitus...
  3. Fiddle-Faddle
    Yes, there can be a correlation. Celiacs tend to have nutritional deficiencies due to malabsorption, and vitamin B12 deficiency in particular can cause tinnitus, sporadic hearing loss, headaches, dizziness, etc. Those symptoms together, by the way, tend to be labeled as "Meniere's Disease," but if you look up some Meniere's support sites, there are...
  4. Fiddle-Faddle
    I just use an 8-oz can of tomato sauce and about a quarter cup of cream, sour cream, or half-and-half. Depending on the recipe, I throw in some garlic powder or dill or parsley or whatever. If it needs thickening, I add some cornstarch or gluten-free flour somewhere else in the recipe--but it usually doesn't seem to need thickening, which is surprising,...
  5. Fiddle-Faddle

    ARCHIVED How Do I Prepare?

    Fiddle-Faddle replied to jenngolightly's topic in Doctors

    It depends on what you are looking for with the testing. If you are looking for official confirmation of celiac disease/gluten intolerance, then allergy testing is completely useless, because those are autoimmune disorders, NOT allergies. They won't show up at all on allergy tests. If you are looking for a possible wheat allergy, either in addition...
  6. Fiddle-Faddle
    Interesting timing. I just took my son to a dermatologist today for some horrendous skin rash which seems to include both psoriasis AND impetigo. But this dermatologist totally understands celiac (I know, I nearly fainted). According to him, pediatric dermatitis herpetiformis (considered to be "celiac of the skin") looks exactly like atopic eczema...
  7. Fiddle-Faddle
    If you are seeing a difference in his behavior already, then I think it would be perfectly reasonable to stick with a gluten-free diet, NOT bother with an official diagnosis, and never look back. There ARE logical reasons to seek a diagnosis; Ravenwoodglass mentioned that school accomodations are more likely to be followed by teachers if there is an official...
  8. Fiddle-Faddle
    In my opinion, if your child has no more ongoing issues on the gluten-free diet, then repeat biopsies are about as appropriate for your child as they would be for any healthy child. You wouldn't take a healthy child, knock him out, and perform a biopsy every year. That's both invasive and somewhat risky. Not as risky as open-heart surgery, but there...
  9. Fiddle-Faddle
    It is not necessary to have an endoscopy to diagnose a hiatal hernia. The most common method to diagnose this is a barium Xray--much less invasive, and it is considered to be just as accurate.
  10. Fiddle-Faddle
    Welcome, Caleonard! You've made some very good points--but did you mean to post them on an 8-month-old thread? Anyway, as long as you've resurrected the thread, I'll throw in my two cents. There is some evidence that nutritional deficiencies can cause differences in the fingernails, and if you google "nutritional deficiencies and skin," there are tons...
  11. Fiddle-Faddle
    According to the Lyme sites I've seen, the "target" (aka "Bull's-eye rash") is exclusive to Lyme Disease. According to my doctor, Lyme does not show up in tests for 6-12 MONTHS. I'm not an expert in Lyme Disease, either, and to my knowledge, I've never had it. But I know enough people who DO have Lyme to have learned quite a bit. I believe that both...
  12. Fiddle-Faddle
    I'm wondering if Lyme Disease might be a possibility? I know that it can CAUSE gluten intolerance, and other food intolerances. It can also act as a trigger for classic celiac disease. And fewer than half of those who have been diagnosed with Lyme Disease had the famous "bull's-eye" rash, and even fewer recall ever having been bitten by a tick! So...
  13. Fiddle-Faddle
    I actually did something like this just this week, kind of by accident. I had mixed up batter for a loaf of bread, but was just too tired to wait for my bread machine to rise and bake it (it was nearly midnight, and I had to be up at 6:30, and I needed bread for the kids' sandwiches for lunch the next day). So I used enough dough to make 2 quick rolls...
  14. Fiddle-Faddle
    Regarding your friends and family, there are two aspects where you do have some control. While you don't have control over their lack of sensitivity, you DO have control over their ignorance. As said by other posters, you can educate them. The other aspect is COMMUNICATION. Yes, they know you have a problem with gluten. But you can communicate...
  15. Fiddle-Faddle
    You might look into buying a Japanese rice cooker for yourself and another one for your MIL. If you don't already have one, these are wonderful gadgets--you dump rice and water in, plug it in, press a button, and in 25 minutes you have PERFECT rice. We make basmati rice, and add a cinnamon stick, cardomom pod, and a couple of cloves, and it tastes amazing...
  16. Fiddle-Faddle
    I totally understand how you feel. I also agree with the other posters.You have every right to be frustrated at the ignorance and insensitivity of friends and family. But there's a better role for you to play in this scenario than that of the helpless injured heroine. You can be much more proactive here! But that's difficult when you can't see all the possibilities...
  17. Fiddle-Faddle
    Hammod, if you are in the US, then testing not only gives you NO advantages, it could also cost you dearly. If you are given an ironclad diagnosis of celiac, then insurance companies can use it as an excuse NOT to cover you or to raise your rates. Since you already know that your symptoms are consistent with celiac AND that they improve on a mostly gluten...
  18. Fiddle-Faddle
    I think it's quite possible that your intestines didn't heal completely from going gluten-free, and that they might now, with the removal of casein, do so. As far as yogurt goes, there are yogurts made from other "milks." Soy yogurt tastes okay, but I think coconut milk yogurt is really good. You could also get a yogurt maker (google yogurt machine?...
  19. Fiddle-Faddle
    Life is much easier with A-M-A-Z-O-N dot com! I buy gluten-free pasta from them in bulk--both Tinkyada and Mrs. Leepers brands are very good, and not much more expensive than "regular" pasta. I buy gluten-free flour blend there, too, also in bulk. I get betterbatter brand, which is pretty much cup-for-cup substitutable for regular flour. www.betterbatter...
  20. Fiddle-Faddle
    So, there was an article in our newspaper about Red Lobster's new menu. I called them up and asked if they now had a gluten-free menu. The server who answered said, no, they didn't, but that they might be able to come up with something. I asked to speak to the manager, explaining that I didn't want to drag my large family there only to find out that...
  21. Fiddle-Faddle
    I had a great experience at our local Eat'N'Park. I had heard a rumor that they had gluten-free rolls, so I called to find out. I was told that they did, so went there for dinner. The waitress also assured us that they had them. There was a slight bump in the road, when the manager came over to tell us that they were OUT of them. My kids were very...
  22. Fiddle-Faddle
    CGally, I did go through the constant hunger when I was first gluten-free. I also removed casein from my diet because, back then, everyone on the board recommended it, citing studies that showed that gluten-damaged intestines did not heal when exposed to casein. I reintroduced casein a few months later, with no problems. I ate LOTS of steamed veggies...
  23. Fiddle-Faddle
    Most people with celiac/gluten intolerance need to eliminate dairy as well as gluten until their intestines heal. Continuing to eat dairy products can prevent the gluten-damaged villi from healing. Once you've healed, you can try adding dairy back into your diet and see if you react. Some people who are dairy-sensitive and even dairy-allergic find that...
  24. Fiddle-Faddle
    You do sound like a classic celiac, though certainly many things can cause similar symptoms. I agree with Ravenwoodglass--I think your best bet is to do a trial of The Diet. It's not anywhere NEAR as bad as it sounds--really! I know I cried for two days when I found out--but then I found that there are gluten-free recipes for EVERYTHING I thought I...
  25. Fiddle-Faddle
    There are many possible causes of symptoms like your son's. My son had very similar symptoms--and they did turn out to be caused by gluten. We are lucky that a gluten-free diet is easily do-able, is non-invasive, has no side effects, requires no surgery, no prescriptions, and usually has fast, obvious results. Most of us here had to struggle with...
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