SheenaM

28 minutes ago, Ennis_TX said:

Phi Chocolates Makes some good truffles,  I buy myself them and some Lakanto Bars for the holidays.

 

Woah that was comprehensive, thank you!

Alter eco is supposed to be gluten free as well, but there is another thread saying they are not. I'm never sure if people are actually reacting to gluten or if they cross react and then assume it's gluten. I had an alter eco truffle the other day and was fine, but again it's hard to track down what's factual information any more. 

I know that most things that are "holiday" candy are not safe despite what is normal for most brand names. Does anyone know of a glute free version of a chocolate orange, cherry cordial (aka chocolate covered cherry) or those multi flavored boxes of chocolates? I can probably make the cherries, but I think everything else is above me. 

On 6/13/2018 at 8:13 AM, cyclinglady said:

@SheenaM  What?  How were you diagnosed with anemia?  It is a standard blood test given to most when they see their doctors.  Maybe you did not get copies of the lab results.  You should ask for them.  It is your right!  

So I went back and looked and they did do a blood panel and my RBC count is within normal limits. Also, I didn't test positive for both celiac antibodies just the Tissue Transglutaminase Ab, IgA. I lost health insurance due to a job change but I'm getting it back again at the beginning of July so I'll be able to do my follow up then. I guess I need to tell them that I also have the heat sensetivity and ask about thyroid stuff? Also should I ask my gastro about this or my family doc? 

On 6/11/2018 at 3:00 PM, Bree J said:

I can sort of relate, when I'm not properly nourished (I'm very sensitive to that-- have to have the correct amount of protein and veggies/fruit with any sugar or dairy just to feel good), heat bothers me a LOT. Makes my anxiety bad too (i hate being hot). I've been gluten free for 4 years (when my intolerance showed up) and ever since then go crazy when I'm too hot. Weird that someone else feels this way.

I've never ever thought about checking if I'm anemic. My sores/cuts do take forever to heal..

Yes exactly this. And if I'm out in the heat I get way more exhausted than I should. Like my body just can't process it correctly.

On 6/10/2018 at 8:06 PM, cyclinglady said:

When was your last lab test to check your anemia (CBC is a good starting point).   Those should  be re-checked after six months, along with follow-up celiac testing that I mentioned previously.  Lab results can let you know where you stand. 

 

They never tested anything other than the antibodies that cause the intestinal damage, and that was in January. 

They didn't test blood levels of anything besides the antibodies when they did blood tests. I only know I'm anemic because of the fatigue and the purple fingernail beds. I'm definitely not hyperthyroid as I have more trouble losing weight than gaining.

I have an abominable sensetivity to heat that makes it nearly impossible to do things in the summer. I'm writing this with one eye closed right now because of a migraine I've had since Monday when I was at a local theme park. I did everything I could to keep cool and hydrated, but apparently failed, resulting in this migraine that I've had since then. My question for you folks is, does anyone else get this sort of symptom, and were you able to do anything for it? I'm still very anemic after 6 months on the gluten free diet and I'm wondering if that is related? 

13 hours ago, 2/18:CeliacDaughter said:

Thank you for your question. My daughter age 8 is two months in and I can’t find any information about the pain she is feeling. You sound the same as her. I feel awful because I don’t know if her pain is real or not. She tells her teacher 3-4 times a day that she’s in pain but we are lost as to how we can help. She is completely gluten-free and is eating a diet with plenty of fruits and veggies. All these suggestions help too. Thanks 

Oh my gosh I'm so sorry you're going through that! I remember being in third grade and nobody believed how bad my headaches were (gluten induced migraines). I've found that physical therapy exercises are actually helping more now that I'm on the right diet as well so maybe something along those lines would be helpful too. 

1 minute ago, cyclinglady said:

Two months in is such a short amount of time.  I am glad that you are feeling better and seeing progress.  It takes time to heal.  Expect to feel off (good days and bad) for up to a year or longer based on member comments I have seen over the years.   Make sure your diet is rich in proteins, fruit and veggies, etc.  

Unlike Ennis, I take no supplements, but did take iron for a few months (I was very anemic).    I just make sure my diet is varied and avoid processed junk food.  My anemia resolved within months.  

We are all different with other illnesses or collateral damage.  So, you just need to figure out what works for you.  I would say you just need more time to heal.  

 

This may be what I needed to hear... I work in physical therapy and I'm always telling my patients that if their back or neck pain is due to 30 years of bad posture it's not going to take 30 minutes to fix. Same goes with nutrition I'd imagine >.< 

That's what I've been hearing is that nutrient panels are almost a waste of money. I did get some gluten exposure at one point and it was 2 weeks to feel decent again. I also have what I would consider to be generally awful/sensitive skin if you know of a good supplement, I've heard vitamin e might help, but would like to hear from one of you guys.

So I've been confirmed Celiac since my last post, and have been gluten free for about two months. My "gut" issues are gone, no bowel issues, no nausea, etc. However, I have a laundry list of tertiary issues that are probably partially due to malnutrition: muscle cramps, persistent eye twitch, lightheadedness, back pain, neck pain, (ladies) weird cervical/uterine swelling sensation, and the general fatigue is gone but I still fatigue quickly during activity. It really makes me miserable especially since I'm trying to hold down a full time job but I feel like I'm burning PTO faster than I can earn it. So the two main questions I have are 1-how long did it take all symptoms to go away (diagnosed at age 30) and 2-is it worth it to spend more time/money on trying to get another blood test for a nutrient panel?

Hey Thanks! I did more research and found the iodine thing. I had actually switched to more fruit as a healthy alternative to gluten based snacks and I am one of those people that uses salt on grapefruit >.<  I also just found out that at least one of my meds has wheat in it so I haven't actually been as good as I thought on the diet. Theres a lot of learning to do when you first start. 

So I was just diagnosed as "probably" celiac a couple weeks ago at age 30. The probably is because the presentation of my signs and symptoms is a little strange. I have been on a gluten free diet for about 2-3 weeks. I have always had what we thought was chronic eczema which has been getting steadily worse for the last 5 years or so, and it no longer seems to be responding to steroid creams. Suddenly now after starting the gluten-free diet, my feet are itching enough to drive me crazy and have the lowest profile most barely noticible bumps ever. My question is, has anyone had "mild" DH that could be misdiagnosed as eczema? If so, how long did it take to go away after you started the diet? Also, for anyone else diagnosed as an adult, how long did it take before you started seeing real results? I feel like my body is almost going through a weird withdrawal phase.