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Flash1970

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Flash1970 last won the day on January 5 2023

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  1. icon Scott Adams reacted to a post in a topic: Withdrawal: waves and windows
  2. Flash1970 started following DH and ongoing high antibodies despite strict gluten-free diet.. feeling hopeless , I think I need to stop eating in restaurants and Withdrawal: waves and windows
  3. Flash1970
    I almost always take my own food when I go to someone's home. No one seems to mind. If I go to a restaurant, I usually eat salad and maybe a steak if I know the place. I always bring my own dressing. My friends and family do not mind. They know how sick I get. If there's not anything I can eat, I just wait until I get home. I know I'm not going to...
  4. Flash1970
    When I first stopped gluten, I went thru severe withdrawals. I felt way worse than when I ate gluten. Luckily, I had a good doctor that kept reassuring me that it would get better. It took about 4 months, but one day I woke up and felt no joint pain and I felt good. Unfortunately, I still had the brain fog. When I gave up all grains, I really turned...
  5. icon Scott Adams reacted to a post in a topic: DH and ongoing high antibodies despite strict gluten-free diet.. feeling hopeless
  6. Flash1970
    Hi, you don't say whether your husband is gluten free and follows a strict diet. If he doesn't, you may be getting contaminated from him. Even a small amount can hurt you. Any ingestion will affect you. If he drinks beer and you kiss him, you could be ingesting gluten that way. If there's crumbs on the counter, and your food touches them you're getting...
  7. icon Dtoc reacted to a comment: Psychiatric and Neurological Manifestations of Celiac Disease in Adults
  8. Flash1970
    A lot of problems can be traced to grains. Once I went totally grain free, brain fog disappeared, confusion resolved etc. Not all related to gluten. No rice, corn, rice syrup , corn syrup. Basically a paleo lifestyle. Pretty much all neurological symptoms resolved. Not instantly, of course, but within a month to month and a half. I really thought...
  9. Flash1970 started following Psychiatric and Neurological Manifestations of Celiac Disease in Adults
  10. Flash1970
    Thank you for your great comment
  11. icon LaLeoLoca reacted to a post in a topic: How long after diagnosis until you noticed improvement? What do you wish you'd known then?
  12. icon knitty kitty reacted to a post in a topic: How long after diagnosis until you noticed improvement? What do you wish you'd known then?
  13. icon Scott Adams reacted to a post in a topic: How long after diagnosis until you noticed improvement? What do you wish you'd known then?
  14. Flash1970 started following Sharing a kitchen… , How long after diagnosis until you noticed improvement? What do you wish you'd known then? and gluten-free 6 Years - Still Horrible Symptoms - Lost 20% Body Weight
  15. Flash1970
    Hi, so sorry to hear of your problems. Is it possible to get a blood test where you are to test for celiac? Not invasive. Anyway, I literally felt awful when I stopped gluten. Basically your body is going through withdrawals similar to alcohol. It took a month before I felt better. I was eating gluten free, but packaged foods. About 4 months...
  16. icon LCAnacortes reacted to a post in a topic: Sharing a kitchen…
  17. icon Scott Adams reacted to a post in a topic: Sharing a kitchen…
  18. icon Scott Adams reacted to a comment: How Strict is Strict?
  19. Flash1970
    The first thing I would do is check all medications for gluten contamination. I am a pharmacist, so I don't say this lightly. Costco vitamins may not be free of gluten. The main thing that might help is to stop all grains. Read Wheat Belly Diet. This is a book written by a cardiologist. Very interesting. Before quitting grains I was on zantac, e.t...
  20. Flash1970
    I also have separate areas for food preparation. I have no support from my husband. Any jars I use are labeled in black letters to not use. I usually wash anything he has washed again. He usually has some frozen dinner. I tried cooking gluten free for him, but he wouldn't eat it. I clean a lot. We also have separate cupboards and shelves in the fridge...
  21. Flash1970 started following Ironing Some Wrinkles Out of Gluten Sensitivity , How Strict is Strict? and A New Study Looks at the Long-Term Effects of a Gluten-Free Diet on Women with Celiac Disease
  22. Flash1970
    This is very hard. If a label even says made on the same equipment as wheat, I put it back on the shelf. If it says may contain gluten don't even consider it. Follow the shopping model of shop the outer aisles of the grocery store. I am totally gluten/ grain free. It really improved my health. I wasn't eating gluten, but the grains were just as bad...
  23. Flash1970
    I think this is a very strange study. What was their diet? Are they allowed to choose their own food? Nothing is mentioned. A gluten free diet can include empty foods like all processed food. Rice, corn, e.t.c. I don't think you can conclude anything from this poor study. People should not make assumptions based on this study. Everyone is different...
  24. icon Scott Adams reacted to a comment: Ironing Some Wrinkles Out of Gluten Sensitivity
  25. Flash1970
    When I was diagnosed with celiac disease, iron deficiency anemia was my main symptom. I had thyroid problems and my endocrinologist made me go to a gastroenterologist. When I told him my symptoms, he said he was 99% sure I had celiac disease. The blood work came back positive for celiac. So if you have this type of anemia, try to get it diagnosed
  26. Flash1970
    Dear Jamie, If you have been diagnosed with celiac disease, you need to start eating gluten free. I was diagnosed 12 years ago. I remember that when I stopped eating gluten, I felt horrible. I was actually going through withdrawals from gluten. After a month or so, it did start to get better. At 4 months, I finally felt good. I still had brain...
  27. Flash1970
    I'm so happy that you were diagnosed correctly finally. You have a wonderful attitude. I was diagnosed 11 years ago. My main symptom was anemia and a thyroid that was uncontrolled. Finally my endocrinologist sent me to a gastroenterologist. Just from my description, he knew I had celiac. Had all the tests. Positive. Long story short, but after 4...
  28. Flash1970
    Regarding this for new celiac patients. Make sure you have your own jar of mayonnaise. If anyone else dips into it to make a sandwich or whatever, it's then contaminated. Don't assume that things made with mayo are gluten free. Especially when you go out.
  29. Flash1970
    Hi, It takes a long time for symptoms to disappear. Withdrawal symptoms were really bad. I felt way worse at first when I quit eating gluten. Stomachaches, diarrhea, e.t.c. those went away after about 3-4 weeks. At about 4 months, if started to feel a bit better. Not as much inflammation. Still was having brain fog, tiredness. Finally for some...
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