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Alaskaguy

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Alaskaguy

  1. Alaskaguy
    Hello All, Is anyone else having problems using the "Search" feature at the top left of the page? Each time I try to use it, it just reloads the current page, without ever letting me actually enter any words or even a single letter into the search line. It seems like a major website glitch to me. Thanks!
  2. Alaskaguy
    Good points, Ennis! And I might point out that this matter of gross amounts of loose flour lying and blowing around in Costco stores does not seem to happen much, if at all, with the bags of flour in grocery stores --- at least I have never noticed it like I have at Costco.
  3. Alaskaguy
    Awol, You know, I have been noticing in both of my local Costcos over the past year+ that in the aisle and area where they keep the big (25 lb) bags of flour, there is ALWAYS a significant amount of loose flour on the floor, and over the bags, and pretty much on everything else in the area as a fine layer of dust. What the hell is wrong with Costco...
  4. Alaskaguy
    Thanks for that information on your celiac disease symptoms, AppEng. I take particular note of your observation that it takes 2 or 3 days before you see skin rash or skin symptoms from a glutening, and 5 days to peak rash. I've never (to this point) been able to identify any given DH outbreak of my own with any particular food or meal, so that is good to...
  5. Alaskaguy
    I've heard of cold-induced urticaria, but thank God I have never experience THAT particular skin misery! But you should have seen my near-constant summertime poison ivy rashes when I lived in Michgan .... Yeah, it was odd, the aquagenic urticaria thing started around the time I turned 17, and just slowly went away while I was 22 to 23 years old. I...
  6. Alaskaguy
    That excellent thought only came to me AFTER I had arrived home! But had it occurred to me while en route, oh yes, screw public decency, I WOULD have pulled over and stripped naked, absolutely, no question!
  7. Alaskaguy
    Thanks for your response, ApEng. Can you remind me again, how long have you been on the gluten-free diet? I'm just curious to know how long it's been, since you are apparently still having adverse reactions to high iodine intake. Do you feel that those iodine-related skin reactions are 'tapering off' over time for you? Unlike you (and most others...
  8. Alaskaguy
    Thank you Amber! I will do my best to keep the board informed of my progress, not because I am that important or special in any way, but simply as potentially useful information for the many others who read those posts even if they do not make their own, or for those who might read these threads in the future.
  9. Alaskaguy
    Ravenwood, that is a very good point you bring up, and it is for precisely that reason why I asked my original questions. What you describe is basically exactly what I have been experiencing over the past few months --- repeated small and usually individual pustules/bumps, rather than the wholesale rafts of them that I routinely had before going gluten-free...
  10. Alaskaguy
    Oh yes, it could, although to be honest I never got myself so wet with sweat that it would have been a serious situation. However, I can remember one time when I got caught in a cloudburst while going to my car in a large parking lot, though, and got soaked to the skin, and of course had to wear those soaking-wet clothes while I drove the 45 minutes...
  11. Alaskaguy
    Thanks for your response, Squirmingitch, but I have to almost laugh, as at this point I am not really stressing over these questions at all --- just curious. I have always been an insatiable question-asker, so please don't take my frequent questions as a sign of my obsessing over celiac disease or DH. Yeah, admittedly I was rather stressed out for a couple...
  12. Alaskaguy
    You can say that again! Part of my disdain for doctors, and the medical (I refuse to say "health care") industry more generally, is due to having suffered (and had repeatedly been misdiagnosed, if not treated by doctors with complete disbelief and contempt) in my later teens and early 20s from a rare condition called aquagenic urticaria, in which my...
  13. Alaskaguy
    Orangesandmelons, I have had those also! Always on my palms, or on the edges of my palms, or occasionally on the inside of a finger. Not many times, and not many at one time (often just a single blister), but while they are itchy, they are distinctly different from DH --- for one thing, mine never scab-up, just slowly go away without seeming to break. ...
  14. Alaskaguy
    Hello All, I have a question (don't I always?) for those with dermatitis herpetiformis who have longtime experience with the gluten-free diet. How can you tell --- or CAN you tell at all --- between having a stray reaction to gluten vs. having a reaction due to having consumed a high (or a relatively high) amount of iodine, which we know does not...
  15. Alaskaguy
    Hello All, I wanted to share with you some information that I have learned about my nutrition while on the Fasano Gluten Contamination Elimination Diet (https://bmcgastroenterol.biomedcentral.com/articles/10.1186/1471-230X-13-40) for alleviation of my dermatitis herpetiformis. Because I have started on this diet not for any gut-related problems...
  16. Alaskaguy
    Interesting about your husband's experience in the hospital, CyclingLady. The one thing that I REALLY do not understand, from reading so many posts of many other people both here and elsewhere on the internet, is this apparent almost criminal indifference, kneejerk denial and/or outright hostility towards the very POSSIBILITY of a patient having Celiac Disease...
  17. Alaskaguy
    Thanks Posterboy, that was interesting information. I believe that I had read something elsewhere about tetracycline, at least, being used instead of, or along with, Dapsone for severe or refractory cases of DH. Unfortunately, even if I had medical insurance (which I do not), and had a regular doctor who was even willing to recognize and accept my condition...
  18. Alaskaguy
    I thought it was the least I could do, after all the help and information that others here, such as yourself Squirmingitch, have provided me here. (By the way, I am on day 7 of the Fasano Diet, and just today I am really noticing a significant lessening in the itching and little DH blisters/bumps, and my skin just feeling "calmer" in general. But I've...
  19. Alaskaguy
    Hello All, Upon going gluten-free just over a year ago, I discovered a brand of gluten-free brown rice past named Cadia, which I thought was quite good, and had been using it semi-regularly since But with ongoing flares of dermatitis herpetiformis, I thought I would further investigate some of the foods that I had been repeatedly using. After...
  20. Alaskaguy
    TDZ, that is interesting that you mention weed-eating as coinciding with the start of your husband's rash, as about 12 years ago I had a possibly similar experience. It was in the spring (meaning late May here in SC Alaska), and I was cutting the lawn. Rather than bagging up all the lawn clippings, I would just take the filled bag off the mower, walk into...
  21. Alaskaguy
    Well, TDZ, I certainly hope that your husband is able to get some Dapsone to quickly ameliorate his DH (and that it does not have too many adverse effects on him, either). It sounds like your husband's DH is worse than mine ever was, so I can only imagine the ongoing agony that he's been dealing with. To call DH "just an itch" would be like calling...
  22. Alaskaguy
    TDZ, I am not a doctor nor any sort of expert here, but my experiences have largely mirrored those of your husband, except that I am 12 months ahead of him on the gluten-free diet (and now recently on the Fasano Gluten Contamination Elimination Diet --- you can look it up here). But one thing that I have repeatedly read is that neither the blood test nor...
  23. Alaskaguy
    TDZ, I am so sorry to hear about what your husband is going through. I have also experienced unusual chills more or less at the same time as DH outbreaks. Not severe chills with the violent shivering, as one can get from a repeat bout of malaria, but just not being able to get warm, even when the house is at its same normal temperature --- sometimes...
  24. Alaskaguy
    For making oven-roasted pototoes, I cannot recommend highly enough using chicken fat, duck fat or goose fat, for those who can find or have access to these fats. Not only are they significantly unsaturated, being almost liquid at room temperature (unlike say lard), they are surprisingly light in texture and "feel", and overall quite healthy. I carefully...
  25. Alaskaguy
    Oh yes, that does sound good! I've always been fine with potatoes, but just haven't eaten them all that frequently, and usually in a recipe that specifically needed or called for them. But for the next few months, at least, I think I'll be using them much more. Not that I want to try to subsist mostly on carbs here, but I am also going to be using...
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