Alaskaguy
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Alaskaguy
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Fasano Elimination Diet and Juices/Beverages
Alaskaguy replied to Alaskaguy's topic in Coping with Celiac Disease
Dziekuje bardzo for that information,, CyclingLady! And you are correct, at least in my case --- I have been EXTREMELY reluctant to eat out in restaurants since going gluten free last year, and have only done so a small handful of times, under very strict conditions and only after talking to both the serving staff and the chefs/cooks at some length.... -
Fasano Elimination Diet and Juices/Beverages
Alaskaguy replied to Alaskaguy's topic in Coping with Celiac Disease
Kareng, I am a bit concerned by your statement here. I no longer have "out of control" DH, but smaller, more scattered, and more readily resolving (for the most part) flareups. And it may be that I am just having what would be "normal" for a person in my situation, being 'only' 13 months into the gluten-free diet. I will readily admit, and perhaps should... -
Potential Pitfalls even on Fasano Diet?
Alaskaguy replied to Alaskaguy's topic in Dermatitis Herpetiformis
Posterboy, thank you for passing along those links to that information about corn and celiac disease. It makes total sense to me that corn could, in at least some rarer cases, aggravate the condition in the same way as oats, as corn (maize) is a grain, after all. That is why I still am not sure about the teff that I had used a number of times, either -... -
Potential Pitfalls even on Fasano Diet?
Alaskaguy replied to Alaskaguy's topic in Dermatitis Herpetiformis
Ah, thank you so much for clarifying that, Squirmingitch! I had actually tried searching threads in this forum to figure out just what nightshade family veggies were doing to people with celiac disease, but the answer was not clear to me. I'll rest a bit easier now when I eat my breakfast potatoes tomorrow morning. You know, I kind of like potatoes... -
Moleface, I have profound respect and sympathy for you in what you what through with the medical industry (yes, it is an industry). I had two different and unrelated health problems back in the 1970s and 1980s, for which I visited a number of different doctors and hospitals. Ironically, the one that was gastrointestinal in nature, which I now strongly...
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Fasano Elimination Diet and Juices/Beverages
Alaskaguy replied to Alaskaguy's topic in Coping with Celiac Disease
CyclingLady, you make a good point about all the sugars in fruit juices. I was not intending to drink a steady stream of them, just maybe a small glass of orange or grape juice once a day, for example. But I agree with you that, particularly nowadays, far too many people drink FAR too many sugary beverages! The way I see both kids and adults nowadays... -
Potential Pitfalls even on Fasano Diet?
Alaskaguy replied to Alaskaguy's topic in Dermatitis Herpetiformis
Well, I've been dairy-free for six months now, and soy is not really a part of my diet, aside from occasionally using tamari (gluten-free) soy sauce on my rice. But on the Fasano Diet, I was eliminating even the tamari as a matter of course. Corn may be problem. I don't eat or use it much either, but I did have recent problem with the DH that MAY have... -
Fasano Elimination Diet and Juices/Beverages
Alaskaguy replied to Alaskaguy's topic in Coping with Celiac Disease
Kareng, I think you are fundamentally incorrect in stating that "the point of the (Fasano) diet is not to give someone lots of choices". The point of the diet is to allow healing by eliminating all potential sources of gluten, not to unnecessarily limit one's food options for no good reason! The fact that the diet IS rather limiting in food options is a... -
Hello All, (I"m sorry if this is posted in an inappropriate location --- I was not sure just exactly where this subject would be most appropriately placed.) I have just started the Fasano Gluten Contamination Elimination Diet a few days ago, and I think I have a pretty good understanding of it, but I am still unclear about one aspect of it, and...
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CyclingLady, czy ty jest Polskie? Wow, that is too funny! Do you make golabki also? I never developed the knack for making good golabki somehow, but my mom makes them awesome. Too bad we don't have any good substitute for pierogi --- I don't think anyone is ever going to make a gluten-free dough that is that thin and stretchy that still holds together...
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While in retrospect it is quite obvious that I had GI symptoms of celiac disease for most of my life (I am 56 years old now), it was only after getting a bread machine in 2012 that I started to get the dermatitis herpetiformis. Up until then, I was eating whole-wheat pasta, and wheat-containing breakfast cereals, but only rarely ever ate bread (I was picky...
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Dear PosterBoy, thank you for that information, and for the link provided. I will definitely look into it! The idea of cross-reactivity seems to make intuitive sense to me, given the many other foods aside from gluten-containing grains that many celiac patients can be, and sometimes are, intolerant of as well --- particularly inasmuch as their intolerance...
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Link between Iodine Intake and DH
Alaskaguy replied to Alaskaguy's topic in Dermatitis Herpetiformis
SI, oh yes, I have the oats (both the grain and the rolled oats) in mylar bags with oxygen absorbers inside, stored in a cool room, so they should be good for literally decades --- probably longer than I will be good for! I'm definitely not worried about them getting stale anytime soon. And yeah, I have so much of them precisely because it DOES normally... -
I must admit that this topic of gluten cross-reactivity has me very confused. I read articles online by apparently legitimate scientists who appear to demonstrate it as a fact (at least in terms of milk, yeast, and a few other foods). Then there are others who jump in and heatedly deny it categorically, and who call it merely "myth". So which is it already...
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Link between Iodine Intake and DH
Alaskaguy replied to Alaskaguy's topic in Dermatitis Herpetiformis
Well, SI, since you brought up the subject of strawberries and their iodine content, I looked up data from two or three other sources, and they all closely agree with the iodine content of strawberries as given above. That was kind of a surprise to me. But then again, I was SHOCKED by the high levels of iodine in asparagus! I will certainly avoid that... -
Link between Iodine Intake and DH
Alaskaguy replied to Alaskaguy's topic in Dermatitis Herpetiformis
SI, yeah, I've been pretty reliant on carbs of all kinds for much of my life, maybe more than was necessary. But for at least the last 30 years or so, it's been ALL whole-grain carbs, and I always felt pretty good about that --- whole wheat pasta, whole wheat bread (when I ate it, not often), quinoa, oatmeal, oat flour, whole grain corn flour (milled myself... -
Potential Pitfalls even on Fasano Diet?
Alaskaguy replied to Alaskaguy's topic in Dermatitis Herpetiformis
SI, to be honest, I was somewhat being a devil's advocate in my first post of this thread when mentioning those other foods. But I am intending to do just as you say, and not try to worry about oddball potential sensitivities that I MIGHT have in addition to gluten. I think I will stay away from eating any more asparagus, and spinach also, though. -
Link between Iodine Intake and DH
Alaskaguy replied to Alaskaguy's topic in Dermatitis Herpetiformis
SI, that is a very good point you make regarding how in the past, most people were ONLY eating foods from their immediate vicinity, so yeah, it stands to reason that deficiency diseases of all sorts would have been more common back then. Hmmmm, it makes me wonder how things are going to go (and not just in regards to food) after this tottering economy likely... -
Link between Iodine Intake and DH
Alaskaguy replied to Alaskaguy's topic in Dermatitis Herpetiformis
Squirmingitch, it is quite interesting that your experience with asparagus and spinach seem to match the information on iodine content of those vegetables in that British study. One thing that I did want to point out, though, and I think this study mentions it as well, and that is that the iodine content of vegetables, and other foods in general, can... -
Link between Iodine Intake and DH
Alaskaguy replied to Alaskaguy's topic in Dermatitis Herpetiformis
Looking into the iodine content of various foods, I found the following British study that was quite interesting (see page 12, Table 3.3, in particular): http://nora.nerc.ac.uk/id/eprint/8354/1/CR03084N.pdf I was quite surprised to find that both asparagus and spinach are very high in iodine, on a weight-per-weight basis (ug/kg, as given here).... -
Seeming futility of Fasano Diet with DH
Alaskaguy replied to Alaskaguy's topic in Dermatitis Herpetiformis
AppEng, I was only willing to even consider trying teff because I could, and did, buy it directly from the grower/distributor, Maskal Teff, In Idaho. And they do test it for gluten, I believe down to the 5ppm level. Plus, given that whole teff grain is so incredibly tiny (it's almost like sand), there is even less risk of cc from gluten grains like wheat... -
Hello All, I'm just curious about the possible link between iodine intake and subsequent aggravation of dermatitis herpetiformis. Is this a generally medically and/or scientifically recognized link, or is it one that is just more anecdotal in nature? Given that I have not had any formal contact with doctors regarding my DH (so yes, self-diagnosed...
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Hello All, As you may have read in my other recent threads, as of a couple of days ago I have decided to try the Fasano Gluten Contamination Elimination Diet, for at least three or four months, to both try to resolve my recurring dermatitis herpetiformis (DH), and to help me determine which (if any) conventionally-considered gluten-free foods might have...
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Seeming futility of Fasano Diet with DH
Alaskaguy replied to Alaskaguy's topic in Dermatitis Herpetiformis
Yes, AppEng, I am going to do exactly that going forward --- as of yesterday. The full Fasano diet, with no grains (aside from rice), no fish, no dairy, no processed foods of any sort. I sat down this afternoon and managed to come up ten different main dishes that I have made in the past that fit into this Fasano Diet, and I hope to think of more in the...