Moggy

Squirming, You were only on the 'empathy' thread to prove a point about this one. It's not too much to expect gluten free restaurants to actually be so, or to not be treated like a social pariah. I chose to not eat out, at commercial or other peoples houses because they cannot get it right and I get sick. Perhaps that whining comment was...

So the docs are saying once you complete the course of chemo you will no longer have celiac disease? You are cured and can eat gluten again?

I know it wasnt you, but accusing someone of whining is very rude and totally lacking in compassion and empathy. I was always taught that if you cant say something nice, dont say anything at all. I dont presume im suffering more than others, but fail to see how someone can be so unkind if they have personal experience of the disease. What...

Hi Ennis, I was glad to read your flour mixes were uncontaminated. I gave up coffee as it got me too, I cannot give up tea. The stash ones are certified, ive never seen republic of tea for sale. Funny breakfasts are normality now. Season brand gluten-free canned sardines, a banana, baked sweet potato. I miss oatmeal. I do great on eggs, steamed...

I made a big pot of gluten-free vegetarian chilli. All gluten-free ingredients, not too hot and my tummy just couldn't handle it. Im going to force myself to go on the fasano diet. Tea and chocolate (the endangered species bars and stash tea), as my only cheats. Go low iodine. I have to fix this! It upsets my family to see me go without nice food...

Docgirl, im not sure ive understood correctly. You were diagnosed with celiac disease and dh. You are on an immunosuppressive drug which has helped the symptoms, because you immune system is repressed by the drug, and you now eat gluten? Are The doctors claiming you will be cured by the drug, be able to stop taking it, and be able to eat gluten? ...

Oh my gosh guys! I was feeling so disheartened and defeated by the whole thing. Like im punished and ridiculed for something I cant help. Thanks to you all ive found a bit of fight. Ive only burners and a microwave,so I cant bake, and cant afford expensive ingredients, so things are going to get boring food wise, but im going to try harder to go grain...

Thanks, Ennis. Im going to try the keto paleo diet, I really cant feel this unwell. Ild like a star trek gluten free food replicator. Or a time machine to when I wasnt sick. Ild settle for not being made to feel guilty for having to be so careful with gluten. Those people who glutened you for a so called joke should be charged with assault...

Im a super sensitive celiac. No I cannot use gluten filled creams, hair products, beauty products. The layer of gluten left by them gets on hands and in my mouth. Its enough to cause me symptoms. Great if other celiac people can use them without problems. I know gluten cant penetrate skin. I cannot. I react to anything over 5ppm. 20ppm is...

Whining! Are you kidding me! I guess you dont react to under 20ppm, not really gluten free food, are not stuck in a bathroom in agony with diarrea and vomiting after eating allegedly gluten free food, or because your non gluten free little kid kissed you! I guess you arent crying because despite being ever so careful your dh flared up again and you cant take...

I are rice, golden star Jasmine, after going totally grain free for a week, and feeling much better...and im sick again. Just d, no new dh lesions. I'll try lundburg once my stomach is feeling better. The cannot eat quinoa, now rice. Please God, leave me corn and soy!

Im so glad you are on the mend, and happy with your diet as you can be! Celiac is such a bind. I eat clean certified foods and still get hit by Cross contamination and low level build up. My only sugar is the occasional Square of chocolate, and lara bars a few times a week. Im currently living on veg soup, that I batch make, canned sardines, and...

You are not being overdramatic. They are either being willfully ignorant, or totally uncaring. But you simply can't make yourself ill by indulging them.

Im the same way. Which is why low gluten foods, under 20ppm, should be labelled low gluten. Free of gluten means nothing, nada, no gluten. My rash comes up within 20 mins or so, definately within 24 hours. I have a few new patches, despite being very careful. I suspect I'll get worse unless my kids and husband stop eating gluten, and spraying the house...

I've got dh, and cannot tolerate wheat on my skin. Shampoo residue stays on hair, hands go on hair, then to mouth. Same with skin cream. If I have to touch a gluteney thing I wash my hands. Cross contamination is a real thing. The Aveeno rep sounds infuriating. Nowadays I presume even gluten-free labelled products are not gluten-free until ive checked...