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kg51

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kg51

  1. kg51
    3 weeks gluten-free...my GI said to eat gluten-free after positive TTG blood work but negative endoscopic biopsy. We ate out for Mother’s Day at a restaurant that insisted they were safe and sounded great talking about how they’d prevent cross-contamination. I had a salad with shrimp and an entree of scallops. I’m about 2 hours passed the end o...
  2. kg51
    I’m sort of terrified of eating straight up gluten as a trial! I was thinking more if I could handle small amounts of cross contamination. Maybe we’ll order a gluten-free pizza delivery in 6 months, haha.
  3. kg51
    I'm not trying to be my own doctor, but...what the GI was saying just wasn't adding up. Thanks again for your responses. I still think I'm viewing this as "potential celiac" or "celiac but damage wasn't found." But I guess there's also still the chance it's "falsely elevated tTG due to something else." I'll do 6 months of strict celiac-level of...
  4. kg51
    I really appreciate your responses. Between my blood work, endoscopy, symptoms, and University of Chicago's Q&As, I'm inclined to call this "potential celiac," and I'm definitely sticking with the gluten-free thing and documenting closely how I feel. I'm thinking I'll request follow up blood work in 6 months and go from there. If my tTG is down,...
  5. kg51
    I do have the report, and I know I asked how he took the biopsies. I can't remember the proper term, but he described "one snip takes two samples," so every two samples were taken from the same area. Here's what I have... Specimens: A. - Tissue, Duodenal biopsy B. - Tissue...
  6. kg51
    It took a very long time before you noticed a good remission of symptoms? Do you know about how long? I guess I'm just bummed that I had a (possibly coincidentally) good week gluten-free and then a bad night. I wanted things to be cut-and-dry better from then onward. LOL, I'm pretty good at worrying about all of the things simultaneously! You are...
  7. kg51
    That's what I'm thinking--giving it some months and continuing my food/symptom log and seeing how things go. I am close enough to University of Chicago's Celiac Disease Center to make an appointment with their doctors for a second opinion, but I'm not sure if that's worth my time/money. I guess I can just plug away at eating gluten-free and see how it goes...
  8. kg51
    Okay, I'm going to try to be concise, but that's not my strength. I've had a lifetime of on and off symptoms--more off than on--and most recently has been intermittent nausea, bloating, and stomach pain some days. I've unintentionally lost 20 lbs (15%) since the beginning of 2017. Blood work 3/2018: positive tTG 19.8 (range <15); normal immunoglobin...
  9. kg51
    I'm wondering if they all relate to one another at all or if it's just random. -What were your symptoms of celiac disease prior to diagnosis? -How bad was the damage discovered with your endoscopy/biopsy? (Marsh rating?) -What's it like when you "get glutened" now? How long have you been gluten-free? Has your reaction changed over time?
  10. kg51
    Haha, I'm trying to be patient, I promise I do like going over all possible outcomes so I feel like I have a better understanding of things. My symptoms don't seem indicative of other issues (intermittent nausea, bloating, stomach pain...no diarrhea or constipation). And my blood work was clear from other signs of inflammation. But you're very right...
  11. kg51
    That's what I'm keeping in mind, and why I'm assuming no damage will be found...especially given my "low positive" tTG value. If my blood work was positive across the board or even if my tTG were high I don't think I'd be as skeptical about finding damage in the biopsy. So with a "low positive" tTG I think I'm just second guessing everything and wondering...
  12. kg51
    I'm also wondering if it might be useful to try for an appointment with University of Chicago's Celiac Disease Center (www.cureceliacdisease.org) since I'm near and my GI kept throwing around "non celiac gluten sensitivity" which does not sound applicable for an elevated tTG which decreases my confidence in that doctor.
  13. kg51
    So from my understanding tTG cannot be falsely elevated for no reason, it'd be due to a different health issue (though odds are it's celiac)...?
  14. kg51
    I had my endoscopy and biopsy today and am getting ahead of myself with potential outcomes. Either... 1) the biopsy will be positive and I will officially be diagnosed with celiac, or 2) the biopsy will be negative, which could mean there’s no damage (yet?) or it’s patchy and was missed or my blood work was falsely positive. Right? History: po...
  15. kg51
    Thank you for sharing your experience. Nothing I've felt has ever stuck for weeks and months and years. It's usually a few weeks where half the days are bad ones, half are okay, and then a few weeks of being okay.
  16. kg51
    I'm definitely getting checked by a GI for sure. Can something like Chron's be present without diarrhea???
  17. kg51
    Mostly I was curious if people who have been diagnosed have experienced symptoms that come and go, or if when eating a gluten-containing diet is it possible to experience symptoms after a meal even if it were gluten-free.
  18. kg51
    Does it work that way?
  19. kg51
    Looks like cystic acne to me. I get the same thing on my jawline close to my earlobes.
  20. kg51
    tTG: positive (19.8 with a <15 range) / EMA: negative / IgG and IgA: negative / immunoglobin A: 216 (range 70-312) I have a lifetime of on-and-off symptoms that could be explained be a celiac diagnosis, but currently it seems I have a few days with periods of nausea (<1 hour) and then stomach pain and bloating after dinner (pretty uncommon earlier...
  21. kg51
    That was helpful, thank you for your further clarification on your previous comment. I wasn't sure if "a positive is a positive" or not or if a value's closeness to the range mattered.
  22. kg51
    I posted the range, it's <15 u/ml.
  23. kg51
    With a positive Tissue Transglutaminase now, even if a future biopsy were negative, is a gluten-free diet recommended? Goodness, I can't wait to talk to my doctor.
  24. kg51
    Is there a Tissue Transglutaminase range for celiac-positive people? Is my 19.8 considered low?
  25. kg51
    32F with a lifetime of various digestive upsets, but nothing that's ever been super severe, and nothing that's been consistent throughout. I had a panel done through my primary care doctor and the results popped up in my online account. While I wait to hear back from her (though I'm a little doubtful of her knowledge and will follow up with a GI regardless...
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