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Bookgirl32

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Bookgirl32

  1. Bookgirl32
    I just experienced this the past two days in my face, on my cheek. It was numb, it just felt like it was sunburnt. I knew it had to be nerve related. We did just travel and I can't figure out if I was glutened (I was very careful, but did have to eat out), or if it was because I had to eat some dairy/grain in the last few days as it was my only option and...
  2. Bookgirl32
    Just came from the area after driving through from Indiana. The bakery is Sweet Rewards Gluten Free Bakery. It was good! Not far off of I80 in a suburb called Waukee. We didn't need to stop anywhere else at that point but Find Me app had some options.
  3. Bookgirl32
    Does anyone know of gluten free insect repellants? I know many of the natural brands don't have gluten but we are going to Colorado and I like to have the heavy duty stuff for that.
  4. Bookgirl32
    I can cut out the RX bars. But the eating out, we are leaving for vacation in a month, and we have days in the summer where between work and kids activities we aren't home until 9/10pm at night. Are you suggesting staying home because of the possible intolerances or because of cross contamination? I can plan and prep for those nights, but some nights it...
  5. Bookgirl32
    Also, I'm taking Enzymedica GlutenEase (not to "make it safe" for me to eat gluten, I've researched it and realized it doesn't work like that, I just figured there would be a pretty good chance of there being no gluten in those). I'm on the extra strength dose bc that's all they had. I'm not taking a probiotic right now bc I've read that if you do have SIBO...
  6. Bookgirl32
    Do you just eat more meat than a normal diet? If I just eat the amount of meat I'm used to eating it would only be about 800-900 calories a day. Or does that tend to be enough?
  7. Bookgirl32
    I'm confused at this point. I think because I've looked up SIBO and what to eat on that diet, I've got Paleo in my head, and low Fodmap/fructose. I feel like I can eat boiled chicken LOL. What should I do first? Tackle cutting out fructose foods and see how I feel? I guess she did tell me to wait, bc she said I could still be bloating from gluten withdrawal...
  8. Bookgirl32
    Have been gluten free for a month tomorrow, but also all grain, dairy, legumes and sugar free as well. I didn't have pronounced symptoms before. What I've been noticing this past month is the bloating. After eating anything. I know I'm not getting constantly glutened because we went gluten free in the house and have limited eating out to once or twice a week...
  9. Bookgirl32
    That’s a good idea too. It’s hard to rethink the way you prepare food for kids.
  10. Bookgirl32
    Those are great idea for summer lunches! I just have to figure out how to translate some of that into a lunch box. I did read about baking flatbreads with green banana flour, have you ever tried that? The Julian Bakery bread was not a hit at our house. I did order it straight from them, all three kinds. It had to be seriously toasted before hubby or son would...
  11. Bookgirl32
    My son has been diagnosed with celiac as well and while my husband and I have gone grain free, it's not nearly as easy to do that with an 11 year old boy. I have to use bread for him, at least at this point. I've found one Katz brand sandwich bread with no rice flower but I have to order it online. And I'm not sure he will like it. He really likes the Udi...
  12. Bookgirl32
    41. But I love it when people think I’m younger, even online lol! Thank you for the pep talk. I am really prepared to do this right, I think it just felt like it was another surprise.
  13. Bookgirl32
    Second post this week, sorry. I got called with biopsy results. She didn't say the stage, just said that the villi are completely blunted every sample they took. She said it's one of the more severe ones she has seen in a while. She also had never heard of the "cracked mud" appearance (she's a nurse practitioner calling for the doctor), or she had heard of...
  14. Bookgirl32
    I also get migraines from red wine. Are white cooking wines ok with paleo? Also does cooking seem to remove the effects of the red wine? I don’t know if it’s sulfites that give me the headache or something else.
  15. Bookgirl32
    That's a great idea! I also haven't completely restocked utensils and stuff, so for example tonight cooked gluten free but had to use my old pots and pans. But I got into my endoscopy on a cancellation, and it hadn't happened I'd be waiting till June 15th anyway and still eating gluten. It's amazing what it does for your motivation when you realize every...
  16. Bookgirl32
    Endoscopy biopsy results have not come back, but the doc saw "cracked-mud" everywhere he looked during the endoscopy. So now that I can officially go gluten free, I'm trying to figure out what order to do things. Obviously day one I have no longer voluntarily put any gluten into my mouth, but we are waiting on my son's diagnosis (he's a really weak positive...
  17. Bookgirl32
    Thank you for the replies! I know it’s a pain I’m asking all these questions. I think I have to tell myself it’s a learning curve and I won’t be perfect at it day one, which mentally is what I want. I feel like if I’m not, somehow I didn’t try hard enough.
  18. Bookgirl32
    Of course with my severe anxiety and ocd I’m going to focus on the cancer issue. Everything says that following the diet allows you to heal and your risk goes down, which is reassuring. Is getting accidentally exposed the same as not following the diet? I’m not asking for permission to not worry about cross contamination, more asking for the ability to bui...
  19. Bookgirl32
    I'm waiting to have an endoscopy, but have just had blood test results come back as "super high" according to my GP. My brother was recently diagnosed, and since we share so many other genetic traits, I've been mentally preparing myself. But my biggest concern, by far, is how this is going to effect/trigger my moderate to severe OCD, which usually manifests...
  20. Bookgirl32
    I've googled the names of the tests but it is really confusing. I'm wondering if higher numbers means worse damage? More likely that the diet won't work? I'm hoping I'll start to have symptoms when I do accidentally eat gluten, because I don't feel like I have any right now and I'm so scared of cross contamination after all I've read today.
  21. Bookgirl32
    Hi, new here! I didn't consider myself to have any extreme symptoms but got tested due to a sibling testing positive and having a positive biopsy. My doctor calls and says "You have celiac disease, your levels are super high". Obviously going to see a gastroenterologist and get the endoscopy, etc. I've been mentally preparing myself for the past few weeks...
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