disgruntledceliac
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by disgruntledceliac
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I'd like to pick up some Patak's spicy butter chicken cooking sauce. The Patak's website says that their products are gluten free, but I'm being extra cautious. (I get DH and have been feeling better since doing 6 months of the Fasano diet.) My diet is rather bland, so being able to eat this would be a great addition! (I love Indian food!) Thanks for...
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Any experiences with Annie's Gluten Free Rice Pasta & Cheddar Macaroni & Cheese? I'd love some mac and cheese but am unsure if there's any on the market safe enough for someone that deals with DH. I did the Fasano diet and did the six months of non-processed foods ... I'm not sure if it'd be wise to try something like this now.
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Soy and celiac question
disgruntledceliac replied to disgruntledceliac's topic in Dermatitis Herpetiformis
Thanks all for sharing your experiences. I'll keep it in mind moving forward. -
Prior to going on the Fasano diet my celiac wasn't improving, and I would have nasty reactions to foods including dairy and soy. I did six months on the Fasano diet and can now feel great and can handle dairy. Is it likely that I can now handle foods that contain (or are cross-contaminated with) soy, or should I continue to steer clear of it?
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Did six months on the Fasano diet to clear up my DH. Feeling a world better now, and am trying some foods/beverages not included in the diet. What's the word on herbal tea? I was gifted some Tetley green mint tea, but haven't tried it yet. I know that tea itself shouldn't have any gluten in it, but I'm always cautious about cross-contamination in factories...
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There's a type of yogurt I'm fond of that I feel safe eating. I stick to their plain flavour, in order to avoid extra ingredients that might make me sick. Today I was eating it when I noticed what appeared to be red syrup near the top of the container. (I smelled it and it smells like raspberry/strawberry-flavoured syrup.) Now I'm spooked that I might...
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Alcohol on the Fasano Diet?
disgruntledceliac replied to disgruntledceliac's topic in Dermatitis Herpetiformis
Thanks all for your responses. I tried some locally produced ciders and came out a-okay. It was nice. I'm not a big drinker, but having my first couple drinks in over six months was a nice change of pace during the holidays. I have some Glutenberg that I was gifted. I've avoided drinking it because it is made from millet, which is prohibited while... -
Alcohol on the Fasano Diet?
disgruntledceliac replied to disgruntledceliac's topic in Dermatitis Herpetiformis
Thanks for the reply kareng. Great point. I guess I'm wondering if my stomach healed -- as per the goals of the Fasano diet -- what would be some drinks that would be relatively safe to try? As I mentioned above, I like cider, gin and vodka (to varying degrees) and wouldn't mind giving some of these a try. -
Hi folks, Been on the Fasano Diet for close to six months. Feeling so much better, and my DH finally went away. With the festive season coming up I'd like to know if there are any alcoholic beverages safe for somebody following the Fasano Diet. Most gluten-free beers I know of contain millet, which isn't okay under this diet. How about ciders...
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I think I might have reacted to something that I've re-introduced to my diet. I have a small bumpy patch forming on one of my temples, which is where I get DH. It has developed in the past week, which coincides with the re-introduction of dairy as part of my diet. It also coincides with the return of potatoes to my diet (I was eating mostly rice and sweet...
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The only thing that cleared up the DH on my face was going on the Fasano Diet. I'd recommend it to anyone dealing with this stubborn problem. It takes extra effort to sort out your meals, and it is restrictive, but the results are worth it.
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Thanks to you all for your replies. I really think more discussion of the Fasano Diet is in order. I've been on the diet for 3 months and feel great. My DH has finally gone away, and I don't really notice any of the old symptoms. I've been extremely strict with the diet. The only exception is that I added a multivitamin after a couple months on the diet...
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Hi folks, I went gluten free a couple years ago, but wasn't recovering, so I started the Fasano Diet after talking to my doctor. After three months of this diet my various symptoms (rashes, stomach problems, etc) have gone away. I'd like to learn more about the diet, but it seems about all I find is the same basic description of how it works and what...
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DH and related complications
disgruntledceliac replied to Alaskaguy's topic in Dermatitis Herpetiformis
I just wanted to add that the Fasano diet has made a world of difference for me. It is limiting in its options for 3-6 months, but after 2 months my DH has gone away for the first time in a decade. Look into it and see if it works for you. -
How Long Does It Take For Skin To Clear Up?
disgruntledceliac replied to carrielynn's topic in Dermatitis Herpetiformis
If you've ruled out cross-contamination, I would look into the Fasano diet. Studies indicate 3-6 months on this diet will give your stomach the chance to heal properly, after which most people can go on to a more standard gluten free diet. The Fasano diet means avoiding processed foods, as well as other triggers. It definitely limits your options. But... -
Just wanted to add ... if you are confirmed to have celiac you should look into the Fasano diet. It has made an incredible difference for this long-time DH sufferer.
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I've written about this before but it is relevant here, so apologies for the repeat info. I was diagnosed with celiac/DH for over two years ago, but despite going gluten free I continued to have DH issues. I figured it would go away with time, but it didn't. Started taking Dapsone, but the rash still wouldn't go away. Two months ago I started the Fasano...
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I've had this problem. They're at their worst when I grow my hair out, so I shave my head every few weeks. I use a gluten free product to wash my head/hair so that wouldn't be it. Hopefully its a residual effect of my years of eating gluten that I'll grow out of.
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I have had a similar experience. Diagnosed with celiac/DH for over two years ago, but despite going gluten free I continued to have DH issues. I figured it would go away with time, but it didn't. Two months ago I started the Fasano diet. No DH flare-ups since then. I feel much better ... for the first time in years I'm feeling optimistic about things...
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Help with Suntan Lotion
disgruntledceliac replied to Jen1104's topic in Gluten-Free Foods, Products, Shopping & Medications
I see a lot of gluten free lists include Thinksport Safe Sunscreen SPF 50+. Their ingredients include Tocopherols (Vitamin E). Does anyone know if they derive this from a wheat source, or if they use something more gluten-free friendly? I've emailed the company, but was hoping someone here might already know the answer. -
Products (makeup?) to cover DH?
disgruntledceliac replied to disgruntledceliac's topic in Dermatitis Herpetiformis
Thank you for the replies. Are any concealers favoured by people with DH? -
Male that gets DH on my face. (It seems to be under control now - fingers crossed.) I don't know a whole lot about cosmetics, but I was wondering if there might be something relatively simple that would provide a bit of cover where I have the purplish post-DH outbreak marks on my face. Beyond that, do people with DH scarring on their face ever tend to...
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Gluten free but still with DH?
disgruntledceliac replied to Ron-UK's topic in Dermatitis Herpetiformis
If you haven't already, try tracking down a book by Alessio Fasano called Gluten Freedom. The Fasano diet gets discussed (briefly) in this book, but the rest of the information is very helpful as well. I follow the Fasano diet after dealing with persistent DH, despite following a gluten free diet for a couple years. I've dropped processed foods, including...- 25 replies
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I just want to echo this. I have a persistent case of DH that wont' go away despite being nominally gluten free for a couple years. (I've been on dapsone a while too.) I've adopted the principles above - including the Fasano diet - and I've seen significant improvement in the past month. It is a lot of extra work, but if you're serious about getting...