MidBaker

Thank you for sharing your story. Yes, his TTG really bothers me for many reasons, more than would be appropriate for this particular thread. I didn't think about Lyme, I'll definitely ask the doctor about that. You are right, I don't want to put him on any drugs unless absolutely necessary. I just want to know what I'm looking for and what to keep an...

Thank you

What other AI diseases should I ask about? That's where I'm stuck. We aren't concerned about compliance. We are extremely strict and vigilant. We believe something else is going on in his body, we just don't know where to look anymore.

It hasn't consistently gone down. One of his GIs said this might be his normal levels, especially since there didn't show anymore damage and we have gone through our lifestyle and foods with a fine tooth comb. His results... 10/14 - >235.10, 6/15 - 75.5, 2/16 - 46.2, 8/16 - 49.7, 12/16 - 40.3, 3/17 - 53.5, 9/17...

From what I can find in his tests, he has never had the DGP test before. I will be asking his GI about that. The issue though, is that we are certain he is not ingesting gluten, so what else could I ask for him to be tested for? Or do I just have to wait for something to happen.

They don't go to friends' houses without me yet. There isn't really a chance in school either. The school is wonderful to work with and is very careful. I go in to double check things as well. They have new placemats in the lunch room every day. Along with manila folders cut in half to be used as "walls" to block them from getting crumbs from friends...

Both of my sons (7 and 8) were diagnosed three and a half years ago. We removed gluten completely from our home, including remodeling the kitchen, dining room, and living room. Replaced all dishes, pans, etc... We test things from time to time to makes sure no CC happens. Husband and I even eat gluten free outside the home so we don't bring home any crumbs...