debmidge
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by debmidge
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I know you said no pills, but I have had this experience with undigested vitamins.....poor quality vitamins have a coating which does not breakdown upon ingestion and goes through intestinal tract undigested - coming out as as white lumpy thing.
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Benefiber
debmidge replied to darlindeb25's topic in Gluten-Free Foods, Products, Shopping & Medications
The really sad part about this whole Benefiber thing is that before they reformulated it a couple of years ago, it was Gluten Free and had no wheat starch at all. I have written and called Novartis Consumer and told them that the new ingredients are problemic for celiacs. We now get those samples too probably because I've written to them - see... -
During my Dad's pancreatic cancer, the medical authorities pointed out his "cold cut" diet, especially cured meats like salami or pepperoni. The sugar connection sounds like a match as welll.
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Dove Ice Cream Bars
debmidge replied to wowzer's topic in Gluten-Free Foods, Products, Shopping & Medications
If you never ate chocolate with barley malt in it keep in mind that it has a distinctive flavor - there's a underlying grain flavor in the chocolate so if you get malted chocolate by error keep that in mind. I noticed German chocolates use the barley additive. -
New - Is It Worth It?
debmidge replied to DownWithGluten's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, my husband had severe depression which lifted when he went gluten-free. Gastro even mentioned that this was where most of the depression was coming from. Gluten will affect brain chemistry. -
yes, sorry I mean Grey Goose. I went on their website and yes, they state wheat based. I always mix this up with Blue Goose which is particular to my work "The Honorable Order of the Blue Goose, International is a fraternal organization of men and women who work in the property and casualty insurance industry. As Ganders, we are members of Ponds...
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Vodka types: can someone advise what "Blue Goose" is from? and what brand is a sweet potato base? Why is it that the wheat and rye vodkas do not take on a golden hue like whiskey does?
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Let's hope it stays that way...
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Fake Paper Cuts
debmidge replied to Lister's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You're body is recovering, if you are gluten-free and it's responding to the new diet, but it might take some time for the vitamin level to get back up to where it should be. The skin might be still thinking you have deficiencies. Vitamin B's are stored in body and when stores deplete, you need to "re-stock." The re stocking takes months of taking... -
My husband's newest development due to a reduced immune system is now he has knee bursitis and has to have his knee bursa (both knees) removed. Both GP and my chiropractor says it's a strong possibility that it's the body attacking itself as he doesn't have an occupation (never did) where he worked on his knees like a plumber or carpenter or carpet installer...
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Nini, Nisla you are so right about avoiding shoulder surgery. My rotator cuff was worked on by the PT (despite the PT presciption being for "neck" only, PT and I knew it was shoulder so he worked on the shoulder "off the record.") I tore my should capsule too. The physical therapy after the surgery was very, very painful and for a time I thought I...
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From my experience, I've noticed that some or most doctors get mad when you tell them what YOU think your condition might be; or they are embarrassed over their lack of knowledge and try to cover it up by saying "No, you don't have such and such." I'd like a doctor to at least say something like "Well, it's certainly worth testing for." or "That's an...
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Feel free to rant This thread is the thread to rant on. I believe this is the only thread you can say this stuff on. Some of us are more emotional about our negative treatment, misdiagnoses, etc. Some of us have been impacted more negatively than others in this negative treatment and misdiagnoses and general ineptness of the medicine and doctors. ...
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Ok, I'll bite, but it's not a celiac story, and it's not a terrible ending, but it makes you go "huh?" Several years ago I had shoulder pain and could not raise my arm above my chest or raise it in the position of how you would plug an electrical cord into a socket. Raise arm and twist brought on a pain that ran from my shoulder to my hand. Even putting...
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Dare I? I must be a masochist!
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If I hear of one in your area I'll let you know, better yet go to CSA's website (Celiac Sprue Association) and see if they list known support groups in NJ. They did last I checked. Maybe there's a re-formed group in your area. I know where Jefferson Twsp is. Maybe was there once/twice in my life. Do you know of any other celiacs in school?
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Dear Newo: There used to be a CSA sponsored support group in your county (Dover Hospital I believe) but thye totally disbanded in early 2004. I am in northern Union County and would like to join a group or have someone help me start a group but in this area. As you are aware, traveling in North Jersey is terrible during rush hour and a simple 30 minute...
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yes, my husband has celiac (misdiagnosed for 27 years) and I am specifically looking for info about malignant polyps as they relate to the small intestine. Strack: was your husband celiac? The endoscopy does the upper or small intestine. Thanks for any info anyone can give me. deb
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Hi All I am submitting this as a check to see the response to "has anyone been diagnosed with polyps of small intestine or tumor (adenocarcinoma) of small intestine, as we are told is at a higher incidence than the general population?" And, if yes, what was the outcome?; what is/was your treatment plan? What were your symptoms before diagnosis...
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My Dad died of pancreatic cancer but was not celiac. I am not celiac (my husband is). However, my Dad's pancreatic cancer symptoms were exactly like my husband's celiac. Diarrhea, intestinal pain, malabsorption, stomach gurgling sounds, weight loss, fatigue -- the only thing he had that was not celiac-sounding was back pain on the right going around...
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My celiac husband always had intestinal sounds before going gluten-free; and still has them. My theory is that since he's been undiagnosed for 28 years, he probably has a good amount of villi damage and until that's cleared up he's going to get those rumbles. The rumbles do not result in loose bowel, just noise and some intestinal gas. As the "healthy...