creativemuse

After I posted this, he called me because I replied to the note questioning if I was reading the test results correctly because they didn't look negative to me. He told me that A. diarrhea is not really a symptom of celiac (huh, wonder why all the poop jokes about it then...) B. if I had both genes plus a positive antibody test, that would mean that there...

Followup - nurse sent me a note via mychart that "the gene test was negative" but if I feel better gluten free, I should continue it. This was a big surprise, since I already ran the info through Promethease and it said Dq2 Positive Dq8 negative. So I went to the test results themselves. Sure enough Dq2 positive, Dq8 negative with a note from the doctor saying...

The second doctor I saw felt the same, that 2 positive antibodies + inflammation was enough to at least be proactive about screening for vitamin deficiencies, etc. but he is hoping for more clarity when he sees the biopsies. I had blood drawn Tuesday and so far D is low (not shocking, upper midwest after a looooong winter). Iron and B were ok and we are waiting...

I am so beyond frustrated. I have been having gastro symptoms for a while, accelerating recently, so I called my GP a few weeks ago. He was out for the week at the time, so I saw someone else in the office. She ran a DPG IgG and IgA as part of a bunch of tests and the IgG came back elevated (29 ref >20). She referred for an endoscopy. I took the first...

I am newly/tentatively diagnosed (sero positive, biopsy negative, but gastro sypmtoms vastly improved without gluten, so I am going with it). I have a husband and 3 kids, 9, 13 and 15 years old (plus 2 grain eating dogs and 2 grain eating ferrets). I figured it would be just me going gluten free, we cleaned the kitchen end to end, all the nooks and crannies...

The final results are very mixed. TTG 39 (ref >20), EMA Negative, DGP IgG 29 (ref >20) and the note from the doctor says "small bowel biopsy reveals inflammation but no evidence of celiac sprue. However TTG antibody is mildly elevated which is specific for celiac sprue. It is possible she has early celiac sprue without damaging the small bowel." He...

Update: I had the endoscopy this morning. The GI asked if I had a positive celiac panel and I mentioned that only the Deamidated IGA/IGG had been run and he got positively cranky. He went back and looked and said that it was only mildly elevated and acted irritated that I was even having a biopsy at this point. He did order the EMA, IGA and TTG blood tests...

Ah the joys of electronic medical records. I went to the doc this week for GI upset and she included a GLIADIN, DEAMINATED, IGA & IGG, SERUM test as part of the workup. The results were released automatically to MyChart so I was able to access them online without talking to the doctor, but she added a note (I assume to the nurse) "Let her know that her...