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M. Martha

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by M. Martha

  1. Glad that was helpful. I stepped away and remembered MSM - I take one small scoop of that in powdered form in water (Jarrows Formulas). Noticed it helped when they took it out of a glucosamine chondroitin MSM supplement I was taking. Don’t take that anymore, just the MSM. Also, it’s Dr. Mark Hyman (corrected spelling) and then the other doctor I wanted to ...
  2. I hear you on this one. What I had to do was change the paradigm in my head from “putting on weight” to “being healthy.” My effort to put on weight with gluten free products exacerbated SIBO (small intestinal bacterial overgrowth) that I had just treated. Didn’t rile it up enough to show on a test so I went another 3 years before I realized when I cut out...
  3. I agree. My antibody test was negative, but I stopped gluten the minute it came to my attention through my sister’s diagnosis of celiac and in 2 weeks the oppression I’d felt (a lack of a motivation for living) lifted off of my brain. I never looked back but started charging forward healing my gut. My endoscopy was positive for celiac with depressed microvilli and...
  4. I have had the problem of waking up in the middle of the night and not being able to go back to sleep. I’ve connected it to gut dysbiosis and it was also present when I had clostridium difficile full blown. I believe my original gut dysbiosis was caused by a low grade c diff overgrowth since I had recovered on my own without it being diagnosed and when I...
  5. I haven’t had liver disease but I can relate to your sense of frustration with the medical help you were receiving prior to your taking matters into your own hands, calling a specialist who allowed you to self-refer to a well known hospital. Well done. Endoscopy is the gold standard of celiac diagnosis. Mine was diagnosed with an endoscopy, even though m...
  6. Raquel, I was thinking the same thing about the xifaxin. I’ve been on it twice for SIBO.
  7. Hi Melissa, I’ve had Vitamin D, folate and zinc deficiencies that resolved with supplementation. Have not been tested for A, but at present I’m taking a teaspoon of Garden of Life Icelandic cod liver oil and more importantly, eating liver at least once a week. My bout with COVID knocked more foods out of an already limited diet - no gluten, no dairy, no ...
  8. Thanks! It was very, very weird....have never had anything like it. Threw every immune support protocol I had at it.
  9. No I don’t have the test but I could probably get it. I’m sure it wasn’t a comprehensive panel, however, which negated its validity in my mind. At the end of the day, I just wanted to feel better....I was convinced twice: after the initial 2 weeks on the specific carbohydrate diet when the “lack of motivation for living” lifted - that really felt like a mi...
  10. Yes, corn can bother me. Rice doesn’t. Unless you’re eating organic corn, it’s probably been genetically modified and sprayed with round up (glyphosate). They started using it extensively in the mid-90’s. Rice can have high levels of arsenic so I don’t eat much of it. With that said, I’ve also found with popcorn (which I buy organic but most of it hasn’t b...
  11. Just a heads up re to my diagnosis for what it’s worth. My sister was flagged in December 2016 with elevated antibodies after experiencing bloating and going to her doctor who tested her. She was 68 - we’d both eaten gluten all of our lives but remembered our grandmother being “allergic to wheat.” As a near relative (and also because of a 10 year journey...
  12. Check out Isabella Wentz, the thyroid pharmacist, who was in her 20’s when she was diagnosed with Hashimoto’s thyroiditis. She may be able to provide a roadmap for addressing your daughter’s issues. She wrote Hashimoto’s Protocol as well as other books. My symptoms were similar to your daughter’s, but I have been able to reverse them. It’s taken time, resea...
  13. I didn’t have strong digestive symptoms to gluten either. My symptoms were primarily neurological and Hashimoto’s thyroiditis. I was able to lower those antibodies by cutting out gluten and treating SIBO. I had a mild case of SIBO - took the lactulose breath test to diagnose and treated with xifaxan. Now what to eat? I’ve tried to make gluten free bread with ...
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