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Ging

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Ging

  1. Ging
    Sadly, my area of the world does not particularly accommodate Celiacs even when the restaurant is supposed to offer gluten-free options. Cross contamination is rampant and almost to be expected. It's particularly frustrating as your choice is often getting no meal if for some reason you can't provide for yourself/take your own lunch, etc, or eating out...
  2. Ging
    I think most of us are well aware of this. The problem becomes when we're given bad or no information about possible contamination or processing methods/materials/products from the manufacturer. Testing, as is implied in the article, is hit or miss or completely falsified so that the Celiac sufferers are left with meaningless information on packaging. In...
  3. Ging
    I've had more and more trouble with this lately. Multiple 'gluten free' products that seem to cause reactions. Sadly, I think I'm seeing this with some basic ingredients which is truly awful. How do you cook when you can't even trust the simple ingredients? There's a low level of stress constantly waiting to see if you're going to be sick... .
  4. Ging
    This page might help with understanding the conflict in the possible causes/understanding of Celiac and it's triggers and/or development. https://ghr.nlm.nih.gov/condition/celiac-disease#genes At one point, under the 'Causes' drop down, the article states: " Almost all people with celiac disease have specific variants of the HLA-DQA1 and HLA...
  5. Ging
    Beware the Doritos! I have regularly broken out (can you tell I really, really want them to be gluten free? 'regularly'? ) attempting the 'Simply Doritos' that are supposed to be gluten free. I believe they have cross contamination from running on shared lines as the company spokesperson informed me. I also noticed when they first appeared (to me) on...
  6. Ging
    Some excellent and helpful information here. I know right now it's not funny at all, but hopefully one day it will be one of those family 'you won't believe what happened when..." stories. All my best to the newlyweds and a big thank you to those of you taking the time to share your experience with those of us who have never traveled yet with Celiac.
  7. Ging
    Another article on enzymes and their use with Celiac: https://nationalceliac.org/celiac-disease-questions/gliadinx-product-digestive-enzyme-supplement/ I'm not a medical professional, but like most treatments for Celiac, it looks like more testing and study would be ideal with hope for some solid recommendations. Right now, it seems they should...
  8. Ging
    I'm curious about the comments in the article and the follow-up comments saying asking for something cooked in a cleaned/thoroughly cleaned pan or pot - is that really safe? I've been under the impression that it's nearly impossible to clean a pan that well that has been used for anything containing gluten. The common wisdom was to get rid of all your previous...
  9. Ging
    Great article! That was a wonderful, detailed account that I found very useful and thought-provoking. I have never 'traveled' with my recent diagnosis. Honestly, I'm fairly concerned because I also have DH and have found I'm ridiculously sensitive. I once had a breakout that manifested on my face and now worry about having what I call 'the zombie...
  10. Ging
    The King Arthur Yellow Cake mix is very good. I made a layered lemon curd cake with a lemon whipped cream frosting for the first gluten free cake attempt and it was out of this world. Now my family wants me to make one every time I visit - my non-Celiac family. ? Guess that's quite the vote of approval.
  11. Ging
    So sorry to hear about your troubles. I was diagnosed with DH and Celiac bit over a year ago. My doctor and I decided to not use Dapsone because of the side effects, but also because I'm incredibly lucky (compared to what I've read here from other DH sufferers) not to have 'severe' itching - still want to claw my skin off sometimes, but I'm able to control...
  12. Ging
    I was thinking the same thing - the Instant Pot gives so many options for cooking that I felt it would be a nice compromise on vacation. I'll pack a tote with all the necessities for making the meals I choose and the local groceries will get my business. Would love to eat out some, but I haven't had good luck with that - maybe near some larger population...
  13. Ging
    Butcher paper! What a great tip! Every time I visit mom I get glutened even though I'm practically bringing half my kitchen to work with... I was actually thinking about what I could do to try and not touch much of ANYTHING. Thanks for that!
  14. Ging
    There are so many variables in this type of study that it's a thin line to draw such a conclusion. I'd like to see this approach expanded to include countries with a diet heavier on pastas and the like. Bread has been a staple in diets in many countries throughout history, so it would seem unusual to see a rise in diabetes due to gluten ingestion. My...
  15. Ging
    I'm rather curious as to what constitutes 'real bread' and who made the decision as to what 'real bread' is. There are a lot of different breads out there from a lot of different places with a lot of different purposes. As someone mentioned, even water can be used as a lubricant and too much water can, indeed, kill you. I feel like there's a touch...
  16. Ging
    Well, I'm glad there is a study to back this up, but honestly, it's not news to me. Out of approximately every 10 visits to a restaurant that gave me 'gluten free' food I would estimate that 8 or 9 of those visits gave me a reaction. A lot of the servers/cooks/staff are genuinely trying, but I stopped going to these places. I just don't think they have...
  17. Ging
    Hi Kelly from north of Atlanta! Thank you so much for this article and all the detail you give. That's really nice of you and means a lot to me because, should this become available, I'm going to look at using this medication. I have DH, fairly new diagnosis (not quite a year), and I'm having a rough time with getting completely gluten free. In my...
  18. Ging
    It's very good to remember that these places don't have to offer anything, however, it's the flip side of the coin that they shouldn't offer what they don't have or can't accomplish just to try and get a piece of the 'gluten free pie'. Products in grocery stores are doing the same; labels say 'gluten free' when they are not and a lot of us are getting glutened...
  19. Ging
    I bow down to your work ethic and generosity. ???
  20. Ging
    Oh, wow, thanks so much! In my area there's next to nothing available, so I haven't even heard of a lot of these. So good to hear all these options from someone with firsthand knowledge. ?
  21. Ging
    Really looking forward to hearing the results of the trials. The more I learn about my disease the more it seems I'm highly sensitive (more than the 20 ppm threshold) and it would be a huge bonus to even be less sensitive, much less be able to safely eat something with wheat.
  22. Ging
    Not to stir up a hornet's nest, but this is a point that I think really needs clarifying: https://www.canada.ca/en/health-canada/news/2019/01/statement-from-health-canada-on-glyphosate.html Glyphosate has been demonized with no good science behind it - sadly, the good science is getting no press and now is most likely going to be too late to change...
  23. Ging
    Wheat is one of the most versatile grains known (see all the stuff that has wheat in it and for all the different reasons) and a huge player in areas where not much else will grow and thrive, so I understand why it gets the attention it does. I'd be very interested in seeing where this research goes. I don't know enough about genetics to know the role...
  24. Ging
    Tom + Chee's! They made me an awesome sandwich (they use Udi's) on their separate grill and I had some tomato soup with it. The young lady that waited on us gave me all her attention and time to explain how they kept ingredients from contamination, cooking method, etc. Excellent experience and I only wish they were closer. Twisted Kitchen tried, but...
  25. Ging
    I get so excited thinking that there might be a place or two that are safe for me to eat out - I get tired of doing all the cooking, all the time. However, I've worked in places where you had to understand sterile conditions and practices. That's really what's needed to get a gluten free meal in the sense that you cannot have any gluten contamination. ...
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