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Bree J

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Bree J

  1. Bree J
    I'm not sure, but I have been getting bumps lately too! I think it might just be the heat not letting my skin "cool down" from that initial irritation? But maybe not.
  2. Bree J
    Yep, I got a nice solid panic attack when my brother invited me to have dinner with him on his birthday at a Japanese hibachi restaurant. They have gluten free soy sauce, but it's a shared Grill. That ended up being okay, and he actually sanitized my corner of the grill, and I watched him do it, so that was nice. But I had no idea they would do that for me...
  3. Bree J
    Eat healthy fats! Nuts Seeds Nut butter Coconut Avacados Salmon / tuna Red meats Cheese
  4. Bree J
    Hi! Im 23 and feel similarly! I tried to get tested for celiac, but the doctors that I had access to did not know how to diagnose it or test it correctly, so I am unable to officially test myself for celiac, but honestly I believe it's possible that I have it. Maybe I'm like you, and I'm just a non-celiac gluten intolerant person, but you know what...
  5. Bree J
    I'm not sure if our pain is the same, but there was a time last summer during which I would be in pain any time I ate anything. I've been eating gluten-free for 5 years, So I know it wasn't that. honestly I thought I might have a stomach ulcer, so I went on Google to try and see what I could do to ease the pain from that, since I didn't really want to go...
  6. Bree J
    I say that's proof enough that gluten or at least wheat hurts your body, and that you shouldn't eat it anymore. If you want, you can do what I did when I first thought I might be gluten intolerant or Celiac, go another 3 weeks without eating any of it, being really careful, and then try a piece of bread or even just two bites like you accidentally had at...
  7. Bree J
    I get similar sores. My scalp is also a mess, and it doesn't help that I pick at it... I don't really have an answer for you because my testing wasn't super conclusive either, but I can definitely relate to those pictures. I get tiny ones on my hands a lot.
  8. Bree J
    I am the same. Im 23 and have been gluten free for 5 years, but only 2 months ago i found out it's celiac and not just an intolerance. Since I've been more careful I do feel better, but I get even more anxious now. When my brother texted the family about his birthday dinner at a Hibachi (Japanese) restaurant, I had a full on panic attack because a lot of...
  9. Bree J
    I have a hamster and I kiss his back sometimes and hold him a lot, I just never touch my face til I wash my hands after I handle him. Hamsters are very clean animals, mine does a dust bath every day, sometimes twice. Mine isn't where I sleep but I play with him almost every day, and i'm okay!
  10. Bree J
    I'm kind of in your boat, avoiding gluten makes me feel way better, but idk if I want to get tested. I probably won't because I will not be able to function if I do a gluten challenge. I will just train myself to have the willpower to eat like a celiac.
  11. Bree J
    I don't have much as far as advice, but I want you to know I'm in a similar situation. Although I don't have the means to visit many specialists right now, my (what I truly believe is) celiac causes psoriasis on my scalp and hands. I've been gluten intolerant for 4 years, but I think I've developed celiac, seeing as I am having new symptoms even while opting...
  12. Bree J
    Wow, thank you so much!! This helps a lot. Good community here, glad I found it.
  13. Bree J
    Thank you so much!! I'm going to start today.
  14. Bree J
    Thank you -- I will first try to be 100% gluten free. I've been trying to learn what that means in my free time, but if anyone has a good resource of everything to avoid that would be helpful. Yesterday I opted not to have a gluten-free crust pizza at a restaurant because they don't use separate ovens or certified gluten-free toppings, so I'm starting out...
  15. Bree J
    What's got me thinking I might still have to worry about celiac, even though I've been gluten-free for 4 years: https://scdlifestyle.com/2015/11/the-celiac-disease-diet-why-gluten-free-isnt-working-and-what-to-do-instead/
  16. Bree J
    The test I took said less than 20 U/mL is normal. I had 8. Which I know is less than 20 by far. But all my other levels were less than 1. Maybe I'm just psyching myself out looking for an answer anywhere. I guess what I'm wanting to know is if a blood test is completely useless without gluten in the body, or if any sort of elevation can be interpreted as...
  17. Bree J
    I've been eating gluten free for 4 years. I took a blood test without knowing I needed to be eating gluten (doctor didn't have any clue.), so naturally it was negative (pretty high ttgIga levels though, for a no gluten diet). If I eat even seasoning with flour in it or a tortilla chip fried in cross-contaminated oil, I'm sick for 2 days. So is my...
  18. Bree J
    Just want to throw this in there-- many provolone cheeses are made "with smoke flavor" (should say it on the front). Smoke flavor is not usually gluten free! So if you like provolone get plain, or "organic" and make sure the ingredients don't say smoke flavor.
  19. Bree J
    I can't speak on all of your points, but YES, the longer you go without gluten, the more sensitive you become to it. When I first started cutting out wheat, I could usually handle a bite of a breadstick at dinner. Now it hits me like a truck and my insides are ruined for days! I don't get stomach cramps from sharing a toaster with my family, but I'm trying...
  20. Bree J
    Mpug, Yes, about 4 or 5 yrs ago I went through minor trauma and was then intolerant to gluten. This happened to my father, his brother, and 2 of my paternal cousins. You don't have to have trauma for your gluten intolerance to become "un-dormant" btw. Every time I ate it i would get horrible cramps that made me not be able to move. Nothing gave...
  21. Bree J
    I can sort of relate, when I'm not properly nourished (I'm very sensitive to that-- have to have the correct amount of protein and veggies/fruit with any sugar or dairy just to feel good), heat bothers me a LOT. Makes my anxiety bad too (i hate being hot). I've been gluten free for 4 years (when my intolerance showed up) and ever since then go crazy when...
  22. Bree J
    Those lab results are higher than mine were and I still believe I have celiac, but I do not have the means to get a biopsy. Just as another person who's felt yucky and done a blood test to see why, I think you should avoid gluten. It may not be the auto-immune disease celiac, but it could be non celiac gluten intolerance, which mimics celiac very closely...
  23. Bree J
    That sounds horrible! You poor thing! I'm very surprised the test came back negative. However, celiac tests are not 100% accurate and can still come back negative even if you have it! I too had to deal with doctors who either didn't seem to care, or had no idea what they were doing (when it came to celiac) and didn't want me to know that. I agree...
  24. Bree J
    Sorry for the long post, I've been dealing with this forever and want to figure it out! Hi, I just got tested for celiac (blood test at a family practice (USA)) without knowing that I had to have been eating gluten regularly for it to show anything. I read forums here that said so, so I called the doctor's office before my test to ask if that was true...
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