vvicin02
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Everything posted by vvicin02
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Understanding Villi Healed but Antibodies Present
vvicin02 replied to vvicin02's topic in Coping with Celiac Disease
Well, I received my results on my biopsies. I guess the Doc was not totally accurate in his assumption that my villi has healed. The lab results indicate "Duodenal mucosa with mild to moderate villous blunting". It looks like I still have some blunting going on (3a) and getting exposed to some gluten somewhere. This sort of explains why my numbers are not... -
Yesterday I had an ultrasound of my esophagus (couple of cyst they want to look at) and while they were in there they took some biopsies of my small intestines to see if my villi has healed since being on a GFD. To my surprise, I was told it looked healed! That is awesome. However, I am confused. My blood work, mainly my Transglutaminase IgA, is still high...
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Increased Cholesterol after a year on GFD-Why?
vvicin02 replied to vvicin02's topic in Related Issues & Disorders
I agree. Thank you. -
Increased Cholesterol after a year on GFD-Why?
vvicin02 replied to vvicin02's topic in Related Issues & Disorders
Thank you so much for all your feedback! You have no idea how helpful this is. I spoke to the nurse and told her I want to try to make a change in my diet and see if I can reduce the cholesterol without medication. She said lot of people are in denial at first and want to try to reduce their levels without meds. I could tell by her voice that she knew that... -
Increased Cholesterol after a year on GFD-Why?
vvicin02 replied to vvicin02's topic in Related Issues & Disorders
kareng - that is exactly what I was going to ask him. Worth a try. -
Increased Cholesterol after a year on GFD-Why?
vvicin02 replied to vvicin02's topic in Related Issues & Disorders
Thank you so much for your feedback. I know I will get a call from my Doc to go on Statin which I really do not want to do. Did most of you go on Statin if you were diagnosed with high cholesterol ? Strange thing is that I lost 5 pounds and workout 3-4 times a week. I know I probably eat way too much meat and bread (gluten-free). I guess I will try to eat... -
Increased Cholesterol after a year on GFD-Why?
vvicin02 posted a topic in Related Issues & Disorders
I went in for my yearly physical yesterday. I have been on a GFD for almost a year now since being diagnosed with Celiac and thought I was doing pretty well. My blood work including my Ferritin (which was 17 ng/ml a year ago) increased to 62 ng/ml which made me very happy. Also my liver enzymes improved which is a good sign that my GFD is working. However... -
The other day I decided to experiment with my waffle recipe. I love my gluten-free waffles with Maple syrup and blueberries. My recipe contains these flours: Rice Flour, Brown Rice and Tapioca Flour - and Corn Starch. I tried to cut back on the Rice Flour with Buckwheat Flour (I mill my own). I added about a 1/4 cup of buckwheat to the recipe. I noticed that...
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How safe are Costco and Nuts?
vvicin02 replied to vvicin02's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi Beverage - I realized just now that you replied to my post...lol. Thank you so much. I was thinking about ordering walnuts in the shell and hope they were safe from anuts.com - even though they do not advertise gluten free nuts. I have been ordering from nuts.com but they are a little expensive. I just want to make sure that the nuts are really gluten... -
Millet
vvicin02 replied to bakingbarb's topic in Gluten-Free Foods, Products, Shopping & Medications
Great post! I make my own bread and mill my own flour. I found a recipe to make hamburger buns that uses millet flour. I found that I did not feel very well the next day after eating those buns and could not understand why. I thought I was going nuts since I thought millet was so good for you. I guess the fiber is a little to rich for me. This post really... -
How to Handle Going Out to Eat with Celiac
vvicin02 replied to vvicin02's topic in Coping with Celiac Disease
Grlybrainiac - you have been very helpful. I enjoy hearing how other people handle this kind of stuff. I personally don't know many like me who I can share my experiences with so I am sort of floundering. I guess I am still new at this and have decided to play it safe with my diet. I am just waiting to see if I have really improved with a full year under... -
I have been Gluten Free for almost 9 months and suddenly the last few days something has changed. I have experienced some cramping in my gut after eating breakfast. I am really perplex why this is happening. I usually eat the same breakfast every day and seldom get any GI issues (no bathroom issue - just cramping - it subsides after an hour or so). Could...
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How to Handle Going Out to Eat with Celiac
vvicin02 replied to vvicin02's topic in Coping with Celiac Disease
We have a good number of Gluten Free places near me but I just don't really trust any of them. I guess I need time to really gain trust on where to eat. I use my app to read reviews but it seems that almost every time I try to eat out, there seems to be something wrong. I really do not need to eat out since I enjoy baking and cooking my own meals. The funny... -
I was wondering how you deal with going out to eat with family or friends with Celiac Disease. Since my diagnosis, I tried to go out with some friends to a high rated gluten-free restaurant a couple of times. However, after eating there I suspected it was not totally Gluten Free. I find it not worth it - I just don't trust anyone but myself with my food....
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It was not injected - at least the package did not indicate that. My house is not gluten free. My wife is not ready for that since she does not have celiac disease. I tried to make sure everything was clean. Just seems odd that this has happened twice to me with the same Beef Brisket. Maybe I should try a brisket from a different store. I used very basic...
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I am really puzzled why twice now I made one beef brisket (same one cut into two pieced and frozen) in a clean Dutch Oven with just salt, brown sugar, pepper and onion powder and the next day I got a little sick. I don't understand why. I can get burgers and steak and have no issues. I bought the beef brisket from Costco. It was not organic or grass...
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This is good stuff. I was going to post to get idea's on how to deal with road trips. My wife and I want to travel out west (Yellow Stone or Grand Canyon) but eating is always a concern. I am not a fan of any restaurants but I will take me wife to eat anywhere she likes. I need idea's on to store food or prepare food for the trip. We like to rent cabins but...
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Which Seasoning Brand Do You Use?
vvicin02 replied to mart's topic in Gluten-Free Foods, Products, Shopping & Medications
I know it has been some time since this thread was posted. I am planning on using Lawry's seasoning, along with hot chili powder, pepper and paprika for a rub on my beef brisket. Is it safe? All indications are show safe. Anybody been using it - love to hear your experience. Thanks -
Thank you so much. My hemoglobin is good and no indication of anemia. I think you are correct that my diet is probably the factor here. Before I was diagnosed I ate all sorts of bran, wheat and cereal that was fortified with iron - which explains why my iron numbers were much higher then. I am looking at supplementing my iron without vitamins. Now my ferritin...
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I want to thank you everyone for their feedback. It really helps. Yesterday, I receive my celiac panel results. My Tissue Transglutaminase IgA dropped to 121 Units from 150 Units 3 months ago. Still high but at least it is going down. My other numbers improved, such as my Tissue Transglutaminase IgG dropped to 14 which is normal. However, Gliadin IgG...
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Thank you cyclinglady. My one concern is that the iron levels have been on a down load trend. My hemoglobin has been pretty consistent over 5 years - around 13.5 the RBC also looks around same over the past 5 years - around 4.5. Iron seems to range from 56 - 78 in the past 5 years. So I guess this might be my norm. I am waiting on my antibodies results for...