BRUMI1968

I got that email as well. Thanks so much. At my local co-op, they only sell the huge container of the chickpea variety, but the small containers of the others. It is something I'd want to test out - I don't really eat legumes either, but it is fermented, so it should be better than non-fermented.

Well you're not making this very easy now, are you?

what about oils? what kinds of oils do you eat?

what about sugar?

what about acid/alkaline balance?

what about exercise?

what about stress?

any of those sound like maybe a direction to investigate?

are you getting enough water?

are you eating sugars and sugary fruits/starchy veggies? (feeds yeast/bacteria) - makes me bloat

hidden dairy/soy/gluten/egg?

If you eat lots of fiber, make sure you drink lots of water.

anyway, probably not helpful....but those are my thoughts.

Sherri

I have Celiac and ITP (Idiopathic thrombocytopenia purpura). The ITP is when one does not have enough platelets - it's autoimmune. I'm no longer on any medication and I'm just fine. But you should have your son checked - a CBC will do the trick (Complete Blood Count).

zero sugar

zero fruit

zero starchy veggies

lots of (if you can tolerate)

coconut oil

garlic

onion

RAW sauerkraut

I find once I start eating fruit or sugar again, the problems come back. For me it is both bacteria and yeast, though always sort of subclinical -- I can tell I'm building it up just in the way I smell and feel.

Anyway, look into the Body Ecology diet?

There was a very recent thread on SBBO which I started (a couple weeks ago?). A couple folks said they felt better with their antibiotics. I had read that small bowel bacteria did not do so well with antibiotics - could make it worse in the long run - but the actual folks who had used antibiotics said they felt better.

I don't know if I have this, but eating sugar and taking hot showers bloats me up, so I thought it might be yeast or bacteria. My method for dealing with it is lots of coconut oil, no sugar/grains/sugary fruits/etc, and lots of probiotics and prebiotics. But like I said, i don't even know if I have this. I'm one of those people who will only take drugs as the last resort...

Check out the other thread. Do a search, or search for all posts by me and see if it turns up...I think it was called SBBO. Good luck.

I don't know how expensive the blood test is...I had insurance when I got mine. I will say that lots of folks with Celiac Disease have troubles with yeast and parasites as well, due to years of faulty digestion.

You could do a candida cleanse diet, and then add back gluten - then if you get had you'll know to be suspicious of gluten. You could go gluten-free because it's healthy in other ways: less mineral loss, lower incidence of diabetes, etc....(grains are not all they're cracked up to be, no pun intended).

I don't know. What I do know is that if you do have Celiac, and you continue to eat gluten, you are putting yourself in great danger for developing other illnesses, up to and including cancer. Lots to consider, of course.

I'm pretty sure all the misos have soy, and that the rice or barley or chickpea is just the medium. However, I've got an email into the company. Unless you're telling me the packaging says it does not contain soy?

Just got my Interolab results back, and turns out I am sensitive to soy (don't really eat any, so not a huge concern...but was hoping for the miso). Oh Well!

Thanks to all.

Along with giving up grains and beans (and dairy/meat if you are going raw vegan), the eating of the foods raw leaves the enzymes in tact, instead of destroying them. Also:

water

fiber

vitamins

minerals

I've noticed right away the water content in food. I am so much more hydrated now than I was. Also, my digestion seems so much better.

Maybe when your digestion gets stronger, you can think about raw foods again, if you're interested.

Good luck.

WOW! I guess there aren't probably pull dates on things like tea. Anyway, if it still tastes good......

Good drinking.

By the way, I did discover there are three or four Tazo teas that have gluten. I forget what they are, but if you search the forum for Tazo, if you drink it ever, it will tell the kinds with gluten.

Whew! I just checked and my Celestial Seasonings Chamomile Tea says Gluten Free. It is the old packaging, where it has the label gluten free under the 100% natural box. The new boxes have Gluten Free on the bottom. Nonetheless, tell us what the company says. Thanks.

Open Original Shared Link

This site is pretty interesting. I like its glyemic load rating, and its completeness rating. It also rates protein amino acid profiles, so one could combine things to get the full spectrum if they are not animal eaters.

the spiralizer is still not here. I didn't go with the saladdco, or whatever it's called, because too many folks said it was shoddy. So I bought another kind...and it's not here yet. I mean I ordered a month ago! I keep forgetting to call them. Thanks for the reminder.

You can run zucchini through the mandolin into the thinnest slices, then cut them into strips like futtucini. This works really well, and you don't need a spiralizer. So far, the raw spaghetti has been my family's favorite. They also really like the corn tortillas (but I didn't, so much).

I'll post when I get the spiralizer.

I wonder if it isn't a bit of a misconception that whole grains have a lot of fiber. For the most part, other foods out-do them. Beans are high in fiber for sure, and some fruits/veggies are pretty high as well.

i.e. avocado 11.4 grams; bread 2 grams.

According to the mayo clinic's listing of high fiber foods, there are many fruits/veggies that have better fiber content than bread. Bran and oats are good, but really, other grains seem pretty inferior. And we can't have either of those anyway, right?

Open Original Shared Link

another list: Open Original Shared Link

I'm looking at a graph in "Paleo Diet for Athletes" by Dr. Cordaine that says the total fiber content in a 1,000 calorie serving of 3 refined cereals is 6g, 8 whole cereals 24 grams, 20 fresh fruits 41 grams, and 20 non-starchy vegies 185 grams. Granted, most of us can't imagine eating 20 veggies a day...but of course his point is that calorie for calorie, fruits and veggies are better sources of fiber.

I'm going to start keeping a food diary along with fiber, calories, sugars, etc....so I'll see what comes up with that as far as fiber goes. I've just gone with raw food and I'm wanting to make sure that I'm getting enough of everything.

Good eating!

Got my Enterolab back today. Well, I've got two copies of DQ3 and one copy of DQ2 (subtypes 2 and 8). I called my Mom today, and my sister. Seems if you've got two copies of the gene, then both parents gifted one to you. Thus, my mom can no longer assume out loud that it is my father's side that gave me my propensity.

I'm hoping this spurs my mom and sister to get tested. My Mom has gone somewhat gluten free when her hubby got diagnosed with DH earlier this year - so she thinks she's gluten free, but she's not. First off, they eat Quaker Oats no matter how much I tell them about not doing so. Plus, my mom loves beer. She may have cut back, but she is in no way gluten-free. Plus, she thinks nothing has changed for her, so that means she's fine. I realize it's possible she does not have celiac disease; but I wish she would find out so I don't end up at her bedside watching her suffer with intestinal cancer or something.

Anyhow, hopefully my sister will get tested since she had every symptom in the book except thinness. She's recently got on thyroid meds, so lost 20-30 pounds, and is feeling okay about herself again. She was so depressed before, she wouldn't even consider helping herself. Maybe now she will.

Just to sum up rest of testing: okay on the fatty stool/absorption issues (260 units 300 minimum), the egg (8 minimum 10), the casein (7 minimum 10); barely okay on the yeast (9 minimum 10); and not okay in low numbers on the soy (12 minimum 10). My only concern is that I was already not eating dairy or soy - so not sure I would have any antibodies anyhow. If I add back any dairy, it would only be for special occasion, raw, and goat. That'll make it few and far between.

Happy Monday!

I'm totally with you. My dad (and I'm 39 years old) always acted as though I was just being difficult or something, exaggering things. Then he got diagnosed with it too (DH - the skin instead of the digestive tract) and now he acts as though no one understands him. Just two months ago he was harassing me. The irony is, he's not as careful as I am, so he's already glutened me since he went gluten free (he insists on eating Quaker Oats, even though I've told him over and over they have gluten). Arg.

So now I've gone raw. I figure, if you're going to be a weirdo, just go all out. Raw food all the time, that's my motto. I'm taking raw food to Thanksgiving dinner. Ha.

Good luck.

p.s. sorry to barge in on teen section. I was a teen once...long ago.....

I think it took the whole first day, and part of the second day to really show up, or maybe as long as a week.

I keep thinking I can add back the sugar (it's been a month), and so far, no can do. I have been able to add like one fig per day, and I've eaten a banana or two, but for the most part, zero zero zero. They say three months to six months...I don't miss "sugar", but I do miss fruit, and I just bought the bees-knees blender and can't do yummy fruit smoothies.

STEVIA, though, can help you. It is an herb not a sweetner, but it sweetens tea. Just don't use too much or it gets weird tasting. Some folks react to it, not gluten but something else, but most folks handle it fine. It seems expensive, but it is only used by the drop, quite literally. So try it out if you decide sugar-free is helping.

Good luck.

Welcome! It's great that you work for a health care provider aware of Celiac Disease. I've told my therapist (he has Celiac too) that anyone with anxiety disorder should be tested. I really believe that. I have had zero panic attacks since going gluten free (well, except when I get glutened...)

Anyway, hope the board will be of help to you; I know it was for me, especially at the beginning. Glad to have you!

How's your liver? In Chinese medicine, the liver being stressed can wake us up earlier than need be; and cause headaches. Just a thought. Dehydration is another. But I've never had migraines. You're not eating aspertame are you? -- that's a known trigger. Wish I could help more. Good luck. -Sherri

If you can tolerate flax, here's an interesting way to get fiber in your diet:

make "pancakes":

flax seeds or flax meal (2 cups seeds/3 cups flax meal

liquid coconut oil (coconut oil melted near a burner or in the dehydrator) (2TBS)

maple syrup (1/4 cup - 1/2 cup?)

water (1/4 cup)

You mix amounts of these (really, it's quite flexible, I gave hints but it's not like bread or cake - it's flexible) until you get a slightly stuck together substance. Form it like a pancake, and eat it with fruit and maple syrup. Yum. It tastes really good; the texture is odd, but workable. I think it's funny -- I like this stuff a lot, and since I've been eating it every day, I've been extremely regular. I keep it in the refer.

If you can't tolerate flax, try avocados or figs or other tasty items with lots of fiber.

I'd notice two things:

1) dairy. this bloats me in an instant

2) sugar. this feeds bacteria, which can cause bloating.

quitting sugar is what finally stopped my bloating, after 37 yeas.

sauteed veggies and poached egg is good. I like zucchini. Also, sauteed napa cabbage with salt and pepper with egg on top is really good too. Sounds weird, but I figured it out after having asperegus with poached egg at a french restaurant once.

asperagus

zucchini

brocoli

cabbage

all good

Just so you know, ACIPHEX causes B12 deficiency as a side effect. You might look into getting B12 w/ folate shots in the rumpus until you feel better. They aren't too terribly expensive, and you can do them yourself.

Also, you might look into Cod Liver Oil pills for your vitamin D - it is more natural and easier to absorb than other supplements. If you're not absorbing your nutrients well, of course, supplements will go right through you.

I'd take digestive enzymes with meals, and consider Betain HCI as well (increases stomach acid). I was not digesting anything at all until i started doing those things.

good luck.