BRUMI1968

I ditto the other folks -- AND note that dairy should probably be stopped too. Lots of folks with Celiac Disease have difficulty with dairy, in part because the lactase required to digest lactose (the sugar in milk) is secreted through the very parts of your small intestine that are squished and not working so well. Lots of us are also reactive to casein (the protein in milk). I think all folks who try gluten-free who have any remaining issues, should go dairy free for a spell too, see if that doesn't clear things up.

I know when I quit dairy, my constipation virtually vanished.

Anyway, good luck to you. Remember that doctors can't know everything about everything, and in the United States, knowledge about Celiac is WAY BEHIND THE TIMES. (My doctor told me I was "mildly" celiac, which isn't even possible - that would be like being slightly pregnant.)

Good luck.

I'm in college, but I live nearby, so it is not the same as living on campus. Also, I'm old (38). I can't imagine living on campus in the dorms, and/or having to eat either the food in the cafeteria, or at the little stores. I think the only gluten-free things in there are peanuts. I've met young students with celiac, and wonder how they do it.

We have college clubs - have you thought of starting a club for celiac or food allergies or something like that, where folks could get together and chat, and try to gain some power in changing what your college offers folks to eat? I haven't, but like I said, I'm more of a returning "adult" who is home most of the time.

My college town is also great about food - with two or three health food stores, and even the "Fred Meyer" (all around store with food etc. like a walmart) has a big health food section with its own gluten free section. gluten-free restaurants, however, are at least 60 miles away in Vancouver B.C., or 90 miles away in Seattle (I live in Bellingham, WA, and go to Fairhaven College of Interdisciplinary Studies -- my "concentration" is "Natural History Writing".) I only eat out at one of two restaurants in Bellingham - they are both small - and I know the chefs in them both. Problem is, they're high end, so eating out is not for every week!

I find that I do best if I don't eat gluten free replacements for gluten foods. I just eat fruits/veggies/meat/and nuts, until I remember that nuts give my colon the heebee jeebees. Of course doing no beans/grains/dairy/gluten/soy makes things extra difficult for me...imagine if I were still a veggie!

Anyway, check out the college club thing - I know our clubs get 100 bucks or something to manage themselves/make posters or whatever. You guys could really kick some administrative butt about having gluten-free options on campus.

I've read on this forum that ADA (American Disabilities Act) covers celiac disease. This means that w/ a doctor's note, you can take your own food, for example, on airplanes, if the place does not offer celiac-friendly food. I do not know if this would apply to restaurants, but I assume it would. I also assume that in order to get your ADA rights, you'd have to have a copy of the law, and a note from your doctor. Not necessarily worth it -- but maybe in some instances, such as flying.

Good luck.

I don't know about miralax, as far as being gluten free. I'm glad to hear you're feeling better.

I always had constipation - and found that it was dairy giving me the trouble. You might try quitting dairy for a few days and see if that helps. I know it's tough to give up even more stuff...but it might be worth it.

I also eat prunes now and again if I'm having trouble, though really it's worked itself out mostly for me now that I'm dairy/gluten free.

Good luck.

Be aware that lactose isn't the only problem in milk. lactose is the sugar; CASEIN is the protein, and you may have a problem with it as well. You might want to try dairy free for a spell and see if you feel better.

I know nothing of DH, so I can't help there -- but have you checked all your face/hair/tooth products? What about your laundry soap and dishwasher soap. (I was mortified to find out my dish washing soap had wheat in it a few months ago and had to switch.) Dryer sheets? I don't know.

Good luck.

I think that when I quit wheat and dairy two years ago, I noticed a change in my periods - even easier than before (I've been blessed with "barely" periods for some time now). Lately I've been getting BAD cramps for the first day (I'm a bit over a year gluten-free) -- but it could be the amount of eggs I'm eating. I once read a theory about how women should not eat the reproductive byproducts of other animals. So this month I'm going to experiment with the egg thing and stop eating them the week before my period.

Also, when I first went gluten-free, I thought my periods actually increased in flow a little bit the first two or three days. I thought it might be hormones evening out. But now they are back to practically nada...so much so that I can't use tampons.

Anyway. Yahoo for you! Periods shoudl not be miserable...they are supposed to be a miracle. Maybe living in a culture that frames them as punishment and a curse adds to our problems.

-Sherri

I've spent much of my life in the fetal position, or crawling across the floor to the bathroom, so full of air and inflammation that i couldn't bear to stand - and then go sit uselessly on the toilet (was constipation, not D). At work I spent hours in the bathroom hoping no one would notice as I cried, hoping to get some relief. Ouch. What was the trigger 9/10 of the time? PIZZA. SPAGHETTI. These were the two biggest ones. As a child I ended up throwing up as much pizza as I kept down.

At first I thought it was cooked tomato sauce. that does bug me. then maybe garlic, which also bugs me. I only found out a bit over a year ago that I have Celiac Disease. It all made sense. Now I can eat small doses of tomato or garlic, but not too much (maybe even just from memory). I also can't do dairy; even the smallest amount gives me Constipation quite badly.

BUT...I didn't react every time I had pizza. In fact, I didn't make the connection for years and years.

If you have insurance, you might want to get the blood test for Celiac -- then you'll know you need to stick to gluten-free for your life, like someone else said, even if you have no symptoms ever again. If you don't have insurance - try going gluten free again, and see how you feel. OR, go casein free for a week but eat gluten - to see if it might be that. Some of the same symptoms occur.

I've blathered. My point: you might not react every time to gluten - sometimes it might be cumulative (like it is for me with chocolate -- good for a while, then bam). Take care.

I think that "smoke" flavor is often made with gluten. That is part of the problem.

Boars Head? Yum. I like their horseradish.

We have a local pork company, Hempler's, which is great, to buy locally. They make a gluten-free uncured bacon - but most stores don't carry it and it's more expensive than Beelers.

Uncured Bacon is better than cured bacon, as well. Aim for that. It's slightly different, but once you get used to it, it's way better for you.

I watched "Go Further", a Woody Harrelson documentary about a bike ride he took from Seattle to Santa Barbara. They had a raw food cook on board their support bus, and ate some interesting food.

On his website, there are recipes. the fruit and paint is really interesting -- I've made it and it's good. If you can stomach nut butters, it's a nice breakfast/lunch/dinner/snack. Check it out:

voiceyourself.com

My understanding is that neither dogs nor cats (or ferrets) are designed to eat grains of any kind, let alone dried up cooked flour from grains.

I feed my dog raw meat (and veggies), so I don't have to worry about industrial contamination. it's not for everyone, but it has really helped make my dog healthier. Cats, especially, do well on raw meat since they are carnivores (dogs are omnivores). Anyone who wants to feed raw needs to look into it - there are considerations. Like any diet, it requires thought.

Also, Innova makes a good brand of dry w/o grains. it's a bit pricey and must be bought at pet stores of repute, but it's pretty good food, and you feed less of it than other foods.

(Raw food is the only way I was able to cure my dog's incessant and asphyxiating farting - honestly, raw food, no smell. the couple times we had to do dry for some or other reason, insane farting.)

Good luck all!

Beelers. They even treat their piggies nicely, which is a must for me. The pepper bacon is the best.

Also possible to help: quit or diminish sugar. If you've got yeast overgrowth in your intestines, this might help. Also, dairy might be exacerbating your problems. Try giving that up (if you haven't already). These two things helped me - I have a flat tummy now, after about 28-30 years of having preggers belly. Good luck.

-Sherri

I have Celiac disease, but no DH. My stepdad has just been diagnosed with DH.

1. does this mean he has celiac, or can DH be separate from that?

2. is it like celiac in that a molecule of gluten can cause reaction?

Thanks, guys. I need to do some research on DH so that I can help him cope. He's probably not going to do the diet in any complete way, but I suppose getting him on the right track might help. Thanks.

Wow. I wonder what she was up to. Make sure to put some salve on the paws if you can. They make some nice ones for dog's paws (since they can lick it, it has to be edible). Our dog once stepped on a burning firecracker ember (not afraid of firecrackers) and he had to wear a shoe on that foot for a week while it got better. He sure hated that, but it helped. Consider shoes if the paws need more t.l.c. than they can get with her walking around.

Yahoo anyway.

I asked about the dairy because even the tiniest amount gives me C. I'd also make sure you're getting enough oil in the diet, healthy oils like olive, avocado, nuts...(nuts drive my intestines nuts, but their oil is good). I read someplace once you need liquid, bulk, and grease: water, fiber, and oil.

Good luck.

Do you eat dairy?

I'm unfamiliar with the drywall issue. Do I need to be at all concerned doing some remodeling in my house with drywall? Thanks.

Well, the vet called and of course, just like me, there's really nothing wrong with Emmett clinically speaking. Don't get me wrong - I'm glad. But you know how it is to finally "know" what's wrong - it's a relief. I guess in a way it supports my thoughts that his gut has just gotten out of balance and he is sensitive to yeasty-beasties and bacteria right now.

So, with no obvious signs of inflammation/infection, and no indication we have something outside the digestive tract going on, the vet thinks we need to change what's in his gut - we agree on that. So I'm starting him on these probiotics when they arrive UPS (described in previous post).

The vet also wants to put him on Science Diet ZD food, for doggies with alleriges. This seems like a real step backward to me, since what Emmett eats is already super simple, and ins't dry dog food. This science diet stuff may well keep dogs from experiencing itchy skin and the like, but its ingredients are inumpressive: "starch", "iodized salt", "powdered cellulose". How can that be better for him than lamb and sweet potato or beef and squash or something?

So I'm going to try to repair his gut with pre and pro biotics, and maybe take him off the LAMB he has been eating to see if that's it. Maybe I'll add in some white fish as a protein source. He hates turkey in all forms, and only likes chicken cooked...he just seems healthier on the raw food, but I'm limited then in what types (lamb if it's okay, beef, and the expensive ones: rabbit, ostrich, buffalo, etc.) I guess I'll figure out some system and stick to it.

Sometimes it's tempting to go back to dry dog food because it is so easy - but I don't think I can bring myself to do it.

I'll keep you all posted. If you have any other ideas about fixing up the poop shoot of a slightly off kilter person or dog (often the same cures), please let me know. Until then, he's on the potato and beef at half quantity. hey, do you think over feeding can lead to these bacteria build ups and good flora breakdowns? Thanks.

My old dog would expel her own, whenever she got nervous IN THE CAR! My word! My little Emmett, now he's never had a problem with them for some reason, lucky us.

Man, there is nothing like that. Though these farts he's having, they smell nothing like it, but I'm telling you we watched a two hour movie last night and the room smelled the entire time -- it was either the longest lasting evil smell, or a constant leaking from him. We should sell it to the military.

Anyway, I'll keep you all posted.

Well, got his poop results back - nothing too strange. No parasites other than TINY amount of toxocera canis, or something like that (will get medicine); but doc does not think it's likely that's causing symptoms - more likely that is in the background. No to giardia.

Blood results don't come back until tomorrow.

He also said he had LOTS for bacteria in his stool, but there was a good mix - none being overly dominant and that is what he'd expect to see. No red or white blood cells in the stool.

No temperature. No swollen lymph nodes. No heart murmur (sometimes has the faintest of heart murmurs). Looked fine for the most part.

So far, just like me, gets a clean bill of health despite the fact that he feels terrible. Hopefully the blood will give a clue.

My idea for now is to fast him today (if he doesn't go on his walk) or feed him tiny amount of sweet potato and lamb (unless that continues the gas, then try something else).

Also, I'm expecting this stuff to come in the mail called Gastriplex which has probiotics, DGL (licorice), slippery elm, lactobacillus sporongenes, gluamine, saccharomyces boulardii (beneficial yeast), glucosamine, and quercitin. Hopefully this will help get him back into balance.

I'll let you guys know on the blood. Poor doggie, he can't even type on the celiac board and tell all about his terrible gas and D.

Thanks guys. We leave for the vet in about 20 minutes (it's five minutes away) -- and I even collected his scary dookies this morning, so they'll have something to fish around in. Fun stuff.

I forgot to mention what he normally eats, and if he ate anything weird.

He normally eats cooked lamb w/ its innards...and sometimes a bit of veggies tossed in there. i think the day before he had his blow out he had lamb and RICE (brown sweet rice slightly overcooked) and zucchini, all of it cooked.

He used to eat raw food, but his breath has been smelling really awful for a spell - like REALLY awful, like what we call Poop Pennies - very metallic. when we switched to cooking the raw food, it got better temporarily, but then got bad again.

I'm frustrated becuase I try to hard to give him the right food. Our last dog died of cancer and I vowed to do my best to keep cancer from this dog's life - so he eats mostly human grade food, either raw or cooked, depending on what he's liking or tolerating. I think raw is probably the best way to go.

Anyway, sorry to blather, but suddenly realized I hadn't mentioned food.

He is not a dog who typically eats things that aren't "edible".

One others symptom: he likes to eat the detris of a cedar or douglas fir tree rotting.

Okay. So a couple days ago my dog gets this crazy projectile pooping situation he's none too happy with (and neither were we). He's pretty lazy, but it's also hot, so it's hard to say if he's lethargic due to 80 degree sunshine, or to not feeling well.

So, we fast him for 24 hours, though he usually only eats once a day anyway, and then we only feed him a couple small boiled red potatoes and a tiny bit of chicken. (I forgot to say that when he had liqui-poo, it had rice in it. I'm pretty sure the rice in it was actually rice and not worms, because I almost never feed him rice but had fed him rice the day before.) Next day, slightly firmed up, but still very yellow and weird...and horrible smelling. Also horrible smelling gas.

So, here's the weird part. We're walking around the house and keep smelling this odd smell, like burning rubber a little bit. We can't find the cause, and finally settle down to watch a movie (the Miles Davis Story). My partner goes out to go pee and when he comes back, says he smells the smell in the room we're in. So I sniff the dog's rear end. Holy moly. Not a fart, but his bottom smells WEIRD - like burning rubber almonds. I actually got up and googled arsenic it smelled so weird.

Any ideas? (He's still not right today...)

Other symptoms: his skin on his tummy/inner thighs has turned dark dark black.

Oh yeah, he also drank 1 teaspoon of cayenne pepper in room temp glass of water for eight days. I think if you look up home remedies or something, you might find some good ieas.

He's not had his removed, and keeps them under control in these ways.

My partner got them a few years ago after having a bit of a midlife crisis then drinking himself into virtual death (was hospitalized, etc....but is alright). After that, he had them.

His are helped by: reduced stress (obviously), using cottonelle moist wipes instead of t.p. (this makes a HUGE difference for him), taking fiber supplementation (right now it's flax seed in o.j.), and cutting back on coffee.

Hope that helps. Good luck. I think I got the start of one once, or a mini one, and it's no fun at all.