BRUMI1968

I've done grain free, and it works best for me. It is really hard to maintain, however. I use sweet potato for that feeling of full, and recently added back regular potato after not eating it for two years.

I'm also, though, typically vegan and to be honest, this is catching up to me. I am adding back some meat right now because I'm anemic and it's hard for me philosophically to grasp that taking supplements made in a lab someplace could possible be better than eating GRASS FED humanely raised meat once a week or so. That said, I'm struggling with it. I'm also an aspiring Buddhist, which adds to the problem philosophically.

I think the grain free thing just needs a way to make enough calories. One way is to add quinoa or amaranth to the diet - they are not grasses/grains, but we call them that as it makes them easier to talk about. They are actually seeds. Amaranth especially helped me when I first went grain free - it tastes a bit odd but you get used to it. I have never in my life been more "regular" than when I had amaranth every morning for breakfast.

I'm currently on the low fodmap diet, for similar reasons to why you're on the sibo diet...it is pretty interesting if you want to google it. It separates out types of sugars and then through elimination and adding back, you can see which of these highly fermentable sugars you might have troubles with. Already being vegan I did not have to worry about milk sugar, so mostly I had to quit beans (which I know I do better w/o anyway), onions, Brussels sprouts (totally my favorite), cabbages, zucchini (ate a lot of this) and I think that is mostly it.

Anyway, I'm blathering on due to the crazy low-oxygen anemia brains....but try adding quinoa, amaranth, or sweet potato for feeling full. Cream of cauliflower soup can help too (just cook the cauliflower and then put it in the blender, it creams up by itself, or add some avocado)...if that's allowed on sibo. Good luck to you!

-Sherri

Well, started out nicely. Quit all the high fodmap foods and the bloating and passing of gas did diminish greatly. Then one day I decided that salsa didn't have anything I couldn't eat (I'm having a bad case of anemia right now and its affecting my brain capacity) so I ate some. About 20 chips into it I'm like, "wait, that's onion". Next day, bloat city. Anyway, I'm still going to try to add back onion separately in a couple weeks.

On the anemia note, ate some steak today - first time in two years. At first it felt like a rock in my stomach, but I feel okay now. I need to find my digestive enzymes ... they're around here somewhere.

Anyway.....

I'll post if anything interesting happens.

Umm, thanks but I don't need to be putting psychotropic substances in my body with all the sensitivities I have- thats just asking for trouble. Might wanna retract that statement

I hear you. I don't partake myself. But I don't want to "retract my statement" as it is a legitimate option for folks with problems of weight gain and stomach problems and this board is about getting all the information you can, sorting through it, and finding what's best for you. So I leave the statement standing, but respect your opinion. Take care and good luck.

Thanks so much. I don't do dairy now as even the smallest bit of it makes me have constipation for days. Also, I'm mostly vegan so it fits well with my other dietary philosophy. And lastly, I don't even miss cheese that much. Thanks for letting me know that though - I know lots of folks struggle with the dairy thing and wish like crazy they could eat it. Once I stabilize, I'll take note of which dairy I can eat on low FODMAP and try it out if the situation seems right.

I'll check out that website. Thanks.

-Sherri

Hi all. I'm about to start a low/no FODMAP diet tomorrow. (I wanted to eat up the Brussels sprouts and zucchini I had just bought first.) I am thinking of doing ZERO high fodmaps for a couple weeks, then adding each family in one at a time. Is that reasonable? I don't have the books and my library does not have them either, but I do have a list of foods that should be limited and those that are allowed.

I already don't do gluten (obviously), soy, sugar, garlic (bloats me), dried fruit (stinks me right up), dairy...and I eat very little grains. Rice makes my teeth hurt (demineralization?). Corn actually works okay for me as a grain, so I might go with that if potatoes start to make me crazy.

Symptoms are not severe, just bloating and gas. Those were always my main problems, along with C, and the bloat has only ever gone away on the body ecology diet (which is very hard to maintain) ... so I think the low sugars might be key.

Anyway, any advice would be welcomed.

And also, I don't know where you live or if this would help you, but I have heard of folks using medicinal marijuana for appetite and nausea problems. I don't know how your upper GI symptoms manifest themselves, but if all else fails, you might look into it.

I don't know how tall you are, but I do think it makes sense to really think about whether or not you are "too skinny", or if you are just lean. Again, I have no idea what you look like or what your height/weight/body type is... but there is plenty of thinking out there that being a bit on the lean side can be good for you. Too thin, though, does cause problems.

I would try some Qi Gong or Tai Chi for exercise. It's harder than it looks, works your core muscles, but also has a real body-mind connection and relaxing quality that can help with digestive disorders, rather than irritate them. Neither of them is going to have you burning a lot of fat - it is more about toning.

Just food for thought.

It might be related, but it might not.

I got bad vertigo a couple years ago. Just out of nowhere (typically how it comes on) I turned over in bed to get a glass of water and the whole world tipped around and started spinning. Whoa, I thought. Thinking it was over, I got up to go to the bathroom and as soon as I started to lower myself down (I'm a lady, after all) I lost my balance and had to put my hand out on the wall to make it the toilet w/o falling over. Getting up was the same way. This went on, getting fewer and fewer attacks, for a couple days. Then I felt weird for a long time. Then I got the vertigo again, etc.

I do believe I have BPPV (Benign Paroximal P..... Vertigo) which is an inner ear thing. It could be a coincidence with you that it started up with gluten again....but it might not be, as vertigo can come on from more things than BPPV. You should go gluten-free again and see if it goes away. It took me WEEKS if not over a month to get rid of the weird feeling you're talking about in your head. Every time I walked through library aisles or whatever it was worse (aisles of tall narrow places) and walking through doors or tunnels. Then you also get the fear of another vertigo attack. My stomach did not get upset; some folks do get that; but nonetheless, I lived in fear for a while. I ended up getting the whole thing again a few months later, and the recovery was very similar. Now it's been almost a year. I hope I don't get it again, but who can say. I only just started allowing myself to lay on one side in bed (usually one side is stronger for bringing on the vertigo than the other). Yuck. Vertigo. Just wrong wrong wrong. And it's so hard to explain to anyone how disconcerting it is.

Take care and good luck.

Beets and blueberries can also cause the black poop. Or very dark anyhow. I once called the doc's office saying I had black poop and it was the first question they asked - did you eat beets. Sure enough.....

Good luck.

We are new to celiac and going gluten-free. My 3yo just tested positive last week in the bloodwork and had the endoscopy today; GI saw a lot of celiac markers in her instestine (irritation, scalloping). We have been removing a lot of gluten in the past 10+ days but aren't 100% there since school will take a little time to sort through all the art products, etc. My question.........

Once she is 100% gluten-free and her intestine is healed, will she always feel pain if she's glutened? Is she just used to the pain now or will the body be over-reactive to it in the future when it's not an almost-daily occurence?

Thanks!!!

It seems like most of us get more sensitive to being exposed to gluten the longer we go without it. I can say that for me, now when I get bloating/constipation pain like I used to, I'm shocked that I could deal with it so well for 30 years. You do get used to constant pain; and once you go without it, it is hard to get it again. But it does help keep us on track.

I hardly ever get pains now from gluten or other dietary factors, so you can be assured that if you get this thing handled, her life is going to be so much better. Good for you for figuring it out and making that effort.

I didn't read all the responses, but wanted to say that if I eat gluten, I can feel it within minutes. I get anxiety symptoms almost instantly, tingling in my extremeties, can't concentrate on even people I'm talking with, intense fear and panic, and then end up with digestive symptoms w/i two hours. You can feel it the minute it hits your mouth I bet, if you really get in tune with yourself. Since it is an auto-immune reaction, it is happening as soon as gluten molecules enter your blood stream.

No matter what any doctors say - they are aggregators of scientific study information/averages/probabilites, not of life-experiences of their patients - you can react almost instantaneously. (Not to say I don't like doctors for things like broken bones and stitches.)

Hi. When I was diagnosed three years ago or so, my hubby and I shared the kitchen but with some rules. All the dishes that had touched gluten hung out in our sink the mud room, instead of the kitchen, and got washed there, with their own sponge, etc. We replaced our toaster and he did not eat toast (not much into toast anyway) and I had my own cutting board. We got rid of all teflon, etc.

But, in the end, we ended up with a gluten-free kitchen. It was hard to keep track of. Certain things are easy for gluten in the house: beer and pizza come to mind, because they are easy to keep track of. Tinkyada gluten-free pasta easily tastes as good as wheat pasta and would be a no-brainer to get him to eat. If he loves bread, that can be an issue.

You could just ask him to try it out for a two week period maybe? Beer and pizza okay, or anything else that seems easy to keep track of - if he loves french bread or something he could have his own cutting board and knife and space where you're food does not go. I don't know what your place is like - if the kitchen is small or not.

I feel I've not been as helpful as I set out to me. We now don't have a gluten-free kitchen - to be honest it's becuase we've started getting some our food from the foodbank, and you can't be too picky at the foodbank. So we're just super careful - have a separate dirty dish area, always wash the dishes separately, and use a separate sponge. He never takes the bread, so we don't have to worry about that, and we don't have an oven so we don't do any baking with flours.

Good luck to you - I know EXACTLY how you feel because I hate cooking when I'm a guest at someone's house.

Gluten IS on oats, unless they are grown and harvested super-carefully. Wheat sprouts in oat fields all the time, and the grains are virtually identical and cannot be separated. Even with certified gluten-free oats, 10-15% of celiacs don't tolerate them. The medical recommendation is that celiacs who eat oats should go back for another biopsy once they're added to the diet to be sure they're not doing damage.

Sweet and sushi rice are OK.

Here's the thing. The low amount of damage isn't as trivial as your doctor makes out. Autoimmune disorders are progressive and you're young with your whole life ahead of you. Anemia isn't good for you and many celiacs end up with osteoporosis and thyroid trouble. Don't mess up your body by being cavalier about your celiac.

sushi rice is okay if you're buying it uncooked, but there might be a problem if you're eating sushi out at a restaurant. I used to eat at a great sushi place b4 being diagnosed. Then I was diagnosed, and I asked them about a few things. Some of the sushi rice prepared has vinegar or rice in it - anyway, there was a language barrier, but I felt very uncertain that prepared sushi rice was safe at a restaurant.

Dairy constipates me - I mean one teaspoon of butter will hit me the next day. I don't know if you do dairy, but it is a common culprit as well.

I did read a good article once on what is needed to have good bowel movements: bulk, water, lubricant. Are you getting enough oil in your diet? or fat rather?

I get C come and go - but had it my whole life from when I was 2 until I got diagnosed three years ago. It is WWWWWAAAAAAAAAYYYYY better, but I still fall victim to it. Dairy - in less than a day. Bananas do it to me, if I eat more than one a day, or more than a few days in a row (smoothies just aren't as good w/o bananas).

I agree with the magnesium, and vitamin C helps too. An Ayurvedic herb called Trifala also helps.

Good luck.

I know some tylenol is gluten-free and others not - like slow release or whatever it is called - I guess probalby not slow relese maybe rapid release - is NOT gluten-free, but "extra strength caplets" are. Avocado is really fatty and can cause fatty-related pooping issues, at least for me. Anyway, good luck in figuring it out. Sorry that happened to you!

Hi. Sounds like me sometimes for sure. It's hard to say what's causing the "grumpy" - hormones, adrenal fatigue, etc. I suggest, even though it sounds crazy, some Tai Chi or Qi Gong. I know it seems like you don't have the time to do it (about 30 minutes), but it's well worth trying it out. You'll gain back the time by being less grumpy and more relaxed.

If you do have adrenal fatigue, some things you can do are to 1) get to sleep by 10p.m. every night; 2) be sure you're getting enough minerals and vitamins and such; 3) close your eyes several times a day, for like 5-10 minutes; take naps. If you google adrenal fatigue, you can learn more.

Another thing is that in Ayurvedic Medicine, it is the Pita energy that gets angry and frustrated. You can help this out by not eating spicy foods, keeping cool, drinking cool drinks, looking at nature, relaxing, resting, etc. You can probably google this too -- but it would be wanting to DECREASE your pita. I get high pita energy in the summers.

Take care. It's really hard at first figuring out what you can and can't eat/feeling like crap and finally knowing there's a light at the end of the tunnel but having to find it/having a family and animals and duties that don't know what you're going through/etc. It'll work out.

For me it was light night and day - DAYS off gluten, no more anxiety attacks. Minutes after being glutened, anxiety attacks. The thing with GAD is that it is for no particular reason, right, as opposed to other forms of anxiety? Just for some reason you have anxiety issues: for me, attacks of sweating palms, tingling skin, intense fear, stomach ache, having to poop emergently, etc. It would last between 1 and 20 minutes or so. At some points in life it was so bad I was on valium all the time - low dose permanently.

Anyway, quitting the gluten made me 100% GAD free. As to why - I do now know. It cannot be vitamin/mineral deficiency being overturned in a day or two of quitting gluten - so my guess is that it's a nervous system reaction. The body is so complex, that for us to figure out exact mechanisms for everything is just unreasonable.

One thing I would say is that if you are feeling strange about not feeling the anxiety, that is probably something that talk therapy can help with, if you're open to it. I saw a Jungian counselor for years (he had Celiac, in fact, and is the one who urged me to get tested) and we talked a lot about my health issues as part of my overall coping mechanisms and way of being in the world. It really helped a lot.

My CURE of anxiety attacks was so profound upon gluten free that I tell all my doctors that if they have any patients at all with generalized anxiety disorder, they should give them the celiac test. I have had zero attacks after about 2 weeks gluten free...well, I had two, but both were after being glutened.

If you have noticed it helped so far, go with it. It profoundly changed my life to get rid of those anxiety attacks. Good luck!

It's great to use a toothpaste like that for pain, but it does not address the "why", which is something you might want to figure out. A month or so ago I got some intense tooth pain and I figured out, crazy as it this sounds, that it was eating too much rice that was giving it to me. I think I was actually decalcifying my teeth (grains take calcium to digest).

The other reason I get the same kind of tooth pain is that my teeth need a cleaning, but obviously if you asked your dentist, that won't be the "why" for you.

Consider if you're eating a lot of sugar, or a lot of grains, or if you diet is mostly acidic (grains, meats, beans, etc.) -- do you have enough alkaline foods in your diet (fruits and veggies).

Take care and good luck

Oh yes, and consider Uncle Harry's products for your tooth care. My husband and I switched and have great luck with our teeth and gums ever since. They are all natural and don't contain glycerine, which coats your teeth and does not allow them to breath. Anyway, you can find them on google if you're interested.

Have you been tested for giardia and that type of thing? I ask because I notice that I always go straight to the Celiac Disease question whenever anything comes up for me, almost forgetting that zillions of illnesses and infections and stuff exist outside the realm of Celiac.

A few years ago I had a bout of emergency pooping - that is what I'd call it - I'd be out walking the dog and oh my gosh I was in big trouble. I actually stopped walking my dog anywhere that did not have a bathroom right there. This WAS NOT my MO with Celiac; I always had constipation. Anyway, I sent in samples and such and did not find anything. However, I did find out the myraid things it could've been. So I would urge to check for those things. (In the end, mine went away after putting pro-biotics in - we never found out what the problem was.)

Best of luck to you! Hopefully you'll find some hidden gluten in the new baby stuff ... but if not, think about the dreaded samples to the doc (yes, you have to keep some in your freezer for a couple days).

As to the bruising: that can be lack of vitamin C, vitamin K I think it is. If it does not get better OR you have little red dots in places on your skin that would have pressure on that at times (where your shoes press against your feet, where your seatbelt presses against your chest, etc.) - you should get your blood checked for platelets. You can get a disease called Idiopathic Thrombocytopenia Purpura, which is when your spleen kills off your platelets, and you can eventually bleed to death. Pregnancy can trigger this autoimmune disease. It is likely NOT this, but keep this in mind with the bruising if it does not get better or you see the dogs or your gums start bleeding or anything like that.

I have been gluten-free for 8 months. The first month I had so much energy, it was scary. I have had some episodes(usually from work) that seem to last 2-3 weeks to get back to "normal" I break out in what looks like boils, lower tummy very tender and bloated, constipated, diarrhea, brain fog, sleeplessness. Lately my sleep has been on a 2 hr cycle it is hard to get to sleep and stay asleep. If I am up in the middle of the night I am awake for hours.

I have no energy, tired all the time. My diet is is gluten-free, I have my own cupboard for my food. My husband eats what I cook, he has his cupboard with his cookies and bread for work. My body craves fruit and homemade veg soup, not much meat or starch.

Any suggestions for boosting energy? How long does it take for others while getting off gluten?

Hi. I don't know how long your Celiac disease was active, but if for any length of time, you are probably deficient in all sorts of vitamins and minerals, which puts a real hurt on your hormonal system and other systems too really. One thing I would look into, if you have not already, are your iron levels and your B12 levels. B12 is absorbed through interacting with stomach acid, and many celiac sufferers have low stomach acid (even if they feel they have an acid stomach). Your adrenals are probably tired, especially if your sleep patterns are disturbed. It is best for your adrenals if you are asleep by 10pm (or at least eyes closed and resting) ... and then obviously having uninterrupted sleep is best. I can't tell by your post if you are waking up becuase you don't feel good, if it is for another reason. B12 you could take w/o getting your levels checked and see if it makes any difference. Iron on the other hand can be toxic at high levels so you should get tested if you can before adding that. It can cause constipation so you should look into a kind form the healthfood store that does not do so.

You might be protein deficient too, and that's coming from someone who is vegetarian and hates having folks assume she does not get enough protein. The fruit craving is probably liquid, vitamins, and mostly sugar - the veggie soup...hmmmm...you're making me hungry. Is there some healthy starch you could add, such as sweet potato or potato even, that might give you a bit of a boost? I did not eat potatoes for a couple years (they are nightshades and require calcium to digest and bla bla bla other stuff too) but now do and I immediately had more energy. I guess it was the starch.

One other thing I noticed about your post is that you tend to wake up and then be unable to go back to sleep. For what it's worth, in Chinese medicine they talk about the liver being clogged or overworked if you are able to go to sleep, but not stay asleep. I don't know if you can take a liver cleanser or tonic or anything or if that interests you, but it might be something to think about.

Message: 2

From: U.S. Food &amp; Drug Administration (FDA) <fda@service.govdelivery.com>

Date: Thu, 22 Jul 2010 15:04:23 -0500 (CDT)

Subject: DeBoles<sup>

from usda email:

Message: 3

From: U.S. Food &amp; Drug Administration (FDA) <fda@service.govdelivery.com>

Date: Fri, 2 Apr 2010 13:08:53 -0500 (CDT)

Subject: Glutino Food Group Issues Allergy Alert on Undeclared Egg Product in Raisin Bread

Glutino Food Group Issues Allergy Alert on Undeclared Egg Product in Raisin Bread

Fri, 02 Apr 2010 12:02:00 -0500

The Glutino Food Group of Lawrence, Mass. is voluntarily recalling Glutino Raisin Bread because it may contain undeclared egg product as one of the ingredients. Consumers who have an allergy or sensitivity to eggs run the risk of serious or life threatening allergic reaction if they consume these products.

Hi all.

I have realized lately that my nose is often clogged up - not to the point where I can't breathe, but to the point where it is taking me a lot of effort to breathe. This does not seem good. So I decided to use the Neti Pot (except mine is not a neti pot per se but called Nasaline which is like a huge syringe with a rubber stopper). As you probably know if you're reading this, the neti pot pushes or pours salt water up your nostril, perhaps falling down the other nostril, rinsing out debris, allergins, etc.

So I did this one week ago and within an hour or less noticed tinnitus in my ear. It is still there. Unabated. I have not used the neti pot since (as you might imagine). Now I dont know what to do with my tinnitus. During the day it is not big deal because it is not loud enough to bother me, but at night it does bother me. And it bothers me to know that it is happening, especially as I've had vertigo problems in the past.

Any thoughts anyone?

From the USDA Webiste:

Subject: GFN Foods, LLC Voluntarily Recalls Gluten-Free Naturals Pancake Mix, Gluten-Free Naturals Light & Moist Yellow Cake Mix and Gluten-Free Naturals Cookie Blend Flour

GFN Foods, LLC Voluntarily Recalls Gluten-Free Naturals Pancake Mix, Gluten-Free Naturals Light & Moist Yellow Cake Mix and Gluten-Free Naturals Cookie Blend Flour

Tue, 16 Mar 2010 12:28:00 -0500

GFN Foods, LLC of Cranford, NJ is voluntarily recalling: Gluten-Free Naturals Pancake Mix