Girl Ninja

Trix too! And the Dora the Explorer cereal from GM if you can find it (I can't )

Try this link:

Open Original Shared Link

Yogurt or pudding (i freeze tubes of both in the summer), peanut butter, cream cheese, or hummus with fruits or veggies or gluten-free crackers, peanut butter or cream cheese on mini rice cakes, popcorn (if she's old enough, maybe try a hulless one- I think Pirate's Booty has one), Trix or Cocoa Puffs, cheese (my son would only eat piles of shredded cheese, no chunks or slices ), mashed sweet potatoes or sweet potato "french fries", spaghetti squash, cheesy broccoli rice (the frozen green giant ones are ok), Chi-Chi's pouch mix corn cake (add cream corn and butter, i think), beans (I make pintos from dried beans). My son begs me to make the corn cake and beans.

Earlier posts caution that people with neurological problems should avoid it. No one is specific about why, but the caution is mentioned repeatedly in different threads. I couldn't find anything about it being dangerous online except possible liver and kidney complications. I hope someone who knows more finds this.

I'd say wine too. What's available near you? Try to match your selection to your beer preference. Light beer? White like pinot grigio or chardonnay. Middle of the road? shiraz. Dark, bold beer? Merlot. Wine coolers? Pink fruity wines like white zinfandel or white merlot.

Hope this helps.

Almaden Wines (000.000.0000) (vw=05/30/02) (www.almaden.com/faqs/FAQ.htm)

Alpine Spiced Cider (Continental Mills) (800.457.7744) (vp=09/05/02)

Drink Mixes

Arbor Mist Frozen Wine Blenders (Arbor Mist) (1-800-836-9463 x 35700) (Consumer.affairs@cwine.com) (ve=05-20-2003)

All are gluten free.

Armagnac (000.000.0000) (00/00/00)

Bacardi (000.000.0000) (00/00/00)

All rums

Bargetto Wines (Bargetto) (800- 4-BARGETTO) (Open Original Shared Link) (ve=05/19/2004)

All varieties

Bartles & Jaymes (E&J Gallo) (www.bartlesandjames.com) (ve=03/26/04)

Wine Based Coolers NOTE: Bartles & Jaymes MALT-Base Coolers contain gluten

Boone’s & Boone’s Farm Coolers (E&J Gallo) (209-341-3111) (ve=03/26/04)

Wine Based Products are gluten-free. NOTE: Some are MALT Based beverages and contain gluten

Brandy (00/00/00)

Calvados, Grand Marnier, AVOID VSOP!

Bushmill's (bushmills@qualitycustomercare.com) (ve=01/09/2004)

ALL whiskies including Malt whiskeys are gluten-free. This is a very smooth Irish whiskey, all products triple distilled, says manufacturer

Campari (000.000.0000) (ve=05/30/02)

Captain Morgan (000.000.0000) (ve=06/04/02) (www.rum.com)

Original Spiced Rum; Silver Spiced Rum; Parrot Bay; Private Stock

Champagne (000.000.0000) (00/00/00)

Chaucer's Mead (Bargetto) (800- 4-BARGETTO) (Open Original Shared Link) (ve=05/19/2004)

Regular, Raspberry, Olallieberry

Cider (00/00/00)

Hornsby (NOT Draft Cider),

Wyder’s Ciders (Wyder’s) - (ve=05-20-2003) .

The Pear and Raspberry Ciders DO contain gluten. The Peach and Apple Ciders, however, contain no gluten.

Ciders (00/00/00)

Woodchuck, Cider Jack, Woodpecker, Strongbow (all made from fermented apples and made with gluten-free ingredients)

Cognac (000.000.0000) (00/00/00)

Corbett Canyon Wines (The Wine Group) (209.599.4111) (00/00/00)

All varieties

Coastal Cellars (Bargetto) (800- 4-BARGETTO) (Open Original Shared Link) (ve=05/19/2004)

All varieties

Crown Royal products (ve=2-5-03)

from the company: “Please be advised that Crown Royal products, which have been distilled, do not contain glutens or gluten residues. However, as this relates to a medical condition, may we suggest you consult your own physician concerning the consumption of alcohol beverage products?”

Cruzan (Todhunter Imports) (www.cruzanrum.com) (ve=2-21-03)

All Rums including flavored onesare gluten-free.

DeKuyper (www.DeKuyper.com) (ve=9-23-04)

Our cordials are made with distilled spirits that are primarily made from a corn base. They may also from time to time, contain small amounts of small grains such as wheat or rye. It is known that Gluten can be found in the small grains such as rye, barley, oats, etc. However, it is generally accepted that the process of distillation excludes gluten in the finished product.

Diageo (800.767.3123) (from the ListServ 07/14/02)

"After calling customer service at 800 767-3123, I received the following list from Diageo on its gluten-free brands

GINS:

Booths

Gordons

Gordons Citrus

Gordons Wildberry

Popov

READY-TO-DRINK COCKTAILS:

T.G.I. Friday's On The Rocks

• Censored on the Beach

• Long Island Ice Tea

• Margarita

• Mudslide

• Pina Colada

• Strawberry Daiquiri

• White Russian

The Club Cocktails

• Brass Monkey

• Censored on the Beach

• Gin Martini

• Long Island Ice Tea

• Manhattan

• Margarita

• Mudslide

• Pina Colada

• Screwdriver

• Tom Collins

• Vodka Martini

• Whiskey Sour

NEW: SMIRNOFF ICE

BLENDERS:

Jose Curevo Blenders

• Authentic Margarita Mix

• Lime Margarita Mix

• Strawberry Margarita Mix

T.G.I. Friday's Blenders

• Amaretto Mudslide

• Margarita

• Mudslide

• Orange Dream

• Pina Colada

• Strawberry Shortcake

• Raspberry Chiller

• Vanilla Caramel Swirl

LIQUEURS AND SPECIALITIES:

Black Haus Blackberry Schnapps

Rumple Minze Peppermint Schnapps

RUM

Appleton Estate V/X

Appleton Estate 12 Year

Appleton Estate 21 Year

Appleton Special

Malibu Caribbean Rum

TEQUILAS:

Cuervo 1800 Reposada

Cuervo 1800 Añejo

Cuervo 1800 Coleccion

Cuervo 1800 Single Barrel

Jose Cuervo Especial

Jose Cuervo Tradicional

Reserva de la Familia de Jose Cuervo

VODKAS:

Gordons

Popov

Relska

Smirnoff

Smirnoff Black

Smirnoff Citrus Twist

Smirnoff Orange Twist

Smirnoff Raspberry Twist

Smirnoff Vanilla Twist

WINES:

CALIFORNIA

• Beaulieu Vineyard

• Blossom Hill Winery

• Glen Ellen

• M. G. Vallejo

CHILE

• Casa Lapostolle

• Cuvee Alexander

FRANCE

• Chateau De Sancerre

• Piat D’Or

ITALY

• Ruffino

Diasronno Originale (Imported by Bacardi from Italy) (Open Original Shared Link) (ve=06/24/03)

Amaretto

E. & J. Gallo Winery, of Modesto, California (Comsumerrealtions@carlorossi.com)(ve=04-12-2004)

All of the wines and champagnes are completely free of gluten or any gluten by-products

Gin (00/00/00)

Club Gin & Tonic, Cocktails for Two Gin Martini, Hublein Gin Martini, Milshire Gin 80%, Popov Gin 80%. Look for Korn (a German Potato Gin)

Hornsby (E&J Gallo) (209-341-3111) (ve=03/26/04)

None are considered gluten-free

Irish Mist (000-000-0000) (ve=04/30/04)

Jack Daniels (www.jackdaniels.com) (ve=01/09/2004)

Jack Daniel's Black Label Tennessee Whiskey has absolutely no carbohydrates (sugar or starch), gluten, fats or cholesterol, as these are removed during the distilling process.

Madeira (www.premiumport.com) (00/00/00)

If from the Portuguese island of Madeira it is gluten-free because of the regulations with making Madeira in that country - otherwise check with the manufacturer

Margarita Mix (00/00/00)

Jose Cuervo; Mr. & Mrs. T

Marinade & Smooth & Spicy Bloody Mary Mixes; Mr. & Mrs. T (EXCEPT Bloody Mary Mix) (00/00/00)

Martini (00/00/00)

Club Extra Dry martini, Club Vodka Martini

Mead (000.000.0000) (00/00/00)

Distilled from honey and is usually gluten-free

Mistico (000.000.0000) (00/00/00)

Jose Cuervo Mistico (agave & cane)

Mixes (00/00/00)

Club Tom Collins (corn), Diamond Jim's Bloody Mary Mystery, Holland House (EXCEPT Teriyaki

Motts (Motts Cadbury Schwepps) (800-426-4891) (Open Original Shared Link) (vp=06/19/03)

Motts Cooking Wines (all varieties)

Ouzo (000.000.0000) (00/00/00)

A clear, aromatic alcohol distilled from grapes and flavored with aniseed (anise). Anise belongs to the parsley family and has a licorice-like flavor. Anise is one of the earliest aromatic plants to be mentioned in history and originates in the Mediteranian.

Pat O'Brien's Hurricane Cocktail Mix (Franco's Cocktail Mixes) (800-782-4508) (www.francoscocktailmixes.com) (vp=9-24-03)

The modified starches they use are sourced from the USA and are corn based but they do not manufacture those ingredients themselves so cannot guarantee that they are totally gluten free. None of the natural flavors are from wheat, rye, barley or oats

Port (www.premiumport.com) (00/00/00)

If from Portugal it is gluten-free because of the regulations with making Port in that country - otherwise check with the manufacturer

Ramapo Valley Brewery gluten-free beer (vp= 11-03) (845-369-7827).

Remy Martin Congnac (ve=1-27=03) (www.remy-cointreau.com)

Remy Martin Congnac products are all grain free/gluten free.

Rose's Natural Infusions Cocktail Mixes, Rose's Brand (they also bring you Rose's Lime Juice and are part of the Motts/Cadbury/Schweppes Group)

1-800-696-5891 www.rosesinfusions.com (vp & ve 08/20/2004)

Rum (00/00/00)

Rum is distilled from sugar cane. Light rums should be free of gluten; however, the heavier spiced rums may contain gluten. If you prefer spiced rums please contact the company to make sure that any spices used are gluten-free. Otherwise it is safest to trust only white rums.

Sake (00/00/00)

May contain gluten from barley enzyme from some of the ingredients used during processing.

Sam Adams (Open Original Shared Link) (ve=07/30/03)

Sam Adams Hard Core Cider

Sherry (00/00/00)

Some use grains. Gallo Cocktail pale dry sherry of California

SKYY Spirits (000.000.0000) (ve=05/30/02)

SKYY Vodka and SKYY Citrus Vodka

Smirnoff Ice (diageo brands) (www.diageo.com) (02/02/05)

USA: Smirnoff Ice (any variety) is a malted beverage and NOT gluten-free.

CANADA, Smirnoff Ice (all varieties) is made with distilled vodka and is gluten-free

SOGONO DI SORRENTO LEMONCELLO (Cive Importing Co., Boston, MA) - liquor (617-227-3193) (ve=03-13-2003). Alcohol used in production is made from beets.

Sutter Home wines (Trinchero Family Estates) (ve=11/12/03)

All our wines are gluten free.

Taylor Marsala Wine (800-487-3417) (vp-3-3-05)

We DO NOT put any gluten in our wines, however, since we do not TEST for gluten, we can not say that it is gluten free!

Tequila (00/00/00)

El Tosoro, Herradura, Jose Cuervo Traditional & White, Matador White, Sauza Commeritivo, Sauza

Tito's Vodka (Open Original Shared Link ) v? 9-23-04)

Made from 100% corn and the product is distilled 6 times.

Tres Generationes (000.000.0000) (00/00/00)

Beware of dark Tequila using caramel food color

Vodkas (00/00/00)

Bellevedere (one from potato - not from rye); Black Death (beet); Bushman's (Australia) (100% cane); Chopin (potato); Hamptons Vodka (made in USA is made from corn -- 877-937-5951); Jinro Soju (a Korean vodka made entirely from sweet potatoes); Kamchatka Vodka 80% (California only - corn); Luksusowa (from potato); Glacier Teton Vodka (made with 100% Idaho potatoes); Milshire Gin 80 proof; Monopolowa (Potato); Popov Citrus & Tangerine; Relsk Vodka 80% (corn); Popov 80%; Smirnoff 80% & 100%; Smirnoff Silver 90.4%; Smirnoff Vodka 80% (corn); Smirnoff Citrus Twist 70%; also see Zodiac.

Tito's Vodka (Open Original Shared Link ) v? 9-23-04)

Made from 100% corn and the product is distilled 6 times.

Williams Sonoma apple martini mixer and lemon drop mixer (www.williamssonoma) (Feedback@williams-sonoma.com) (ve=3-31-05)

The 4830808 Lemon Drop Mix and 6124119 WS Cktl Mix Apltni. These items do not contain gluten.

Wine and Wine Coolers (00/00/00)

Most are gluten-free: Soleo Wine Cooler; E&J Brandies (the cask and cream liquor) , Also see individual listings

Zodiac Vodka (000.000.0000) (vp=05/30/02) (www.zodiacvodka.com)

Aww, that's really sweet. Yay for random acts of kindness.

US "Smarties" are entirely different from Canadian "Smarties." In the US they are flavored sugar pressed into a pill-like shape. In Canada they are candy-coated chocolate. US Smarties are ok. I live on the border.

The first scrip I got made my stomach HURT no matter when I took it. The second one I tried was fine. They were both generics. It occurs to me now that it may have been a gluten issue. I hadn't discovered Celiac yet. Good luck to you. I just learned that I may be able to have another one someday. I'm pretty excited.

I get a 7 layer burrito plus steak in a bowl instead of a wrap. They laugh at me, but it's good! I have a friend (more like a sister) who is a manager there and she checked all of the ingredients. I wish TB would have listed the ingredients individually rather than just the completed menu items. I could build all sorts of cool stuff. SHe also told me I could have the hard shells, so I sometimes get a hard taco with refried beans instead of meat.

The only ones I can think of that are NOT ok are red licorice and anything with crispy rice in it.

Tiffany's right. I think the iron was what I had a hard time with in the first scrip, and I can see why people might need to take it separate.

I don't know if this really matters or not, but my doc told me the difference between otc and prescription prenates is the amount of iron. My first scrip ones made me feel sick, so she tried some other ones but when she was changing them she said that she had other patients who never found a scrip they liked and she just had them take otc ones and a separate iron supplement.

That's a good point. You guys are so smart.

I think everyone should relax and you should do what the doc says. If you were avoiding dairy because it make you ill that would be another story. But you're not. And maybe testing dairy will help him to know if he needs to run another expensive test or not. I am confused about the ice cream over yogurt thing, but maybe he just thinks it would be easier to get you to eat ice cream. If it turns out you're ok with dairy it would expand your diet choices a lot and like someone else mentioned, the yogurt cultures can be good for a healing digestive tract. Good luck to you.

You probably don't mind that he discussed it with your gluten-free, but it is against HIPAA. Is she your medical advocate? Maybe then it's ok if they have that form on file. My doc just had me fill one out today.

Fiddle Faddle - It's easier to understand the difference between DH and Hives with pictures. DH is generally patches of small fluid filled blister type bumps that can break open. You can't break open a hive. It's more of a swollen area of skin and can range in size from small dots to larger than dinner plates. The confusion comes because they both itch like crazy.

DH

Hives

Me too. They called it depression and tried to treat me with various meds, but none of them ever made a lick of difference. Last time I got glutened really good I had a panic attack. I thought I was having a heart attack. I used to wake up from nightmares that seemed SO real and I had the sleep paralysis too. I'd wake up not able to draw a breath, sure I was going to suffocate and be conscious of it. Terrifying.

Swelling of the thyroid gland. It usually has to do with iodine deficiency in my neck of the woods. I found this:

A goiter is an enlargement of the thyroid gland. It is not cancer.

Causes, incidence, and risk factors

There are different kinds of goiters. A simple goiter usually occurs when the thyroid gland is not able to produce enough thyroid hormone to meet the body's needs. The thyroid gland makes up for this lack by enlarging, which usually overcomes mild deficiencies of thyroid hormone.

A simple goiter may be classified as either an endemic (colloid) goiter or a sporadic (nontoxic) goiter.

Endemic goiters occur within groups of people living in geographical areas with iodine-depleted soil, usually regions away from the sea coast. People in these communities might not get enough iodine in their diet (iodine is vital to the formation of thyroid hormone). The modern use of iodized table salt in the U.S. prevents this deficiency. However, inadequate iodine is still common in central Asia and central Africa.

In most cases of sporadic goiter the cause is unknown. Occasionally, certain medications such as lithium or aminoglutethimide can cause a nontoxic goiter.

Hereditary factors may cause goiters. Risk factors for the development of a goiter include female sex, age over 40 years, inadequate dietary intake of iodine, residence in an endemic area, and a family history of goiter.

The doctors will pick every little milestone and use that as your next "hives will go away" deadline. Mine were supposed to stop after my son was born, after I stopped nursing him, after I increased my exercise, after I changed jobs, etc. They have no idea.

I actually never heard of angioedema before this thread. I just looked it up and I guess I had both all along too. I just figured some hives were "surface hives" and the other swelling was still hives, just deeper. Ya learn something every day, huh? I think it would have freaked me out a lot more to have the severe joint pain/ swelling without hives. My doctors (LOTS over the years) have never given me any idea what the cause could be and have mostly just shrugged off my symptoms. The doc I see now said "That sucks. I don't know what to tell you." And we never discussed it again. I cannot stand her.

How long before you were diagnosed with celiac? You mention 6 years of suffering.

I first started getting hives in June of 1999. I am self diagnosed (this April) and have only been gluten-free for about 2 months, but the difference is tremendous. I sort of wish I had tried for a real diagnosis before I tried the diet, but I feel so much better now there's no way I'm doing a gluten challenge. Maybe in a few years when I forget how crappy I felt.

I too wake up in the morning with them in odd places... usually the bottom of my feet... like I'm walking on marbles/golfballs and wickedly painful ones.

Golf balls is exactly how I described it. I was always scared to death that they'd be in my throat!

The only thing I haven't tried on your medicine list is Relacore/Cortislim... maybe that will help.

My trying Relacore was really a fluke thing after I watched a commercial about how it worked (WAY before I ever heard of Celiacs). I know another guy (friend's father, suspected Celiac) who also has the very same hives issues and when I talked to him he was taking Relacore too. Cortislim doesn't work as well and sometimes gives me a reflux sort of feeling so I don't take it unless I'm desperate. Where are you located? Relacore is cheapest at Kroger or Walmart if you have those (or eBay ). Seriously, get some as soon as you can.

Hot showers feel good to me too... everyone says "NO hot showers with hives" but that is completely the opposite for me.

You can pretty much ignore what "everyone" says about hives. I know lots of people who will go "Oh, me too! I just take Benadryl. Clears them right up. It's happened like 5 times!!!" I've given up trying to explain the difference.

I have a reusable hot/ cold pack (it's like a tube sock full of rice) that helps (hot) with really stubborn hives (mostly feet, knees, or shoulders). I got it at Walgreen's for like $6. It's called Bed Buddy.

I really think the Relacore "retrained" my body as to cortisol levels, sort of how antidepressants teach your body to level out serotonin. That's probably why it took so long before I didn't have to have it in my system all the time. I doubt I would have had such a good result from going gluten-free had I not had the Relacore.

I still get them if I'm way tired or sick or if I have gluten in any way. I've gotten them on my head from wheat in shampoo and on my fingers after making my son a sandwich. Extra stress will cause them or make them worse.

Here's another confusing thing to me... I haven't seen any gluten that I know of since February. I see a lot of people mention that they know instantly they've had gluten... headaches, stomach problems, etc. I used to eat a sandwich everyday and plenty of Oreo cookies at night. Sometimes I would buy a loaf of bread at our local bakery and some cheese and that would be lunch... It never bothered me in any instantaneous way... in fact, other than the hives/swellings I had never seen any problem that I knew of. Maybe I'll notice more once the hives are gone, though I don't think I'll actively seek out gluten (no more Milky Way candy bars).

I have noticed a lot more symptoms since the hives have subsided. Migraines, brain fog, more digestive issues, etc. Someone else said that hives are a relatively rare symptom. But I guess you already figured that out. Even if you don't have any other digestive symptoms, you are still damaging your intestines each time you have it. Be glad you caught it before you had a laundry list of symptoms like some of the others in here.

All the time! I met a girl who has Celiac (or is it is Celiac??) who works at McDonald's near me and A girl who works at the Seattle's Best coffee thingy inside Border's bookstore. I get people at work (Kroger) all the time who appear to be searching for something in particular on ingredient lists so I ask if they need help and they're looking for gluten-free stuff.

Hives are my main symptom. For 6 years, I got them all over my body every day. They would mostly be deep in the tissue of knees, hands, feet, elbows, shoulders, etc. Those ones are super painful and leave me with a chronic fatigue-like fog from trying to function through the pain. I would get pressure hives from sitting or standing for too long or clapping. I couldn't buy a new pair of shoes for years. It made my feet swell so bad I couldn't walk for days. I would get patches of hot, super itchy surface hives that covered my entire back, stomach, or legs for days at a time. Sometimes, when my son was a baby, I wouldn't leave the house because they were so bad on my face I was sure everyone would think I was being abused and try to intervene to protect my son. Sometimes I was afraid to sleep for fear I'd wake up and they'd be even worse.

All of my doctors were stumped. I was put on Benadryl (no help), Claritin (stupid head, no help), Zyrtec (no difference), and Prednisone (helped 1st day and then made them go NUTS), and some otc homeopathic stuff(no help). Then they just gave up.

Mine are clearing up now. Have you tried a cortisol blocker? I tried Relacore on the off chance that they might be stress related and it helps immensely. I took it daily for about a year before my hives let up without it. At first, the relief would be brief and then more suffering until I could take more. The longer I took it, the longer the relief seemed to last. It has rice flour in it. That or Cortislim (same basic premise, costs more) are the only thing in pill form that have ever helped. Heat packs or super hot showers sometimes helped. No lotion or cream of any sort ever helped (several prescriptions there too).

I still get them a few times a month or if I get gluten, but they're nowhere near as bad. I've got them this week from some chicken salad that I shouldn't have eaten on Saturday.

Yeah, Meijer is kind of like Walmart. It was founded in MI. I don't know how far outside MI it extends.

Actually, I usually get Harmony brand trail mix from Meijer because that's closer to me than Costco. I think Costco has their own brand of trail mixes and dried fruit blends. I've never had a problem with their trail mixes. Sorry I can't remember the name.

I found this online. Maybe one of the craftier cooks can tell you what would be the best sub for the soy milk. Rice milk? I don't really know. Sounds yummy, though. I totally pick hommus too or Italian dressing. Yum!

Title: EGGLESS MAYO ("BETTER 'N HELLMAN'S")

Categories: Vegetarian

Yield: 1 servings

1 c Edensoy (Original)

2 2/3 c Oil

2 tb Cider Vinegar

1 tb Maple Syrup (or sugar)

1 ts Salt

--------------------------------NOW TRY THIS--------------------------------

Directions: Place soy milk in food processor (or blender). Put on lowest

setting. Drizzle oil into soy milk. Add other ingredients. I add about

the same amount of lemon juice in addition to the vinegar. Someatimes I add

one tablespoon of dry mustard. You've got to try adding basil and/or sage

and/or oregeno.

I've also never had a problem adding all the vinegar, syrup, salt, etc. to

the soy milk first and then adding the oil.