Caligirl57
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MrsTurner reacted to a post in a topic:
Iron deficiency anaemia
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Hi Mrs Turner, sorry to hear about your anemia. I believe I’ve had celiac my entire life. I am now 67. I am not a drinker, but celiac ruined my liver. I also have hemochromatosis. My iron levels were high. I had blood letting twice. It relieved my tiredness but I was still cold. My liver could not get rid of the toxins from my body. I ballooned up to 26...
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I’m so sorry to hear about your mouth issues. I have suffered from linchen planus since 2016. We were living in the UK at the time. The dentist told me it is an autoimmune disease and he sees it in a lot of celiac patients. He prescribed medicine. It took a couple of days but I did get relief. Since, we moved back to the states, my dentist prescribed a...
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GFinDC reacted to a post in a topic:
Celiac disease, hemochromatosis diagnosis and liver issues
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BTW, Before I was diagnosed with celiac, a few food changes occurred. First, I have always been lactose intolerant, second I became violently ill after eating shell fish ( I use to eat without any issues) . I noticed sores in my mouth that were so painful, I was sent to an oral surgeon. He diagnosed me with lichen planus. Blisters like a celiac gets...
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Hi Cyclinglady, i honestly think the best way to diagnose celiac is an endoscopy. It seems to be the gold standard. I went strictly gluten free after my diagnosis. I feel so much better! Please give it a try, 100%. Most restaurants can accommodate celiacs. You might miss some foods but the thought of eating gluten and it’s repercussions on m...
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Awww, Thank you and Happy New Year from Colorado.
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NNowak, thank you for your kind and timely responses. I am seeing a hematologist, liver doctor and internist. I also am having to go a oncologist/gynecologist for a hysterectomy. Ugh! Sucks to get old! ?
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My B12 is 2000. Ugh?
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The gene mutation I have is H63D as well. I’m just so tired of being tired! Did the bloodletting help your sister have more energy?
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Hi NNowak, thank you for your quick response. My ferritin levels are 204 and my saturation is at 92. Normal iron levels are below 139 saturation is less than 55. These tests were done right before I had another endoscopy . It did not show inflammation in the stomach. ive never been a heavy or moderate drinker, so when I was told I had cirrhosis,...
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I was diagnosed with liver failure and told I needed a liver transplant. I had ascites drained (5litres) and went on a strict gluten free diet. I was diagnosed one day after ascites was drained, With celiac. This all took place while I was living in the UK. We left after 2 years due to my husbands job. i continue to bruise easily and my new Internist...