queenofhearts

I found this list on a Celiac listserv; I've been to several & they're interesting.

Leah

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And others ... not as frequently blogged to, but still interesting, good info:

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Corn spaghetti? Sounds....interesting. I must try it. Rice spaghetti is kind of mushy. Do they have it in Wild Oats or Whole Foods?

Lucky for me I never could tolerate Dunkin Donuts. The cloves in them gave me indigestion. except the chocolate ones... never mind. Why torture myself.

You do realize I have a lot of cleaning out the pantry to do...

It helps if you cook the gluten-free pastas a little differently, boil them for a minute & then let the water cool down, testing frequently for doneness.

Leah

My wife was diagnosed with Celiac Disease 9 months ago. She thinks that if I eat gluten she may be affected if we are intimate (kissing, intercourse). I find no reference to this in any scientific resources. Any thoughts. I'm not kidding!!!!!

Well... I remember there was a post about a girl who got glutened when her bearded boyfriend had been drinking beer, so I wouldn't discount the direct contact. But if you brushed your teeth & washed up, I don't think it's oozing out your pores or anything!

Leah

And it would only get EASIER to be on the diet if more of the people who need it get diagnosed! Sometimes I wonder about medical "science"...

Leah

I've been there too, Karen, with the no-celebration thing, but it must be particularly tough when you have such a stressful event ahead. Andrea has a good point that he may be focusing on that, but funny how that sort of thing never stops US from remembering birthdays & anniversaries!

Hang in there,

Leah

I remember that moment... & the roller coaster ride that followed... oh, no more pasta... but I'll finally get rid of that anemia... but no more french bread... but no more rushing for the bathroom...&c.

In the long run your health is much better than even the most delicious food. And doing without wheat gets easier when you start to get well.

Whenever I get down in the dumps & feel sorry for myself because I can't have something I want, I go to the thread that has all the good things gluten-free has done for everyone. It's a real mood-lifter for me.

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Hang in there! It will all get better.

Leah

What it REALLY means, though, is Welcome to Gluten-Free Land!

You should send off for Nini's Newbie list if you haven't already:

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You'll find lots of info here in the site index too, & of course you can ask us for help.

You can look forward to feeling healthy!

Leah

I think the confusion arises because some of the licky stuff (mainly envelopes made overseas) does contain gluten. But if it's the self-stick type you should be quite safe.

Leah

Right here! There is a lot of info in the site index, & you can also go to Nini's website for her newbie list, it's very helpful:

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Scroll down the page & you'll see it. Once you've had a look at the basics, you can ask any questions here & someone will have the answer. Or search the boards for previous answers. An amazing amount of info here, I don't know how I would have done the diet without it. And even if you just have a bad day, post here & you'll get loads of moral support!

Welcome!

Leah

Thanks so much for all your replies. It's hard reading about celiac on the net, because while you do find articles talking about overweight celiacs, it still seems like it's not the norm, or even common.

Leah--what does "pm" mean? I've been all over message boards, but I haven't seen that abbreviation yet.

Look below this reply, & you will see a bar with a button that says "pm". It's short for personal message, or is it private message? Anyway, it means only I will see the message so your e-mail wouldn't be on the board.

This board can be googled so you don't want to put anything too personal on it, by the way... let me rephrase that-- we all talk about plenty of personal things, but that's why the usernames aren't usually our names, so if someone looks you up on Google they don't find out all about your D or whatever!!!

Leah

It sounds like trying the diet would be good for you; since your dad has been diagnosed, if you respond positively to the diet I think most good doctors would agree you probably have it. The only advantage really to having an official diagnosis is that it allows you to get a (fairly shrimpy) tax write-off, & it gives you more credibility if you need to claim disability status (to get safe food at school or something) but if you have a good doctor, your dad's diagnosis + your positive response would probably be enough to get a letter.

If you do want an endoscopy though, get it done now before going gluten-free for a true result.

And if you try the diet, make sure you are THOROUGH & keep it up for several months or you won't really know if it's working.

Leah

Anyway - worth a try, certainly if you have any of my symptoms. Magnesium ddoesn't spring to mind as being associated with tingling and twitches but apparently it is.

Hope this helps someone.

SandraB

I'm so glad you posted this! I'd thought for a while I might be magnesium-deficient, but before I went gluten-free I was always afraid of the D effect... now that's under control so I tried it, & noticed a marked increase in energy... not 100% sure it was the magnesium, but it certainly did coincide. So thanks!

Leah

I still get a slight numbness in my hands and feet from time to time. It has definitely improved - if it was a level 5 on a scale of 1-10 before, it is now about a 2. It is never more than one hand or one foot at a time. I also have noticed a sporadic numbness in my back and left side of my face as well, which is also very slight and only occurs when there is no tingling in feet/hands. The back/face tingling never occurred until I went gluten-free.

Actually you are ahead of me! I've been gluten-free ~2 months & just beginning to feel better. One thing that helped me, & sounds like it might help you as well, is magnesium. See this link:

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Hope it helps!

Leah

for some reason I can't get it to go to the post I wanted, so you'll have to scroll down to SandraB's post

Sounded so cool, and Im a gadget geek so I went to have a look and found Open Original Shared Link

Gave me a good laugh click the this, I hid the page link because it kinda spols it.

Just the thing for your next party! More fun than a lava lamp!

I just saw Rachel's polenta post in Julie's reply, missed the original-- actually it was Miamia who brought it up, I just warmly concurred!!!

I'm glad you like it, I think it's great. In fact I may make some tonight!

Leah

DRIVE BY

Aren't rashes that get worse in the sun a symptom of lupus?

I don't know, but ordinary hives feel worse in any kind of heat.

Yep, definitely worse when it's hot...if sun directly hits my legs, it's almost unbearable. But it also happens in winter, so the heat isn't the only thing going on...maybe they're so much more itchy now because it's been so hot this summer.

No, the heat doesn't cause them, but it does make them feel 100 times worse. My doctor actually warned me against getting too "enthusiastic" with my hubby when I had my last outbreak!!! I thought that was a bit personal! But cool showers, a fan, &c. can help keep the misery at bay.

I truly did not have sore throat or tummy or anything but headache, but I was very groggy. Forgot to mention that one! Sorry!

Leah

Welcome, Debbie, consider this your official citizenship document... (I'm the village calligrapher)

I wish I had your gluten screening expertise in my kitchen after the boys have been in there... it's scary!

Leah

I had them both at once & glad I did since the prep is way worse than the procedure! They knocked me out, but I'd ask to be sure, since procedures might vary. My only side effect was a headache which was as likely the result of the dehydration & low blood sugar of the prep as from the anesthesia, but who knows. Didn't last long. I had absolutely NO discomfort on either end, which really surprised me! I thought sure I'd have a sore throat at least but no. Hope your experience is as good!

Leah

The Swiss card also comes with a tiny knife, scissors and well....

You are coming in very handy today! Thanks!

Leah

p.s. I just sent someone in Switzerland to your site for French translations of ingredients.

Try giving them this info from the NIH-- a lot of people "believe" when it comes from a respected source as opposed to an unknown.

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queenofhearts: it also contains the Chinese and Japanese labelling !!!

COOL! THANKS!

Leah

Hmmm....I may have to pick your brain a little. I have been known as the cookie lady because around Christmastime I bake DOZENS of cookies!! I'm afraid to do that this year with "regular" cookies because of the mess it makes...getting flour all over everything and all.

I had thought of baking gluten-free cookies, but I haven't quite got the nerve. But, if you're already an expert, maybe I can learn from you!

As one cookie lady to another, (I make ~40 dozen every Christmas!) I'm happy to inform you that cookies are the EASIEST thing to make gluten-free & delicious! There's a baking thread in this forum, as well as many recipes on the site index here, but if I were you I'd run right out & buy Bette Hagman's The Gluten Free Gourmet Makes Dessert, & Annalise Roberts' Gluten-Free Baking Classics.

Also, pm me for my flour list... it'll make mixing the flours less complicated. I'll need your e-mail address since it's a word document.

Happy baking!

Leah

Tamari is a special type of Japanese soy sauce that should be wheat-free. Shoyu is the regular type, which always has wheat. San-J makes both types. Read the labels, definitely.

Not all tamari is gluten-free! Should be, perhaps, but you still have to read the labels...

Do we sound like a broken record?

My frustration is shopping in ethnic groceries where the labels aren't even in English!

Leah