will4318
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by will4318
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Glutened?
will4318 replied to will4318's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi both, Yeah I get that it's hard to know especially when it hasn't happened to me since being gluten free. Today is the first day that the pain and my stomach seem better so I think it was gluten from something but I have no idea if it was the restaurant or not. I do get some gas after lactose and my Dr said its common in new coeliacs but it... -
Hi Everyone, I have been gluten free for about 6 week and been feeling so much better. Last night I went out for a family meal, I wasn't keen on going but they picked a place that is accredited by coeliac UK so that helped. I had a gluten free pizza which was good and it was square to show it was gluten free, Everything seemed fine. Last...
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Yes, I eventually had a pill cam test looking for crohn's disease, but instead they thought they saw some villous atrophy so I had another biopsy which was positive this time Thanks both, I was seeing a private consultant thanks to insurance and he was very persistent thankfully
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Yes, I eventually had a pill cam test looking for crohn's disease, but instead they thought they saw some villous atrophy so I had another biopsy which was positive this time.
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Hi everyone, Just an update, since my last posting the doctors started looking at other causes so I was on and off perscibed vitamins (folate b12, iron and vitamin D) repeatedly but my levels wouldn't stay up. So eventually coeliac came back up. The "good news" is that they have now found the damage. I have been completely gluten-free for just...
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Hi everyone, Biopsies came back negative but they want me to stay gluten free until they have seen me in a weeks time. Im other news my folate has come back up but my iron is still down and my vitamin D is now very low. Will keep you updated
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That's pretty much what my GI said and he seems fairly sure its coeliac due to tests I have had to rule out crohns disease and that IBS doesn't explain my vitamin issues. I think i might have gotten lucky with my GI compared to some of the things people had said on this forum.
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Hi everyone, Had my biopsy done, they said it looked normal but have taken 4 biopsies from my Duodenum. They have told me to start a gluten free diet. Will let you know when I get the results. Will
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Coeliac results
will4318 replied to decclj's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I saw one last year and had to wait about a month I think. -
Eating a lot of gluten before biopsy
will4318 replied to Airlion's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was told to have sime gluten with every meal untill my biopsy and i feel much worse for it so no matter what the result i think i definitely have some issue with gluten. Interestingly my consultant said that with my symptoms and deficiencies he would consider me to have coeliac even with a negative biopsy if i have a positive gene test. He said... -
Hi cyclinglady, Yep that's what I thought. Thanks, me too. Will
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Hi everyone, Just an update, I have seen the consultant and he thinks it's coeliac, he is going to do a biopsy in the next week or two and if that's negative he wants to do a gene test. I will let you all know what happens Thanks Will
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Pre diagnosis symptoms
will4318 replied to Ajulian's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, I'm waiting for a diagnosis too so can't really comment on the coeliac side but I have low iron, ferritin and folate but my hemoglobin is "normal" but was on the bottom of the normal range last time, Anyway yes my heart rate has increased as I started to feel worse. Will -
Hi Posterboy, Im definitely going to try and find some sublingual b12 as the Dr is pretty sure that's the issue but said they should have tested before putting me on folate replacement. Im seeing the consultant on Thursday and hopefully having the biopsy a week on Wednesday so hopefully I will know what's going on soon. Because they want...
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Hi everyone, Thanks for your replies, it turns out that I'm covered under my wife's works health insurance so my gp has given me a private referal and the insurance company have approved a full coeliac blood panel and a biopsy so fingers crossed I'm going to finally get a resolution. Thanks Will
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Hi both, Thanks for your replies. I guess I just need to try and wait. Just abit frustrating that every doctor I see asks if I have been checked for coeliac disease when I haven't been referred for it. Will
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Hi everyone, I went to my GP about six months ago because I was feeling exhausted all the time, I have also had stomach problems for a while so she did coeliac screen (Serum tissue transglutaminase Level and Immunoglobulin A level) which both came back normal however she also found that I have iron deficiency and folate deficiency. She said that the...
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Advice on blood test results
will4318 replied to will4318's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks, So if I have symptoms then I guess it's worth trying to get the rest done. Also as a side note out of interest anyone know if there iga levels vary much, have I have been tested 3 times over 5 years and everytime its 0.9g/l -
Hi, I have had problems with tiredness stomach pain for years and every time I see a doctor they suspect Coeliac or Crohns so they do some tests but it all comes back negative. I saw the doctor last week and they found that i was mildly anaemic despite taking supplements so they wanted to test for Coeliac again. I got my blood tests back...
