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Lifelong Celiac

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  1. I was diagnosed with refractory celiac disease after being on a strict GFD after several years and having IGA counts under 5 but with endoscopy imaging after five years showing villi still non existent. I was still suffering most of the same symptoms prior to my GFD and all the symptoms you listed. My GI suggested getting more food allergy testing done. I...
  2. I agree wholeheartedly, the scenario that started this proper etiquette thread here though stated we already insisted on eating earlier or bringing our own food and the host insisted on neither and that they would prepare safe food for us. Therefore with that setting posing the question what do we do in that particular situation when we see our food being...
  3. For the situation that started this "what would you do", being a Celiac with lactose intolerance and UC, I would take the time to read the ingredients and then kindly educate the host on all the reasons why I could not eat any of the food he/she had prepared for me. More than likely he/she will either be offended or saddened, but I have come to learn so long...
  4. I am a Celiac and have been on a strict gluten-free diet for seven years and after recent stomach pains sent me to the hospital over a weekend went and saw my GI. Had colonoscopy and endoscopy done and am now diagnosed with Ulcerative Colitis as well. While each individual is different and our bodies all react differently despite our common diagnosis', gluten...
  5. I think this article is a life saver. I've added the phosphates listed in this article to my "do not eat" list as some of these foods also listed in this article I eat regularly and have recently had major digestive issues despite my strict gluten-free diet and lifestyle. Hopefully by eliminating these phosphates I will see improvement in my digestive health...
  6. Agreed, it depends on the person and length of undiagnosis. I've had Celiac's for approximately 26 years but was only diagnosed 7 years ago (I'm 40 years old). I just went for my three year gastrointestinal imaging series and not only have none of my villi regrown, the duodeum is actually turning a grayish black color. I have followed the strictest of gluten...
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