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NickM

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NickM last won the day on September 5 2018

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  1. I have to suggest that the crux of this thesis has to be related to the degree of reactions one gets from consuming gluten. If you haven't read the minimalization of cross-contamination as posted in at least two threads here on Celiac.com, they are a good read. In my case, my diagnosis was iffy at best and to this day I'm not sure of my Celiac diagnosis...
  2. Since the last post I’ve had a sonogram and a CT scan; they only found out that the bones in my back are shot, but I already new that LOL. The Dr. and I agreed that a few months from now we’ll run the blood tests again to see if there is any meaningful change. Of course, we’ll also see if my symptoms have made any progress. Thanks for a...
  3. Didn't actually see a GI, I was offered and the opportunity to see a GI and a dietician at the time of diagnosis and on the strength of the Dr's. statements during the followup visit, I chose to start the new diet and to see a dietician. I sent my above message to both the Dr. and the dietician and it was the dietician who consulted a GI colleague. So I...
  4. Here’s what the Dr. said about the slight difference between the tTG iga 0.9 vs 1.0 test results: Conditions like Type 1 diabetes, thyroid disease and rheumatoid arthritis can cause a false elevation in TTG. TTG will be positive in 98% of patients with celiac disease.The only lab I did not test you for was rheumatoid factor. My suggestion would b...
  5. The HMO in this case is Kaiser and they have a strict set of standards that Dr’s need to adhere to. I call it “The Book of Kaiser”, and I have referred to that book, perhaps not so successfully, on occasion. Might have gotten myself black listed over it. It did take many years of complaining to get the recent tests and the celiac disease diagnosis. ...
  6. Greetings Scott, have made what I think are all the necessary changes to the profile in order to get notifications from new posts on threads I have subscribed to/followed. Nothing comes through and I have also changed from my normal address to a gmail address with no results. Probably missing something. Thank you, Nick
  7. There is a nuance associated with celiac disease that is a bit difficult to convey. Let me try once more. The Dr. says that the antibodies that show up in the iga/igg test results are an indication of celiac disease and that the only way for those results to be positive is for there to be a celiac disease affliction because they are only created...
  8. Thanks for all the insight; you guy are great. I wouldn’t be pursuing this except for the idea that there doesn’t seem to be a standard reference where it concerns the normal range. That leads me to feel there is a possibility that I may be misdiagnosed and that I may end up waiting a year or more to find that going gluten free was not the ans...
  9. Can anyone relate the "OD" in this passage to the "Index" reference from my test results above: The probability for celiac disease thus increased from 33% in patients with IgA activity to gluten between 0.4 and 0.8 OD units to 90% in those with such activity above 2.4 OD units. Nevertheless, seven untreated celiac disease patients had IgG and IgA activities...
  10. Thanks for that GFinDC, every bit helps. Not sure what other tests besides the endoscopy that perhaps should have been run. Any details on that? Will check out the Newbie 101 thread. Thanks again...
  11. Newly diagnosed here, but not convinced. If I have it, I've had it for 60+ years. Getting a Dr. to respond to complaints about symptoms that in my mind suggested Fibromyalgia, was many years in coming. Finally a Dr. who decided that some tests (about 30 in all) may give us some info to go with. I believe that the 5/18 TT test got the Dr. to start...
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