RoseMG

Thank you. No, I never eat out, sadly. I'm so meticulous about my diet. I'll look into the thiamine! I reached out to my old doctor (who works at a Celiac-specific center) and he assured me lots of re-biopsies show healed villi but IELs still (up to 50%), which is a bit sad. Just frustrating since I can't possibly get stricter with my diet! I won...

Just following up :)

Hi All, I was diagnosed with Celiac disease in 2018. I have been strictly gluten free since (only eating naturally or certified gluten-free products and basically never eating at restaurants), since I am largely asymptomatic and have no other way of knowing. I had a repeat biopsy in 2020. This showed no increased intraepithelial lymphocytes but...

Thanks so much for your response! Interestingly, I only had elevated DGP IgA too! Nothing else, even on a gluten challenge. I am sooo extremely careful with my eating habits, eating only naturally gluten free foods like vegetables, potatoes, etc. and certified gluten free products. I never eat out because I'm too afraid. I won't even take medicine for...

Hey everyone, Did a gluten challenge and had a biopsy done which showed Marsh 3B/C despite only faintly positive bloodwork. Have since been gluten free for one year. I had a follow up biopsy at the one year mark - no more villi damage, but still increased lymphocytes (inflammation). Lots of reports online seem to indicate Celiac's rarely have complete...

https://www.beyondceliac.org/gluten-free-diet/is-it-gluten-free/liquor/ "Risk of cross contamination" ?

I had a similar experience. Had one endoscopy on a normal diet which showed increased lymphocytes and no blunting, but tested negative for the TTG and not IgA deficient. However, my deaminated gliadin (see image) was slightly elevated at 27. Doctors don't usually do this blood test, focusing more on TTG. Might want to ask for this. The doctor...

Hello everyone, Recently diagnosed and wondering if liquors made from wheat (vodka, gin, etc.) bother you all. I don't have symptoms so no idea whether they are safe or not. I have been avoiding alcohol since my diagnosis. I also have a jar of vodka sauce labelled "gluten free" that I am hesitant to eat since the vodka was most likely wheat-based. Thank...

Hi everyone, Wondering what your symptoms are when you eat gluten. It's my understanding your intestines heal over time on a gluten-free diet, so do you still have GI symptoms months into a gluten-free diet when you accidentally ingest it or do you experience something else? Especially wondering about those Celiacs who never really had any symptoms...

Hey everyone! This topic has come up before on the forum, but I wanted to start a new discussion in hopes that it might be more up-to-date. What brand of spices do you all use? I am referring to single ingredient spices, i.e. cumin, garlic powder, cinnamon, etc. I have silent Celiacs so unfortunately I cannot tell if the McCormick's spices I am...

Thank you!! Wonder if frozen fruit poses the same risks... ugh.

Thank you! I do always read labels, but with no symptoms it's hard to tell if the food I eat is cross contaminated. I've heard beans run the risk of that more than other foods. I did email Bush's and they were helpful!

Ok, thanks! Do you use canned beans by any chance?

Hello everyone, Do any of you have problems with frozen veggies? Even if they are single ingredient, I am worried about cross contamination. Birds Eye, for example, told me they do not have dedicated lines for their vegetables vs their vegetable/pasta dishes so gluten contamination is a risk. I am asymptomatic so your help is appreciated.

Hey everyone! I am slowing getting the hang of this new diet. Wondering what brands of canned beans or canned vegetables you all use (if any)? Gluten is not listed as an ingredient on the label generally, but I'm wondering if I should be concerned about cross contamination. I have no symptoms when I ingest gluten (what the doc called silent Celiac...