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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- Scott Adams commented on dixonpete's blog entry in Pete Dixon2
An early incubation and inoculation
You say "Consumption of gluten continues to have no effect," but when was your last endoscopy/biopsy? Without doing a regular biopsy, there is no way for you to be sure that eating gluten has no effect on your health. -
- Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
Is it gluten?
@Woodster991, were you eating lots of daily gluten in the 6-8 weeks leading up to your blood test for celiac disease? If not, then your results could be false negative. Many of your symptoms are identical to mine before I was diagnosed, with the exception of constipation. This article might be helpful. It breaks down each type of test, and what a... -
- Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
Is it gluten?
Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. -
- Scott Adams replied to Mantooth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Anyone Else Experiencing These Symptoms?
Welcome to the forum @Mantooth, your symptoms are very common in people with undiagnosed celiac disease (I had most of your symptoms as well), and this article talks about the various symptoms of celiac disease: When you were tested in the past for celiac disease were you on a gluten-free diet? In order to properly test anyone for celiac disease you... -
- trents replied to Kipman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Indeterminate transglutaminase iga
Welcome to the forum, @Kipman! When you say your Iga is low I assume you are referring to total IGA. Can you confirm this? If so, the antibody test score for the transglutaminase iga (what we generally refer to as tTG-IGA) test score cannot be trusted. Low total IGA (i.e., being "IGA deficient) will drive down the scores in the tTG-IGA test and can cause...
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