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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- breadbreadbaby replied to breadbreadbaby's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Test Results
Hi everyone! Thanks so much for your feedback on my post. Here’s the updated information: IgA 0.98 (Range 0.80 - 4.90) Tissue transglutaminase IgA Ab 45.4 (<=14.99 U/mL, Positive >=15.0 U/mL) -
- Jy11 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0
Conflicting results
My 7yo has been complaining of tummy aches for some months. Bloods show very low iron and vitamin D. We have had multiple bloods as follows… 1. TTg 0.3 (normal) IgA deficient 2. TTg 6.6 (cut off is 7) IgA 0.54 (cut off is 0.5 so only just over not being deficient) 3. TTg 3 (cut off 7) EMA Positive We are awaiting biopsy but why are t... -
- trents replied to Lburnett's topic in Related Issues & Disorders3
Labs
Chronic mildly elevated liver enzymes was what eventually led to my celiac diagnosis but it took thirteen years to ferret that out and by that time I had developed osteopenia. Yes, you've got a lot going on there in the way of autoimmune disorders and all of them we now know have a connection with celiac disease. It is true that autoimmune disorders... -
- Lburnett replied to Lburnett's topic in Related Issues & Disorders3
Labs
Thank you! Yes, I have celiac disease, lupus and Sjögrens. My ALT and AST have been chronically slightly elevated for a couple years and recently had an acute kidney injury (thinking it was from an antibiotic) with increased Lipase. So my primary doctor referred me to a kidney specialist. Other kidney labs are normal. -
- ChrisSeth replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
Waiting on Blood test results…
My test results for TissueTransglutaminase IgA Antibody test came back normal. Like spot on normal. I do not have celiac! My problems are stemming from this H Pylori infection. I think I’ve had it for years. We’ll see if the doctor wants to do an endoscopy to see how extensive the damage is. Otherwise just a regimen of antibiotics will do the trick. The tha...
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