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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- knitty kitty replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
New Guy Here...
@TerryinCO, Pantoprazole is an acid suppressor, but Gerd is often caused by too little stomach acid, (hypochlorhydria), not too much. PPIs like yours suppress stomach acid production further, causing nutritional deficiencies. PPIs cause additional damage to the intestinal lining and can inhibit antibody production in the intestines resulting in low... -
- ellyelly replied to ellyelly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Biopsy results - second opinion?
Wow - this is all so helpful KnittyKitty. I have just checked and they have done a total iga test thankfully! Will definitely share the results. How interesting about the impact of iron on antibodies. I had an iron infusion about 1.5 months prior to the endoscopy, but haven’t started supplementing again (awaiting updated tests). I had planned to see a... -
- RonMc replied to Itchyperson's topic in Dermatitis Herpetiformis30
Cycle of dermatitis herpetiformis
I use Dapsone for my dermatitis herpetiformis. Was not an issue in the beginning of diagnosis. Once I did the covid vaccine it changed and now I cannot stop using the medicine for more than 24 hours or it flares up with a vengeance. Then it takes just over two weeks for the med to get it back under control. My dermatologist was able to identify and treat... -
- TerryinCO replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
New Guy Here...
Thanks, Knitty Kitty. No, I'm just taking B12...also a vitamin D3. For gerd - Pantoprozole. Trents, thanks for the links. There's a lot to digest there (pun intended), I'll have to read those a few times to grasp. -
- knitty kitty replied to ellyelly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Biopsy results - second opinion?
Because of your anemia, you may not be making sufficient antibodies. I hope they did a total IgA as well as the tTg IgA, and DGP IgG. I hope you will share the results with us. If your body isn't making a large amount of antibodies, then the intestinal damage would be less as well. The antibodies attacking our own cells is what causes the damage...
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